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Thread: someone could help me please

  1. #51
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    Carboplatin

    Quote Originally Posted by frank1980 View Post
    Back again from the doctors and the first meeting with the new oncologist... thanks to God he is a very kind and polite person, and also the doctress who will follow me is a very kind person. They saw all my documents and reports and assured me that there are no worrying elements, and encouraged me (they say "as friends and not as doctors") to have a single carboplatin round, that will last two hours, to increase the probabilities of being cured up to 99,99%. They explained to me that I'm yet cured and I don't really need an adjuvant treatment, but, since a rete testis invasion was detected, and it could be a possible disturbing factor in my follow up (in other words, it's the only potential element who can bring problems in future) with a single carboplatin round it would be neutralized and I could be considered with a leg and a three quarter out of danger (the speech they did to me was "You can avoid it, there will be no problems, but listen to us, we are talking to you like friends and not like doctors, if you want to put completely your mind in rest, do it... you have done so much with your efforts so far, so do also this last effort!"). So, instead of surveillance, I have chosen to have this infusion, I think it will be done on the next Wednesday... For the other problems of the sugar values in the blood, the oncologist and the doctress said that there are no worrying elements also there...

    Have a nice time!
    Good choice Frank. I am now one week out from my infusion and doing very well. Supposedly the full effect on my blood is between 10-14 days so my counts may drop a bit yet before recovering but the shot of neulesta spiked my white counts up quite a bit. I still feel a bit tired and draggy but nothing like day 3 and 4, those were the worst for me so be sure to get plenty of rest and drink lots of fluids. Hot Baths are great for bone and joint pain.
    03/16/2012 Ultrasound Diagnosis TC (Tumor 5.5 cm)
    03/22/2012 Right I/O Pre-IO markers normal
    03/28/2012 Pathology Classic pure Seminoma, pT1/N?/M0/S0
    04/05/2012 CT Scan--Clear? (single 1.2 cm node External iliac)
    05/03/2012 PET Scan CLEAR. All markers Normal.
    05/04/2012 1 X CARBOPLATIN INFUSION (Chemo Lite)
    09/02/2012 CT All Clear! (1 cm External Illiac Node)
    04/04/3013 CT All Clear!

  2. #52
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    HI Charles! Thank you for your advices, you are very kind as always... I think that the dosage of carboplatin that I will receive is different than yours, because, standing on what the doctors said to me, they explained to me that is an unique session of one day and not more. As far as I have understood, you have had a cycle, while I'm going to have only a shot. However, I will keep you informed! Thank you once again and have a nice weekend!

    Frank

    PS: 97 of sugar level this morning. Seems like everything is all right...

    PS to PS: if I can say this, please allow me, I'm very angry with the beasts of the urology unit that made me the surgery. They said to me so far that the tumor had a size of a few millimeters and didn't attack anything, but only yesterday I have known the truth... Thanks to God, I trust these new doctors that will follow me with my cures, but I'm wondering why the urologists said to me a lie. They don't know that, doing this, the persons can loose the faith in them ???? And moreover, even if I'm out of the necessary time to have a treatment, I will have it the same... "better later than never..."
    Last edited by frank1980; 05-12-12 at 05:58 AM.

  3. #53
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    1 X Carbo

    Quote Originally Posted by frank1980 View Post
    HI Charles! Thank you for your advices, you are very kind as always... I think that the dosage of carboplatin that I will receive is different than yours, because, standing on what the doctors said to me, they explained to me that is an unique session of one day and not more. As far as I have understood, you have had a cycle, while I'm going to have only a shot. However, I will keep you informed! Thank you once again and have a nice weekend!

    Frank

    PS: 97 of sugar level this morning. Seems like everything is all right...

    PS to PS: if I can say this, please allow me, I'm very angry with the beasts of the urology unit that made me the surgery. They said to me so far that the tumor had a size of a few millimeters and didn't attack anything, but only yesterday I have known the truth... Thanks to God, I trust these new doctors that will follow me with my cures, but I'm wondering why the urologists said to me a lie. They don't know that, doing this, the persons can loose the faith in them ???? And moreover, even if I'm out of the necessary time to have a treatment, I will have it the same... "better later than never..."
    Frank I would Question the dosage, I had what is established in the NCCN Guidelines which is 7 AUC. The Nurses that administered it pushed it over 4 - 6 hours beacause they said it would reduce the side effects, they also pushed it with steroids and other premeds such as anti-emitics to prevent nausea. Make sure the chemo center is following the NCCN. I am not aware of any dosages lower than 7 AUC.
    03/16/2012 Ultrasound Diagnosis TC (Tumor 5.5 cm)
    03/22/2012 Right I/O Pre-IO markers normal
    03/28/2012 Pathology Classic pure Seminoma, pT1/N?/M0/S0
    04/05/2012 CT Scan--Clear? (single 1.2 cm node External iliac)
    05/03/2012 PET Scan CLEAR. All markers Normal.
    05/04/2012 1 X CARBOPLATIN INFUSION (Chemo Lite)
    09/02/2012 CT All Clear! (1 cm External Illiac Node)
    04/04/3013 CT All Clear!

