congrats, here's to more future all-clears. every year is a great milestone.
Latest CT scans came back all clear. Ultrasound of the survivor all good. Bloods are all good. So it's all only 11 months but since I don't have anything scheduled in December I'm calling it 1 Year All-Clear a month early.
12.21.10 - Left I/O - AFP = 119
1.7.11 - Pathology - 2 tumors. 1 mixed non-seminoma (75% immature teratoma, 10 % EC, 10 % Yolk sac & 5 % mature teratoma to balance it off) & 1 pure seminoma. No lvi found. Stage 1. AFP = 14
11.21.11 - All-Clear
1.12.12 - All-Clear. Dropped 20 lbs since diagnosis. Dropped blood pressure, heart rate etc. Running 14 miles 3 times a week. Playing soccer competitively again. Feeling good
congrats, here's to more future all-clears. every year is a great milestone.
100% classical seminoma (I-A, RTI). Surveillance (no adjuvant therapy). 4 years all-clear and hoping for many more.
Considering the 80% of non-seminoma relapses occur within the 1st year, your milestone is HUGE. Congratulations.
- early Apr/11: something is "wrong" in my righty
- 16/Apr/11: ultrasound find a mass in it
- 27/Apr/11: right I/O
- 29/Apr/11: stadiation CT scan shows "all clear"
- May/11: pathology: 1 cm Seminoma (90% necrotic), no RT/LV invasion
- Surveillance....
- March/13: relapse - para aortic node 1.7 cm, waiting for treatment...
Congratulations on this hugh milestone and definitely a very different Christmas this year for you. Guess last year was a very anxious.
Val
Brother (23 when diagnosed) : Dianosed 14/09/2009, testicle removed, Non sem diagnosed. Tumour markers 36000 before op and dropped to 17000 after operation.. Chemo started end of september 4 x BEP. Tumour markers normal at end of chemo. RPLND 26 Feb 2010 No cancer found.
Latest Appointment May 2013- CT and markers normal
Diagnosed 1/27/11 @ 3:30PM
Pre-I/O Markers AFP 24, HCG 1.4
Left I/O 1/31/11, 100% Classic Seminoma
Staged @ 1B
02/23/11 Put on surveillence, per Dr. Einhorn
Current Markers AFP 21, HCG <.6
2 lymph nodes 5.5 and 7.5 mm
3/5/13 2 Years ALL CLEAR!!!
On one of the many researchs I found on the internet when I spent literally HOURS looking for them every day during my diagnosis. I can search for the link if you are interested, but I'm pretty sure it was in italian. By the way it said that 80% of non-seminoma's relapses occur within the 1st year, 12% within the 2nd, 6% within the 3rd, and less than 2% after it.
It's safe to say that +90% of the non-seminoma relapses and 70% of the seminomas occur in the first 2 years.
- early Apr/11: something is "wrong" in my righty
- 16/Apr/11: ultrasound find a mass in it
- 27/Apr/11: right I/O
- 29/Apr/11: stadiation CT scan shows "all clear"
- May/11: pathology: 1 cm Seminoma (90% necrotic), no RT/LV invasion
- Surveillance....
- March/13: relapse - para aortic node 1.7 cm, waiting for treatment...
Hey Nut, I've seen similar #s. My oncologist said that while a year is big he really wants to get me through 2 years before we even start talking about it in a past tense with reduced recurrence %s. I think that's smart. Just need a little patience. For me I no longer worry before the scans or bloods, it's just part of the routine now.
& Val, yes these will be easier holidays. Last year at Thanksgiving I knew something was wrong and even though the interwebs had told me TC I was still too tough or maybe chicken to see a doctor about it. As for Christmas last year well it wasn't all bad but I write that up to being well sedated with percocets and Heineken's after my I/O![]()
12.21.10 - Left I/O - AFP = 119
1.7.11 - Pathology - 2 tumors. 1 mixed non-seminoma (75% immature teratoma, 10 % EC, 10 % Yolk sac & 5 % mature teratoma to balance it off) & 1 pure seminoma. No lvi found. Stage 1. AFP = 14
11.21.11 - All-Clear
1.12.12 - All-Clear. Dropped 20 lbs since diagnosis. Dropped blood pressure, heart rate etc. Running 14 miles 3 times a week. Playing soccer competitively again. Feeling good
Oh and thanks for the nice comments. I didn't mean to be rude![]()
12.21.10 - Left I/O - AFP = 119
1.7.11 - Pathology - 2 tumors. 1 mixed non-seminoma (75% immature teratoma, 10 % EC, 10 % Yolk sac & 5 % mature teratoma to balance it off) & 1 pure seminoma. No lvi found. Stage 1. AFP = 14
11.21.11 - All-Clear
1.12.12 - All-Clear. Dropped 20 lbs since diagnosis. Dropped blood pressure, heart rate etc. Running 14 miles 3 times a week. Playing soccer competitively again. Feeling good
Your oncologist speaks the truth and you're correct in being vigilant for the next years, I just tried to cheer you up even more with some encouraging statistics
It's also great that you no longer worry before the scans/bloods, I'm a few steps behind in this matter and I hope it'll be the same for me ASAP![]()
- early Apr/11: something is "wrong" in my righty
- 16/Apr/11: ultrasound find a mass in it
- 27/Apr/11: right I/O
- 29/Apr/11: stadiation CT scan shows "all clear"
- May/11: pathology: 1 cm Seminoma (90% necrotic), no RT/LV invasion
- Surveillance....
- March/13: relapse - para aortic node 1.7 cm, waiting for treatment...
Congrats on the good news! I'd say 11 months is good enough to call a year.
Nut of Mordor, I hope you're right on the stats. I've avoided looking. My son is up for his 11 month check on December 12 and it includes CT scan, etc. If all is well, then I'll call it a year tooand maybe get a good night's sleep????
Best,
Astrid
Astrid
Son Tyler (age 19) diagnosed 1/6/11-Surgery 1/11/11- 2.5 cm. mixed germ cell (EC, chorio, teratoma and yolk sac).
Elevated HCG -over 600, Elevated AFP - over 150
Markers returned to normal by 2/7/11
Stage 1a (no vascular invasion)
Surveillance since-
last CT check -8/15/11 - clear 7 months
last marker and lung xray check- 10/10/11 - clear 9 months
CT, xray and blood check - 12/12/11 - all clear -almost one year
Astrid, Thanks and good luck to your son!
12.21.10 - Left I/O - AFP = 119
1.7.11 - Pathology - 2 tumors. 1 mixed non-seminoma (75% immature teratoma, 10 % EC, 10 % Yolk sac & 5 % mature teratoma to balance it off) & 1 pure seminoma. No lvi found. Stage 1. AFP = 14
11.21.11 - All-Clear
1.12.12 - All-Clear. Dropped 20 lbs since diagnosis. Dropped blood pressure, heart rate etc. Running 14 miles 3 times a week. Playing soccer competitively again. Feeling good
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