Registered User
...and the nerves start jangling a bit. Not as much as in the past, but still.
Last week Luis had a coughing fit - he had something in this throat - and I had a little panic, since coughing was the symptom that set off the whole cancer journey.
It does get easier for me the farther out from treatment we get but it still is stressful. Do others feel this too?
Take care,
Heidi
Husband - age 51
10/20/10 - Primary mediastinal seminoma - 10 x 9.3 cm; ß-HCG = 33 (<2.6); AFP = 3.5 (<9); LDH = 274 (100-200 )
11/1/10 4X BEP
12/7/10 End Cycle 2 - ß-HCG = 2; AFP = 4.6; LDH = 139 ; 4XBEP changed to 3 as tumor now 2.1 x 3.7 cm
2/15/11 - Post-chemo PET ; residual 8 mm x 2 cm
6/29/11 - Lung nodules stable or smaller, chest mass continues to shrink & markers all normal
Surveillance since 6/11
Registered User
I was trying to look at your dates, will this be your one year all clear? What an exciting milestone!!
We are not post treatment yet but I can see us being the same way. Right now we are like that with any little thing that happens but ours is focused on "sick-like" symptoms or side effects. We hyper focus on everything right now so I can see us just rolling it over to relasp concerns. Keep us posted on results
_____________________
Debrah,
Husband (Cory) age 31..
2/22/12-Consultation for a vasectomy. Turned away and told to get blood work and ultrasound. Cancer suspected.
2/24/12- Dx, B-hcg=9670, LDH=250
2/28/12- L I/O Embryonal, Chorio, teratoma-8.5cm retroperitoneal mass-2.5cm mass in neck lymph node
3/12/12- 4XBEP-Start of Round 1( HCG-8100)
4/2/12 Start of Round 2 (HCG down to 176)
4/23/12 Start of Round 3 (HCG down to 13)
5/14/12 Start of Round 4 (HCG down to 6)
Registered User
Hi heidiOriginally Posted by hbr777
The best of luck with tests. Im sure all will be well. You not alone with the nerves coming up ti check up time. You second guess every cough pain anything that could mean possible relapse. we are over two are half years post treatment and the nerves hit everytime. I think you afraid not to worry incase the worse happens and you not ready for it.
Im sure you will be celebrating when results are in and breathing sigh of relief.
Val
Brother (23 when diagnosed) : Dianosed 14/09/2009, testicle removed, Non sem diagnosed. Tumour markers 36000 before op and dropped to 17000 after operation.. Chemo started end of september 4 x BEP. Tumour markers normal at end of chemo. RPLND 26 Feb 2010 No cancer found.
Latest Appointment May 2013- CT and markers normal
Moderator
Good luck this week, Heidi! We will be thinking of you and waiting for the good news! (is Luis actually going go stay in town this time and stick to his appt?).
Tracy
Cancer pharmacologist, caregiver blog here
Wife to Kel, dx 12/30/11 Stage IIIc (poor) embyronal, AFP 13700, 10x11 cm retroperitoneal mass, 1 cm^2 lung met
Left I/O 12/31/10.
4xBEP 1-4/11, AFP=22, 5*7 RP mass, tx failed
1.5 x VeIP 5-6/11; tx failed, AFP/b-hCG rising
Salvage RPLND @Indy 6/29/11, metastatic mixed germ cell tumor with yolk sac, seminoma and teratoma
Remission! AFP steady since 9/2011; 1.5 years ALL CLEAR
Registered User
I'm sure everything will turn out fine. My son has taught me to remain positive and not to worry until I have something to worry about. Good luck all the same.
Son Diagnosed 6/24/10
Right I/O 6/28/10
(65% Teratoma, 10% EC, 10% Yolk Sac, 10% Seminoma, 5% Choriocarcinoma)
3XBEP 8/10-10/10
RPLND 11/2/11 (cyst in right pelvic area was mature teratoma and lymph nodes were clear)
Registered User
Exactly! I could never put it quite into words but that is exactly right. Plus, I am superstitious - around the time of the appointments when people ask I am always hesitant to gush, "all is terrific, he has never been better, etc..." I am afraid to tempt fate.
Thank you all!
Tracy, yes he is in town literally for this CT scan and bloodwork. Then he leaves for Spain.
Heidi
Husband - age 51
10/20/10 - Primary mediastinal seminoma - 10 x 9.3 cm; ß-HCG = 33 (<2.6); AFP = 3.5 (<9); LDH = 274 (100-200 )
11/1/10 4X BEP
12/7/10 End Cycle 2 - ß-HCG = 2; AFP = 4.6; LDH = 139 ; 4XBEP changed to 3 as tumor now 2.1 x 3.7 cm
2/15/11 - Post-chemo PET ; residual 8 mm x 2 cm
6/29/11 - Lung nodules stable or smaller, chest mass continues to shrink & markers all normal
Surveillance since 6/11
Registered User
HI Heidi,
I am very superstitious too and was trying to ignore the fact that John's CT and markers were on Friday the 13th.
Hope nerves not too bad. Keeping you both in my thoughts and prayers.
Val
Brother (23 when diagnosed) : Dianosed 14/09/2009, testicle removed, Non sem diagnosed. Tumour markers 36000 before op and dropped to 17000 after operation.. Chemo started end of september 4 x BEP. Tumour markers normal at end of chemo. RPLND 26 Feb 2010 No cancer found.
Latest Appointment May 2013- CT and markers normal
Registered User
Thanks! Today is the scan and the bloodwork. Luis leaves on Friday and I wonder if he could convince Madam Oncologist to give him the results? Hard to tell. Otherwise, it is 2 weeks of waiting.
Heidi
Husband - age 51
10/20/10 - Primary mediastinal seminoma - 10 x 9.3 cm; ß-HCG = 33 (<2.6); AFP = 3.5 (<9); LDH = 274 (100-200 )
11/1/10 4X BEP
12/7/10 End Cycle 2 - ß-HCG = 2; AFP = 4.6; LDH = 139 ; 4XBEP changed to 3 as tumor now 2.1 x 3.7 cm
2/15/11 - Post-chemo PET ; residual 8 mm x 2 cm
6/29/11 - Lung nodules stable or smaller, chest mass continues to shrink & markers all normal
Surveillance since 6/11
Moderator
Why so long?!?
Because Luis will be traveling?
Tracy
Cancer pharmacologist, caregiver blog here
Wife to Kel, dx 12/30/11 Stage IIIc (poor) embyronal, AFP 13700, 10x11 cm retroperitoneal mass, 1 cm^2 lung met
Left I/O 12/31/10.
4xBEP 1-4/11, AFP=22, 5*7 RP mass, tx failed
1.5 x VeIP 5-6/11; tx failed, AFP/b-hCG rising
Salvage RPLND @Indy 6/29/11, metastatic mixed germ cell tumor with yolk sac, seminoma and teratoma
Remission! AFP steady since 9/2011; 1.5 years ALL CLEAR
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