  4. #54
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    Hi Charles once again...I write from my mobile phone so I don't know if I'm writing correctly the message...From what I have understood,the Auc 7 dosage is subjected to four factors:the age of the patient,his weight,the size of the tumor and the rete testis invasion. The doctors explained to me that in the first hour I will receive the anti emetics and anti nausea medicine,and after,in the following hours (from two hours to four) the carboplatin. Furthermore, I saw some Nccn guidelines exposed on some papers on the wall in the waiting room,so I suppose that the center is following them... Have a nice day and a warm greet as always!

  5. #55
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    Awesome

    That's great Frank, sounds like you are in good hands! Just remember to drink plenty of fluids and get lots of rest. I took advil and stool softeners regularly and Hot Baths were my best friend.

    Praying for your speedy recovery and total destruction of any stray cancer cells that may be hanging around looking for a place to take up shop.
    03/16/2012 Ultrasound Diagnosis TC (Tumor 5.5 cm)
    03/22/2012 Right I/O Pre-IO markers normal
    03/28/2012 Pathology Classic pure Seminoma, pT1/N?/M0/S0
    04/05/2012 CT Scan--Clear? (single 1.2 cm node External iliac)
    05/03/2012 PET Scan CLEAR. All markers Normal.
    05/04/2012 1 X CARBOPLATIN INFUSION (Chemo Lite)
    09/02/2012 CT All Clear! (1 cm External Illiac Node)
    04/04/3013 CT All Clear!

  6. #56
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    Thank you for your suggestions Charlie! For sure, I'm drinking a lot of water during these days in order to throw out the ketones from my blood and my urines. And I will increase the quantity of water and fluids during the treatment days. As far for the rest, let' s say that in this case, nobody can come to me and say to me "get up, what are you doing in bed ????"

    I'm praying for your complete recovery too! Let' s stay positive and think that everything is over our shoulders! Have a good Sunday!

  7. #57
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    A quick update for this Monday: I called the oncologic center and I was informed that the carboplatin shot will be done on Thursday and not on Wednesday. This because the doctress who will follow me is off duty on Wednesday and I don't want to be followed by other doctors. She said to me that there is an occasion available tomorrow, but unfortunately I have to go to the sperm bank to have the results of my sperm count and both of the centers are far so I can't do the two things in a day, anyway, I accepted Thursday as an ideal day to have the carboplatin...

    Have a good starting week!

  8. #58
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    Back again with the results of the sperm count: Seems everything is ok at 90%, except for an astenospermia (but I already knew about this thing). Thanks to God my sperm is functionally and in good shape, so also this obstacle, by now, is passed... Now, one day without doing nothing and then finally the carboplatin infusion. I'm not really afraid of it, only I'm bothered to wait...

    Have a good Tuesday!
    Frank

  9. #59
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    And the day is come: as I have expected, I reached the oncologic center to have the carbo shot one hour sooner than planned, but I think that is better sooner than later Thanks to God, there are also mobile phones with the radio built in!

    Will keep you posted!

  10. #60
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    And so it is, the infusion was done and now I'm full of poison... ("injected with a poison, we don't need them anymore",like an old disco song said... just kidding...) The dosage was of 750 mg (decreased from the initial 950 mg due to my high weight) and, by now, I'm only feeling a sense of weakness and some skin rashes. I hope that I won't have problems like nausea or vomit...

    In ten days, I will have to test my blood and on the next month the first Ct scan (or the second if we want to include also the Pet scan that I had on April)... what else can I say...

    Have a nice day!
    Frank
    Last edited by frank1980; 05-17-12 at 09:46 AM.

  11. #61
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    PS: Here are two photos of me this morning during the infusion... (I know, I look like a walrus...)
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  12. #62
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    Bet you are happy this is now a done deal, eh?
    "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
    11.22.06 -Dx the day before Thanksgiving
    12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! Final follow-up: 07/2014.
    Please support my fundraising efforts for the 2013 Austin LIVESTRONG Half Marathon!


