Reply With QuoteHi Peter,
Wonderful news! Enjoy that coffee and cream cake!
Steve
Registered User
Intended to post this morning before going but it never happened!
Got my urologist appointment moved up earlier (thanks Smartie for the suggestion) to discuss the pathology results. The highlights were:
Seminoma Stage 1
no signs of spread via pathology
CT scans clear
pre-op and post-op markers normal
incision healing better than expected.
MDT is this afternoon when the urologist expects to "hand me over" as a patient to oncology, who will be in touch to discuss options. As the urologist put it "with a bit of luck we can now start counting down to a discharge in 5 years". I like an optimist.
Apparently next week all the test results I want will be available to me from my GP any other results I want let them know!
Going out to buy cakes ... ummm cream cake yeah.I know I am really sad resorting to coffee and cake but there is no-one else home and I have run out of people to text the good news to. I really do wish everyone else as good a day as I have had so far.
Peter
Jan 12 - Suspicious swelling
Feb 12 - Ultrasound confirms, Urologist says probably tumour AFP 2, HGC 3, LDH 644, CT Scan - clear
28 Feb 12 - Left I/O
Mar 12 - Urology review, Classic Seminoma (Alveolar) 3.9cm max, no LVI or RTI, encapsulated and excised. pT1. AFP 2, HGC <1
Apr / May / Aug 12 / Dec 12 - Oncologist - All clear inc CT / CXR
Mar 13 (notionally 1 Year) - next planned surveillance
Grumpy is just a 20 year old nickname not an instruction Okay
Registered User
Hi Peter,
Wonderful news! Enjoy that coffee and cream cake!
Steve
Jan 2012 suspicious lump detected, AFP 4, HCG 3, LDH 207 (UL 192)
Feb 2012 Seminoma, 5cm x 4cm, no LVI/RTI, pT1, Stage 1A, Surveillance, joined TRISST
Mar 2013 (1 year) relapse, Stage 2B, 2x Nodes 2.1 and 2.3cm
Apr 2013 Start CarboPlatin AUC10 x 3 cycles, 1st cycle complete
Registered User
Whoo hoo, awesome news!! Enjoy your coffee and cake.
Tina, wife to Gene
Right I/O 2/21/11
60% embryonal carcinoma- 40% seminoma with L/V invasion, Stage 1B, Cat Scan- clear
HCG- 1.2, AFP-1.5, LDH-normal
BEP X 2 started 3-7-11
Bleo canceled for 2nd round, lung issues
EP 3-28-11 X 5 days, finished chemo 4-1-11
F/U cat scan 4/14/11 - Stable
3rd round EP as precaution because Bleo was cancelled, start 4-25, finished chemo 4-29-11, pneumonia 5-6-11
6-1-11, 8-3-11, 9-7-11, 10-19-11, 11-16-11, 12-18-11, 1-18-12, 5-8-12 Clear
Registered User
Hi Peter. Sorry I'm late responding.
I'm delighted at your good news. Stage I seminoma with clear scans and negative markers is about as good as TC gets.
I'm assuming you'll opt for surveillance. All the best for whatever you decide.
Nick
Embryonal Carcinoma; Seminoma. Marker negative.
August 2001: Right I/O .
August - December 2001: Surveillance .
December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
December 2001 - March 2002: 3xBEP .
Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.
March 2012 - Ten years since finishing chemo.
Survivorship Blog is here
Registered User
After the post IO meeting with the urologist I have heard nothing else yet and was visiting my GP (family doctor) to discuss returning to work today so asked if he knew anything. He did not but phoned the consultant urologist's secretary. It seems my case was discussed again at last week's MDT and I am to be referred to Oxford. Originally I had been told I would be referred to local oncology. Apparently the nurse specialist will be able to give more information so I am trying to get hold of her.
I have to admit it is dis-quietening as I don't know why the change, if it is correct, other than I was a patient, and discharged, Clinical Genetics at Churchill, Oxford some years ago although everyone has told me that was unrelated. Looks like tomorrow could be spent on the phone .....
Updated
Phone call this morning and it looks like I was inventing in my mind non existant complicated reasons, it is just routine and a normal referral. Feeling relieved and rather silly at the same time However I did get fuller staging which is now Classic Seminoma T1S M0 N0
Last edited by Grump_uk; 04-05-12 at 04:21 AM. Reason: Saved too soon
Jan 12 - Suspicious swelling
Feb 12 - Ultrasound confirms, Urologist says probably tumour AFP 2, HGC 3, LDH 644, CT Scan - clear
28 Feb 12 - Left I/O
Mar 12 - Urology review, Classic Seminoma (Alveolar) 3.9cm max, no LVI or RTI, encapsulated and excised. pT1. AFP 2, HGC <1
Apr / May / Aug 12 / Dec 12 - Oncologist - All clear inc CT / CXR
Mar 13 (notionally 1 Year) - next planned surveillance
Grumpy is just a 20 year old nickname not an instruction Okay
Registered User
Glad it's all looking good.
Nick
Embryonal Carcinoma; Seminoma. Marker negative.
August 2001: Right I/O .
August - December 2001: Surveillance .
December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
December 2001 - March 2002: 3xBEP .
Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.
March 2012 - Ten years since finishing chemo.
Survivorship Blog is here
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