Just thought I'd check in on this site as it's been a while. Thankful for this site as it really got me through one of the most difficult periods of my life. Happy to report that my boyfriend is still cancer free and seems a million times better. He complains of ear ringing every now and then, and aches in his feet and legs, but otherwise is good! He went from having blonde hair his entire life to black curly hair with more gray...but hey, it's hair! He has gained weight back to his pre-chemo weight, and lifts weight a few times a week to rebuild muscle. He is no longer anemic, but that is not stopping him from eating burgers and steaks nearly every meal.
A good friend of mine started BEPx3 a few weeks after Rob, so we visited him in the hospital and swapped stories. Unfortunately his latest tests showed his markers are up from 13 to 2200. I'm not even sure what this means as my boyfriend was doing BEPx3 to prevent it from ever coming back. I guess my friend is going to have to go through EPx4 which I didn't even know was a possibility. Hoping I can be there for him and provide emotional support as this all starts over for him.
loving girlfriend to 39 year old cancer survivor
march 2010 R/T stage 1A seminoma
march 2012 recurrence, right inguinal lymph node 3cm
stage 2B seminoma
april 2012 BEPx3
august 2012 cancer free