  13. #63
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    Hi Fed and thank you for the reply! Well, I feel happy, this is true, but I keep on standing with my feet on the ground, I don't want to fly on the wings of joy too soon. I think that I have to conquer every little step, very slowly, until I reach the goal to be safe and totally cured!

    Hugs!
    Frank

  14. #64
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    Quote Originally Posted by frank1980 View Post
    PS: Here are two photos of me this morning during the infusion... (I know, I look like a walrus...)
    You don't look like a Walrus, Frank. Actually, you look pretty healthy.

    At least you have your hair. Mine fell out because of the chemo. I look like Uncle Fester from the Addams Family. Of course, People tell me I look younger now that I'm bald because my hair was gray to begin with.

    Anyway, I'm glad you got this over with. I have a feeling everything will work out fine for you.
    Jan 2000 Left I/O
    Surveillance
    Dec 2011 cancer diagnosed in right testicle, and lymph node, followed by I/O
    Pathology report 100% pure seminoma
    March 5 2012 started chemo 4xEP
    May 11, 2012 Finished Chemo.
    October 29, 2012 All Clear.

  15. #65
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    Hi my friend! And thank you for the good words! Well, let's say that I didn't say that I look like a walrus because of my hair (that are however long for my tastes while I prefer to have them short), but I was talking about my general physical aspect... I'm too overweighted and and, even if I'm following a strict diet, something I fall into the temptation of eating a biscuit or a chocolate...

    Regarding the hair, I'm sorry to hear that the chemo has made your ones fall down and now you look like the uncle Fester, but I'm sure that they will grow up again and I wish to you that this will happen as soon as possible! Anyway, as you said, if you had starting to have grey hair and now people say to you that you look younger, I think this could be considered as the positive side of the medal And, if you could allow me a little joke, if you are the Uncle Fester, I look like Lurch (you rang ????) (logically I'm just kidding! )

    A warm and sincere hug to you my friend!
    Frank

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    Quote Originally Posted by frank1980 View Post
    Hi my friend! And thank you for the good words! Well, let's say that I didn't say that I look like a walrus because of my hair (that are however long for my tastes while I prefer to have them short), but I was talking about my general physical aspect... I'm too overweighted and and, even if I'm following a strict diet, something I fall into the temptation of eating a biscuit or a chocolate...

    Frank

    Well, if I lived in Italy, I'd probably weigh 400 lbs, because I love Italian food. It's my favorite. I could eat pasta everyday, and be happy.
    Jan 2000 Left I/O
    Surveillance
    Dec 2011 cancer diagnosed in right testicle, and lymph node, followed by I/O
    Pathology report 100% pure seminoma
    March 5 2012 started chemo 4xEP
    May 11, 2012 Finished Chemo.
    October 29, 2012 All Clear.

  17. #67
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    Sorry for my ignorance my friend. Are 400 lbs the same as 180 kg ???? Here in Italy unfortunately the weight is expressed in a different way than in the United States. Anyway, my weight is of 100 kg (probably 220 lbs), and I like eating also very much. Even if I wanted to say to you a thing, here in the areas where I live (the south of Italy) there are not only the pasta and the pizza that make Italian food known and famous all over the world, but also a wide variety of traditional and local foods (typical sausages, home made pasta, sauces and so on) that are very very tasty! If you want, I can pass to you a link in private so you can see!

    (sorry for this little ot...)

  18. #68
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    Quote Originally Posted by frank1980 View Post
    Sorry for my ignorance my friend. Are 400 lbs the same as 180 kg ???? Here in Italy unfortunately the weight is expressed in a different way than in the United States. Anyway, my weight is of 100 kg (probably 220 lbs), and I like eating also very much. Even if I wanted to say to you a thing, here in the areas where I live (the south of Italy) there are not only the pasta and the pizza that make Italian food known and famous all over the world, but also a wide variety of traditional and local foods (typical sausages, home made pasta, sauces and so on) that are very very tasty! If you want, I can pass to you a link in private so you can see!

    (sorry for this little ot...)
    You and I weigh about the same. Yeah, I love all that stuff. I used to work in an Italian restaurant. Of course, it probably paled in comparison to anything in Italy.
    Jan 2000 Left I/O
    Surveillance
    Dec 2011 cancer diagnosed in right testicle, and lymph node, followed by I/O
    Pathology report 100% pure seminoma
    March 5 2012 started chemo 4xEP
    May 11, 2012 Finished Chemo.
    October 29, 2012 All Clear.

