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Thread: A sweet but sad TC story

  1. #1
    Join Date
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    A sweet but sad TC story

    Steve - http://www.caringbridge.org/visit/stevep
    February 2011 - DX Stage IIB, 90% Embryonal Carcinoma, 10% Yolk Sac
    Mar-May 2011 - EPx4 per Dr. Bosl at MSKCC, administered locally in DC
    6-Jun 2011 - post chemo CT shows one lymph node at 1.4cm remaining
    22-Jun 2011 - RPLND with Dr. Sheinfeld at MSKCC, all 51 nodes removed negative
    Dec 2012 - 1.5 YEARS ALL CLEAR!

  2. #2
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    I guess we will never know exactly why the chemo failed, they didn't go into much detail about that....
    Jan, 1975: Right I/O, followed by RPLND
    Dec, 2009: Left I/O, followed by 3xBEP

  3. #3
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    Quote Originally Posted by Davepet View Post
    I guess we will never know exactly why the chemo failed, they didn't go into much detail about that....
    I'm curious as to if it was a misdiagnosis; doesn't really add up.

  4. #4
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    Quote Originally Posted by CW406 View Post
    I'm curious as to if it was a misdiagnosis; doesn't really add up.
    Which part wasn't adding up? If I am reading correctly, he fought for a little over a year ...? Other than colon mets, which are not common, I am guessing the media just took liberty over the timeline to refractoriness.
    Tracy
    Cancer pharmacologist, caregiver blog here

    Wife to Kel, dx 12/30/11 Stage IIIc (poor) embyronal, AFP 13700, 10x11 cm retroperitoneal mass, 1 cm^2 lung met
    Left I/O 12/31/10.
    4xBEP 1-4/11, AFP=22, 5*7 RP mass, tx failed
    1.5 x VeIP 5-6/11; tx failed, AFP/b-hCG rising
    Salvage RPLND @Indy 6/29/11, metastatic mixed germ cell tumor with yolk sac, seminoma and teratoma
    Remission! AFP steady since 9/2011; 1.5 years ALL CLEAR

  5. #5
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    Quote Originally Posted by CancerSux View Post
    Which part wasn't adding up? If I am reading correctly, he fought for a little over a year ...? Other than colon mets, which are not common, I am guessing the media just took liberty over the timeline to refractoriness.
    Yeah, the colon mets and the timeline. Maybe I missed dates - they made it sound like he was pronounced instantly incurable with no salvage therapy or clinical trials. Probably just the media having its way.

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