Reply With QuoteMy boyfriend just finished his stem cell harvesting today so HDC is in the near future. I hear such amazing stories about how the HDC works wonders. Stay positive we are all pulling for you.
ps where were you treated?
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Hello All,
I have read the forum for many months now, but this is my first time actually writing in it. I am scheduled to have my first CT Scan tomorrow since I have finished my high dose chemo/stem cell recovery which I had to have because of a relapse following 2xBEB; 2xVIP; and RPLND. At last check my HCG was below 2; and this time we will check it using the hypersensitivity method instead of the standard test.
I am so overwhelming anxious about the scan, because the last time I had a scan is when we found out that the cancer had come back. I cannot shake all the feelings of dread, and get incredibly nervous whenever I feel (or imagine I feel) something that is "not right" in my body. I still have masses in my lungs from the initial spread, but we do not know whether they are metastatic chorio, benign teratoma, or necrotic tissue. So with this scan I will find out if I am having lung surgery to remove the teratoma (if the masses have grown and HCG is "normal"), whether I relapsed again, or whether we keep me in surveillance.
That is all I really have to say. I am just a little freaked and needed to vent.
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My boyfriend just finished his stem cell harvesting today so HDC is in the near future. I hear such amazing stories about how the HDC works wonders. Stay positive we are all pulling for you.
ps where were you treated?
Left Orchiectomy 6/10, pathology MGC with EC/teratoma mostly yolk sac. AFP >700 HCG >500 4 cycles EP July-Oct. AFP and HGC normal. Jan/11 AFP >1000. 4 cycles of TIP planned stopped after 3 for elevated AFP 3000. Stem cells harvested 8/22-8/25/11. AFP over 8000. HDC 10/17/11 -12/20/11. RPLND 1/16/12. Pathology MGC tumor mostly yolk sac. 45 lymph nodes negative.AFP 2.1 4/12/12. AFP22 6/12 new lesions in liver and abdomen. Gem/Ox start 7/2.
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Chauncey,
I hear you. All of this waiting is tough on those with cancer. I hoping and praying for good test results for you!
Mary Ann
CaregiverSon Josh 23yr Dx 3/5/08 IIIC NonSeminoma affected lung, kidney liver back & tumor/clots in vena cava & celiac artery 3/7/08 L I/O 3/30/08 PostOp surgery 4XEP (VP16 & Cisplatin) 3/12-5/25 LDH > 5000 & AFP 145 (3/5 pre-op) LDH 563 & AFP 4 (5/26 after 4Xchemo) off blood thinners 3/18/09 Surveillance per Dr E 8/4/08 *1/2012 ALL CLEAR!
Self 1/29/09 dx thyroid cancer metastasized to right lung 2/10 thyroid removd 4/17 rx RA131 5/11/10 &7/16/10. 1/12survellience
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@lovemyman -- I was treated at the Indiana University hospital in Indianapolis. Best place to go in the world. We have been working with Dr. Hanna (he is a part of Dr. Einhorn's group) since December when the BEP was not giving me the results my local oncologist had hoped for. Where are you guys getting yours done?
If you are curious about the whole process, my fiance kept a blog almost daily of the entire time we were there. The address is: http://kurtislizandchauncey.blogspot.com/. And if you have any specific questions to ask please feel free to ask.
Kurtis
Registered User
Welcome to the forum Kurtis. Thanks for posting and good wishes for the result from the scan.
Nick
Embryonal Carcinoma; Seminoma. Marker negative.
August 2001: Right I/O .
August - December 2001: Surveillance .
December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
December 2001 - March 2002: 3xBEP .
Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.
March 2012 - Ten years since finishing chemo.
Survivorship Blog is here
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