  19. #69
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    I think that there are also Italian restaurants abroad that propose dishes that are very similar from Italian ones. For example, I have noticed that in Holland and in Germany there are some restaurants that are owned by southern Italian natives and they prepare dishes that have a recipe that is old of centuries

    Anyway, I will pass you some links in private, only a moment!

    (sorry again for the off topic...)

  20. #70
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    Before going to bed, a last update for today, the first side effects of the carboplatin start to appear, and I expected them so I don't worry very much. Although nausea and vomit are not present (and I hope that they won't come), a big reddish spot has appeared on my right foot. Funny thing is that I have tried to touch it with my finger to see what it was, and the touch generated another reddish spot. Anyway I prefer to have a skin rash instead of nausea and vomit as undesired effects!

    Have a good night everybody, and thanks for the company! See you tomorrow!

    Frank

  21. #71
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    great news

    So glad to read you are finally comfortable with your doctors and are being treated with the proper respect you deserve. Good luck with the final step in your journey.
    23 yr old son diagnosed Jul 2009
    Right I/O 5 days after ultrasound
    Stage III Non-Seminoma mixed 85% EC, 15% Yolk Sac and immature teratoma
    Mets retroperitoneal lymph nodes and lungs
    Began 4 X EP Aug 2009 Completed Oct 2009 Sloan Kettering
    Lung mets resolved, lymph node mets reduced to sub centimeter and markers normalized
    RPLND 11/20/2009 Dr. Sheinfeld, pathology 2 nodes positive for live cancer
    2 more rounds EP Jan 2010 - Mar 2010
    Surveillance at Sloan Kettering - ALL CLEAR TO PRESENT

  22. #72
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    Thank you hismom, thank you really for your answer!

    Updates for this Friday morning: Some undesired effects of the carboplatin have appeared but I can deal with them so far. Apart from the skin rash, there is also a sense of heaviness at the stomach (is different from the nausea) with a burning sensation (probably because the mucoses are inflamed) and the heart that seems like is playing a drum and bass bassline (94 bpm). But I'm hoping that I have finally exited from the threat of vomiting. I read on the internet that the vomit comes approximately after 6 or 12 hours after the infusion and goes away after 24 hours. So, since it has not presented, I think I have avoided this problem... and this is enough for me to be happy, I can deal with the other effects.

    And this is the way my heart is beating today:.. please stop it! http://www.youtube.com/watch?v=f9IAripJlyM (just kidding...)

    Have a good Friday!

    Frank
    Last edited by frank1980; 05-18-12 at 07:58 AM.

  23. #73
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    The usual quick update before ending the day: this evening, at a moment, I felt the need to rest my eyes for a little bit so I put myself on the sofa and try to sleep a little. Well, I have slept for seven hours! And I still keep on yawning! The only problem is to move to bed from the room where the computer (and the sofa) are located in, because here is deep night (approximately 1.50 am) and the air is a little bit cold, so I don't want to undress me. But is a thing that I have to do!

    As for the side effects of the carboplatin shot, no nausea, no vomit, the acid reflux is reduced, I feel only my skin warm and unfortunately a constipation, like my bowel was completely blocked. I will try tomorrow with a soup of red beans to solve this problem!

    Thank you everybody for the company that you gave me today! See you tomorrow!

    Frank

  24. #74
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    Updates for this day, this morning to be more exact: the situation seems quiet and is not giving me troubles, I took an injection of steroids (the last) and the pill of lansoprazole as protections. I'm having no particular problems, except for the constipation that gives me a more psychological disease than physical, because I'm not in the habit of being blocked to go into the bathroom more than a day. Anyway, the beans are cooking, let's see what will happen!

    Have a good Saturday!
    Frank

  25. #75
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    Stool Softeners

    Quote Originally Posted by frank1980 View Post
    Updates for this day, this morning to be more exact: the situation seems quiet and is not giving me troubles, I took an injection of steroids (the last) and the pill of lansoprazole as protections. I'm having no particular problems, except for the constipation that gives me a more psychological disease than physical, because I'm not in the habit of being blocked to go into the bathroom more than a day. Anyway, the beans are cooking, let's see what will happen!

    Have a good Saturday!
    Frank
    I found stool softeners very helpful for the constipation. (Perhaps some prunes, or prune juice?)
    03/16/2012 Ultrasound Diagnosis TC (Tumor 5.5 cm)
    03/22/2012 Right I/O Pre-IO markers normal
    03/28/2012 Pathology Classic pure Seminoma, pT1/N?/M0/S0
    04/05/2012 CT Scan--Clear? (single 1.2 cm node External iliac)
    05/03/2012 PET Scan CLEAR. All markers Normal.
    05/04/2012 1 X CARBOPLATIN INFUSION (Chemo Lite)
    09/02/2012 CT All Clear! (1 cm External Illiac Node)
    04/04/3013 CT All Clear!

