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  1. 11-10-11, 06:27 PM #1
    LET
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    I missed alot

    I was away on a business trip and I seemed to have missed a lot.

    Tracy - excellent news on the steady numbers

    Wesmom - glad the surgery is over and Wes is home so quickly. Even though they didn't recommend the low fat diet you can still try to encourage him to eat low fat based on the knowledge you have picked up here.

    Codi - glad Don's treatment went well and is behind you.

    Samantha - your husband is in his first week of treatment? I hope all goes well for him.

    Cheryl - WOW on Matt's HCG. Excellent news! I am so happy for you and I am sure you are looking forward to getting home soon.

    Sorry if I missed anyone.

    Craig needed to get a blood transfusion this week. I do not have all the details but his hemoglobin was very low. His white counts were low but not terrible but that was Monday. He did not get the neulasta this time due to his reaction last time. He goes this coming Monday for his 4th and final round of chemo. The plan is to check his white counts and if they are to low, he will get a shot of neupogen on Monday and then start chemo on Tuesday. He is feeling better after the transfusion. He really has very bad nausea during the chemo weeks and they can't seem to get it under control. I think maybe it's because a lot of it is mental. As soon as the nurse walks into the room he starts dry heaving! I feel so bad for him, he really is miserable during that week.

    Lynda
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  2. 11-10-11, 06:34 PM #2
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    hbr777
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    Lynda,

    My husband had really bad nausea too, and we got them to give him Emend for 5 days instead of 3. In his case, it made a world of difference.

    Best to you,
    Heidi

    Husband - age 51
    10/20/10 - Primary mediastinal seminoma - 10 x 9.3 cm; ß-HCG = 33 (<2.6); AFP = 3.5 (<9); LDH = 274 (100-200 )
    11/1/10 4X BEP
    12/7/10 End Cycle 2 - ß-HCG = 2; AFP = 4.6; LDH = 139 ; 4XBEP changed to 3 as tumor now 2.1 x 3.7 cm
    2/15/11 - Post-chemo PET ; residual 8 mm x 2 cm
    6/29/11 - Lung nodules stable or smaller, chest mass continues to shrink & markers all normal
    Surveillance since 6/11
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  3. 11-10-11, 07:11 PM #3
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    CancerSux
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    Lynda,

    Hope you managed to have some fun on that business trip!

    Hope Craig's counts go up and that WBC counts don't drop too much. Really though, low #s in the absence of an infection should NOT delay treatment! Good luck! When will he get a date set for the surgery?

    T
    Tracy
    Cancer pharmacologist, caregiver blog here
    Wife to Kel, dx 12/30/11 Stage IIIc (poor) embyronal, AFP 13700, 10x11 cm retroperitoneal mass, 1 cm^2 lung met
    Left I/O 12/31/10.
    4xBEP 1-4/11, AFP=22, 5*7 RP mass, tx failed
    1.5 x VeIP 5-6/11; tx failed, AFP/b-hCG rising
    Salvage RPLND @Indy 6/29/11, metastatic mixed germ cell tumor with yolk sac, seminoma and teratoma
    Remission! AFP steady since 9/2011; 1.5 years ALL CLEAR
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  4. 11-10-11, 08:37 PM #4
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    Wesmom
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    wesmom

    Lynda

    I'm sorry Craig is having such a hard time with the nausea. Wes went through the same thing. Wes would feel like he had to burp and then gag. It was really bad. His throat was so bad, one night he spit so much in a bag it was awful. Does Craig need the RPLND? I noticed Tracy mentioned surgery in her post. I'm having a hard time keeping up here lately.
    Son Diagnosed 6/24/10
    Right I/O 6/28/10
    (65% Teratoma, 10% EC, 10% Yolk Sac, 10% Seminoma, 5% Choriocarcinoma)
    3XBEP 8/10-10/10
    RPLND 11/2/11 (cyst in right pelvic area was mature teratoma and lymph nodes were clear)
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  5. 11-10-11, 09:26 PM #5
    LET
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    Tracy - it will only be a one day delay at most.

    Wesmom - yes, he is having surgery soon after he finishes chemo, not sure exactly when. Surgery is pretty much automatic at MSKCC when there is teratoma.

    Lynda
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  6. 11-10-11, 11:50 PM #6
    julesTO
    julesTO is offline Registered User
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    Hi Lynda,

    I'm really sorry to hear about the nausea not coming under control. I wish I had some advice to offer but it sounds like they've tried a variety of things already. You'll be amazed at how quickly he bounces back once its all over, certainly in terms of the nausea. Hurray for only 1 more round!
    Husband Shaun diagnosed March 2010. AFP 4571, HCG 3340.
    6cm x 6cm x 8cm retroperitoneal mass + 1cm nodule in right lung.
    Stage IIIb, Intermediate Risk.
    Left I/O March 9/10: 75% EC, 20% Teratoma, 5% Yolk Sac + Seminoma.
    3xBEP + 1xEP March 15 - May 21/10: markers normal.
    Bilateral RPLND July 28/10: 9.5 x 7 x 4.5cm mass, teratoma only.
    Chylous Ascites Aug/Sep.
    November 2012 All Clear
    Continuously monitoring 0.9 x 1.7cm omental nodule (possible fat necrosis)

    www.teamshaun.wordpress.com
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