Dear friends,
I write this message to you because, during these last days, I'm experiencing a problem that I don't know if it's related to testicular cancer or not. Even if the doctors said to me there is nothing to worry about, this problem has started to become more important and it's literally making me living in the hell. To make a long story short, my problem is that I'm feeling a constant and strange sore at my penis. It's hard to explain how I feel this pain, but I try to do it anyway: in most of the occasions it takes place on the top of my glans, but sometimes I feel it "moved" into the urethra, the scrotum till it reaches my anus. It doesn't have a constant level of painfulness, sometimes is stronger sometimes is lower, but it never disappears. Before discovering the testicular cancer I remember to have yet this pain, even if didn't appear very often, sometimes I felt like a puncture or a sting located in the interior part of the penis, it was very painful and didn't last too much, only four or five seconds then disappeared. After the orchiectomy it went away completely and started appearing two or three days after, but it was very weak. When I asked to the urologist about the possible cause, he answered to me that there was nothing to worry about and that soon it would have disappeared. Things went ok for two or three days, but after it came back again. I talked about it to my oncologist and he answered to me that it could have been urethritis, and that was partly related with the surgery I had before. He suggested to me not to think about it and to stay calm and to go on. When I had my PET scan, the machine found two little areas of hyper activity located on the peak of my glans, but the radiologists, the doctors and my oncologist said that those were drops of radioactive urine located in the zone between the glans and the foreskin. I was happy to hear there was nothing to worry about, but now, since two days approximately, the pain came back and it started torturing me again. As I said before, there are moments where it's low and gives me no problem, but unfortunately there are also periods where it starts to explode... I feel again that sting puncture sensation on my urethra, sensations of nipping at my glans and sometimes it extends reaching all my scrotum and the anus. A doctor at the hospital, that works together with the urologist, asked to me if I have problems (e.g. burning sensations) when I go into the bathroom for making urines, but I don't have them. Moreover, if I try to touch my penis, it doesn't hurt to me as a reaction (or, on the contrary, if I touch it when it's hurting and try to massage it, the pain doesn't stop or change). So far, the hypotesis that I have made (since the doctors said to me that it's an uncategorized inflammation) are three: a balanitis, an urethritis (according to what the oncologist said to me) or a prostithis. I don't want to think to a second contemporary cancer (even because, in most of the cases, in every event of cancer, pains occur when the tumor is in an advanced stadium, and the two areas that the PET scan found are not meaningful according to what the doctors said) but the fear is very high. One of the doctors said it's helpful in this case to do an urethral swab test, and I'm thinking seriously to do it (even if people says it's painful I don't care, but I have to postpone it because on the next Monday I will have to go to the radiologic center to do a radiotherapy simulation). If someone of you had the same problem after the orchiectomy, or wants to suggest me every kind of thing, please answer to this topic, any help or encouraging word will be very appreciated from me, even because I don't have nobody to talk about, and when I'm alone at home there is a tornado inside my brain...
Have a nice day!
Frank


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