  26. #76
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    Hi Charles! Well, the matter is that I'm allergic to the prunes so I can't eat them. But, after eating some beans souped, finally my bowel has unblocked a little bit so I was able to went into the bathroom. But it hurted me a lot! Anyway, I hope that this will be the beginning of a descending road!

    I don't have other updates for today, except for a very strong weakness due to the lack of steroids, but no problems... Tomorrow, weak or not, it's time for some seaside!

    Have a good Saturday evening and a good Sunday!

    Frank

  27. #77
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    And so also this Sunday went away... what to say, except for a little hemorrhoid prolapse due to the constipation and a light sense of nausea and weakness, I didn't experience any kind of problems. (only one, the day was very cloudy here so no seaside )

    Have a good starting week!
    Frank

  28. #78
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    A short update for this Monday morning... I have slept (never done in my life) for more than ten hours without interruption and this rest was good for me. Apart from the usual light sense of weakness and a very bearable nausea, there are no other problems... and I'm yet ready to forget all the good rest and the relaxing dreams that I made to start thinking again about seminoma, Afp, B-Hcg, relapses, Ct and Pet scans, carboplatin and so on... They have become my "all day friends"! (even if they are very very very undesired )

    Have a nice day!
    Frank

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    Dear friends, I wanted to start another thread because I need a moment to vent a little bit of anger, but I have thought to write it here because I don't want to create other topics for only a moment. I wanted only to say that I can't stand anymore the idea of being attacked from this damn cancer... every day, as I have said before, thinking about markers, nodes, scans, chemo, radio, treatments, worrying about every kind of pain that I feel, exploring here, touching and scratching there and so on... "hey why my remaining testicle is bigger", "hey what is this bubble", "hey why is my flank hurting"... from when I opened my eyes in the morning until I close them at evening, in my mind there are always the words "seminoma","cancer","Pet","Ct","relapse" and so on... I can't really stand it anymore (and it's harder when you have nobody around to talk to...)

    Sorry again for this little moment!
    Frank

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    And so, also this Monday went away. Sincerely I don't have particular symptoms or issues to report, honestly I'm very touched from what happened to Patrik and, in front of this heartbreaking event, the rest doesn't count...

    Good night to everybody!

  31. #81
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    Updates for this Tuesday, that is coming at the end... the nausea has almost disappeared completely, the kidneys and the bowel are slowly unblocking and I think that I'm starting to walk on the road of normality once again. Except from the some usual pains at the right flank that extends up to the right arm and armpit, but they happen only when I wear a kind of jeans that are more tighten. No other problems or issues to report...

    See you tomorrow!
    Frank

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    Hi Frank - just did some "catching up" with your thread. I pray you continue to feel better every day and that with it brings more normalcy to you. Do you have any family/close friends nearby that could be of some comfort to you, especially when everything just gets too overwhelming? Of coure WE are always here for you! Good night, sleep tight!

  33. #83
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    Hey I know what you mean.

    I understand totally Frank! I am so happy to finally be on the other side of this thing and no worries until my first CT scan in a few months.

    We have done all that can be done, be thankful it is only Seminoma and not one of the more devilish forms. My heart goes out to all of those young men fighting the more aggressive forms of this disease and have to endure months of heavy duty chemo or radiation.

    Just decide to push these thoughts away, you have done all that is necessary to kill the cancer!

    Prayers to you my friend.
    03/16/2012 Ultrasound Diagnosis TC (Tumor 5.5 cm)
    03/22/2012 Right I/O Pre-IO markers normal
    03/28/2012 Pathology Classic pure Seminoma, pT1/N?/M0/S0
    04/05/2012 CT Scan--Clear? (single 1.2 cm node External iliac)
    05/03/2012 PET Scan CLEAR. All markers Normal.
    05/04/2012 1 X CARBOPLATIN INFUSION (Chemo Lite)
    09/02/2012 CT All Clear! (1 cm External Illiac Node)
    04/04/3013 CT All Clear!

  34. #84
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    Hi Kmom and Charles, and thanks of course for your replies! Well, to be honest, I have some family members around me but I don't want to make them worry, so in most of the cases I prefer to keep the issues inside myself and to deal with them by myself. (also regarding the friends question, I don't have real friends because there have been a lot of people that have played with me in my life so now I prefer to stay alone). And, like Charles said, it's true that our cancer form is a seminoma, and is a lighter form of cancer, but hey, it's always a dangerous disease and can not be considered as an headache (like some people, here in the real life around me, do). Every time that I read on the forum that there is a person who, unfortunately, is affected by a heavier form of cancer, or have developed mets and so on, my heart receives a big slap and I start to feel totally defenseless and blocked because it hurts me so much psychologically to read that there are persons which have done nothing but good things in their lives and that, suddenly, see their lives changed due to this nasty pathology. They don't deserve it, they deserve only an enjoyable and normal life! And every time that I read an "all clear" or a well done blood test, I feel full of joy for them! I have made an idea about the cancer, I consider itself as a sort of entity that generates inside our bodies, he can extend himself, can force the doctors to extract from us the parts of the bodies that it attacks, so we can lose a testicle, or there are persons that lose for example, for other kind of cancers, a lung, a kidney and so on... It can change, due to the chemotherapy treatment, our physical aspect making the women develop masculine aspects or the men feminine aspects, it can make us loss our hair or became fatter and fatter and so on. But there is a thing that it can never do, it can't change our WAY OF VIEWING THE LIFE and our thoughts. In other words, at a mental level, we are unreachable from it. Another fact that I would like to tell, very quickly not to be annoying, is the answer that I gave to a chemo patient when I took the shot, she asked to me if I were afraid to die, and I answered to her that I'm not afraid about it, because if the cancer will lead me to the death, it's true that I will die, but it will die with me!

    Talking about the updates of today, since now no nausea or other side effects. I have washed the other jeans (the larger ones) and I'm going to put them up, so I can feel more relaxed and don't have the flank and arm pains!

    Have a nice day and thank you for reading!
    Frank
    Last edited by frank1980; 05-23-12 at 05:30 AM.

  35. #85
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    PS: if I can add a thing, there is a friend of mine who was attacked from another kind of cancer approximately three years ago, a breast cancer if I don't remember wrong. She is now under a strict and aggressive treatment of combined radio and chemotherapy because unfortunately she had developed mets in the lungs and in the brain. Well, seems like the cancer is playing hide and seek with her body and with the treatments, because every time that a lesion appears, the doctors irradiate it and treat it with chemo agents, they do a Ct scan and, while that lesion is disappeared, suddenly a new one appears in another part of the brain or the lungs and needs to be treated. That's why I hate cancer!

  36. #86
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    And also this Wednesday came to an end with a surprising update: in fact, five hours ago approximately, I put myself into bed to take some rest, but I was suddenly woken up by a powerful and strong IBS attack. I know it seems absurd, but I've cried from the joy because finally the bowel has completely unblocked itself! I know that I will have to spend the whole night without sleeping and going continuously to the bathroom, but I don't care. The relief that I have expected since a week has finally come!

    See you tomorrow!

    Frank
    Last edited by frank1980; 05-23-12 at 08:32 PM. Reason: Five "hours" and not five "years". Five years without going into the bathroom would have killed me sooner than the cancer! :)

  37. #87
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    Good morning to everyone here, here we go with the updates, honestly I have no issues or problems to mention, I feel quite good. I'm waiting for Monday morning to go to the lab and have my blood checked (I have preferred to do it on Monday because, if I would have done it on Friday, I would have spent the whole weekend with bad thoughts inside my mind, so I take a moment of breathing and then do the tests).

    Have a nice day!
    Frank

  38. #88
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    Good news!

    Glad to hear you are not feeling the Chemo effects, I am in the 10-14 day range and had another blood draw yesterday, I will know the results later today but so far my WBC never dropped below normal.

    I do have a slight red rash on my arms and stomach which I have had for about a week, not sure if its some residual effect of the chemo or something else. I will show it to the Onc on the 31st when I have my next appointment.

    Good to hear you are feeling well Frank!
    03/16/2012 Ultrasound Diagnosis TC (Tumor 5.5 cm)
    03/22/2012 Right I/O Pre-IO markers normal
    03/28/2012 Pathology Classic pure Seminoma, pT1/N?/M0/S0
    04/05/2012 CT Scan--Clear? (single 1.2 cm node External iliac)
    05/03/2012 PET Scan CLEAR. All markers Normal.
    05/04/2012 1 X CARBOPLATIN INFUSION (Chemo Lite)
    09/02/2012 CT All Clear! (1 cm External Illiac Node)
    04/04/3013 CT All Clear!

  39. #89
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    Hi Charlie! I think that your rashes are very probably an effect of the chemo and nothing to worry about. Plus, if your wbc count has not dropped this is a very good sign! I have had only a little problem some minutes ago, while I was shaving, accidentally I have scratched one of my fingers upon a rough surface, and now a very very very little portion of skin has fallen and the zone became reddish and congested. I think this is one of the bearable chemo side effects so I don't worry about it.

    A hug also for the other friends!

  40. #90
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    And so, also this other day came to the end. Since I'm not having particular problems at this moment, I entered here just to send a greet and a hug to everybody who stops here and read.

    See you tomorrow!
    Frank

  41. #91
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    And so, here we are again after a day that didn't go very well. Not on the physical level (except for some disturbing cough, I think that the cause is the air that is very dry here) but psychologically, I don't know why but my head is in a sort of emotional tornado.

    About the other things that I have to report, no other problems or issues. Only a delay in having the blood tests (a week) because the medical lab is experiencing some economical problems, but nothing else... only high fear and a sense of anger that I have to close into myself... anyway, it will pass!

    Have a nice Sunday!
    Frank

  42. #92
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    Chemo Done.

    Good to hear that your Chemo "Lite" is complete and you are recovering well. The rash I have is getting better but its annoying, anyways my WBC never dropped below 5 and seems to have stabilized. I have my followup with the Onc on the 31st at which time I will be scheduled for the first followup.

    You are on the right track for the cure, now its a mental battle.
    03/16/2012 Ultrasound Diagnosis TC (Tumor 5.5 cm)
    03/22/2012 Right I/O Pre-IO markers normal
    03/28/2012 Pathology Classic pure Seminoma, pT1/N?/M0/S0
    04/05/2012 CT Scan--Clear? (single 1.2 cm node External iliac)
    05/03/2012 PET Scan CLEAR. All markers Normal.
    05/04/2012 1 X CARBOPLATIN INFUSION (Chemo Lite)
    09/02/2012 CT All Clear! (1 cm External Illiac Node)
    04/04/3013 CT All Clear!

  43. #93
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    Hi Charles! Yes, you are right, is a mental battle, I agree with you and, even if during all the day I try to do everything to keep my mind distracted, when the evening comes and the night (here in Italy is deep night now, it's almost 1.00 am), the mind starts falling down. As I said before, the thing that makes me very tired psychologically is the constant fear of the pains or (like today) of the coughing, even if I know that in the majority of the cases a cough is only a "simple" cough and nothing else...

    I will meet my oncologist on the 4th of June, so some days after your visit. I think that we will do our first follow up control more or less in the same time! Don't worry about the rash, it will pass very soon. The important is that your wbc count is regular. Is the most important and positive thing!

    Have a nice time!
    Frank

  44. #94
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    Here we are with the updates of this Sunday. A very horrible night spent with panic attacks and bad dreams, this is the reason why I woke up early in the morning in spite of the fact that is Sunday. What to say, I will try to distract my mind going out a little bit and trying to breathe some fresh air...

    Hugs!

  45. #95
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    Panic attacks and Bad dreams

    Frank, I am sorry to hear you are having anxiety, I too had some of these issues. I asked the doctor to prescribe anti-anxiety medication and when I am feeling anxious to the point where it is affecting my thought process or making me act ridiculous I take one, it does help.

    I am not so anxious for now since I have completed the chemo, I am confident that the cancer was removed and anything left was killed so I can relax a bit. Of course there is always the nagging worry that I am sure will become pronounced just prior to CT scans and the like.

    As for the bad dreams, try not to to eat pizza close to bedtime!
    03/16/2012 Ultrasound Diagnosis TC (Tumor 5.5 cm)
    03/22/2012 Right I/O Pre-IO markers normal
    03/28/2012 Pathology Classic pure Seminoma, pT1/N?/M0/S0
    04/05/2012 CT Scan--Clear? (single 1.2 cm node External iliac)
    05/03/2012 PET Scan CLEAR. All markers Normal.
    05/04/2012 1 X CARBOPLATIN INFUSION (Chemo Lite)
    09/02/2012 CT All Clear! (1 cm External Illiac Node)
    04/04/3013 CT All Clear!

  46. #96
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    Hi Charlie! I have read your answer and I'm seriously thinking to take a triazolam pill before going to sleep at night. It's the only medicine that gives me a little bit of relief and makes me sleep without problems (even if it's tough to metabolize during the day time). I hope that my bad thoughts, my anxiety and my bad dreams will disappear after every follow up control that I will have to do in the future, and will not appear every day. I will try to do my best to avoid it...

    Regarding the updates for this Sunday, I have nothing important to report except the usual little pains that come and go, they turn on and turn off... since two days, I'm having some aches at my eyes but they are bearable and the usual sight decreasing when I force my eyes too much, if we want to find an issue

    Quote Originally Posted by cbvance View Post
    As for the bad dreams, try not to to eat pizza close to bedtime!
    Charlie you make me cry! (just kidding of course ) Honestly, only God knows how much I wish to eat a pizza or a dish full of pasta instead of all those vegetables and fruits that I'm eating in this period!

    See you tomorrow!
    Frank

  47. #97
    Frank,
    Are you diabetic? I can explain ketones (ketone bodies). Ketones are chemicals that are formed by the breakdown of fat. Acetone, beta hydroxybuteric acid and something else, I can't recall. They are all similar.

    In a diabetic person, they are unable to metabolize glucose for energy, so the body goes looking for another source of energy and finds the stored fat and starts breaking it down. This would be great except that the by product of hyperketosis is acidosis - the blood becomes acidic and the body tries to compensate by changing the electrolyte (sodium, potassium, chloride and carbon dioxide) balance and excreting extra water along with the sodium, and carbon dioxide is breathed out in the air.

    In a non diabetic person ketosis may occur during normal fasting, or extended fasting, as people usually fast before blood is drawn for testing. In an overweight person trying to diet, the ketosis is normal as well.

    Once the fat is gone the ketosis will stop but the body will go and break down the muscles, and that is another story.

    Anyway, in a nutshell, don't worry about your ketones unless you are diabetic and having a major blood sugar problem.

    Maryann

  48. #98
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    Hi Maryann, and thanks for the answer and for the explanation about the ketones. In my case, my family doctress said to me that I'm not a diabetic person, but the sugar levels in my blood could lead her to think that I'm in a pre-diabetic condition. I have measured the sugar in the blood for a week and the average rate was of 94 units (the maximum range is 110 as far as I know) but I have also reached 110 units in the past. However, by now, I can't consider myself as diabetic in the strict sense of the word, but I have to pay attention to what I eat of course...

    The presence of the ketones, according to her opinion, is related to the strict diet that I have tried to follow, based mainly on vegetables and with low salted foods (carbohydrates and proteines almost absent). I have felt, during the past days while I was at the beginning of this diet, a very strong nausea at every moment and the doctress suggested to me to add some carbohydrates and to drink a lot of water. I have tried it and the nausea has disappeared. On the next day of Friday I will have my blood and urines tested again to see if the ketones went away or not. As far as I know, the ketone bodies appeared in my urines because, since I stopped to eat sugars, salted foods, proteins and carbohydrates, the body has started to metabolize (or catabolize, I don't know this very well) the fat acids instead of the sugars, carbohydrates and proteins and for this lack the ketones have been generated. But I didn't (and don't) have problems like acetone breath or similar. I read also that sometimes also strong emotional stress can cause a light form of blood ketosis and blood ketoacidosis, who knows this could be also the cause...

    Regarding the other updates, I have nothing in particular to report... Only a very light ache at my left eye (sometimes moving also to the right one) and the sight that decreases when I feel tired, but restores itself when I wake up the day after. No other facts...

    See you tomorrow!

  49. #99
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    Mar 2012
    Location
    Italy
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    Good morning my friends, and here we are for the updates of this morning: Not only I have to deal with the thoughts related to the cancer, but also with earthquakes. Apart from some big earthquakes that are happening in the north of the Italy, seems like also in the south, where I live, an earthquake fault is slowly waking up and in the last two days has shaked the ground (even if not very strongly). What else can I say if not that my mind is completely under pressure...

    Have a nice day!

  50. #100
    Join Date
    Oct 2010
    Location
    Cary, NC
    Posts
    1,171
    Hi Frank -

    If you not diabetic, there is nothing wrong with ketosis in a healthy person. It just means you are burning fat for fuel instead of sugar.

    Why are in ketosis - are you trying to lose weight, control your sugar or what?
    Heidi

    Husband - age 51
    10/20/10 - Primary mediastinal seminoma - 10 x 9.3 cm; ß-HCG = 33 (<2.6); AFP = 3.5 (<9); LDH = 274 (100-200 )
    11/1/10 4X BEP
    12/7/10 End Cycle 2 - ß-HCG = 2; AFP = 4.6; LDH = 139 ; 4XBEP changed to 3 as tumor now 2.1 x 3.7 cm
    2/15/11 - Post-chemo PET ; residual 8 mm x 2 cm
    6/29/11 - Lung nodules stable or smaller, chest mass continues to shrink & markers all normal
    Surveillance since 6/11

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