My son Joey had his RPLND on April 27th. He had 37 lymphnodes removed, one was necrotic, 5 were teratomas. His back hurt terribly also, but that subsided after 2 weeks. He started to feel better on his 3rd week after surgery, he was getting discouraged but then turned the corner over night. He lost 35 pounds since the surgery but is now feeling fantastic! He actually walked a 3 mile walk for brain tumor research on Saturday, the day after he had his port removed! His first set of tumor markers wer negative and he has his first post RPLND CT scan scheduled for July 19th. Joey looks like a million bucks these days, very healthy, his hair is coming back in and his beard is back in full force. Hang in there you guys, I can testify that it gets better, in a matter of weeks you will be feeling great.
12/29/11 - Diagnosed AFP-181,HCG-30,LDH - 181
12/30/11 - R I/O 40% EC,40% yolk sac, 10% chorio,immature teratoma with islands of immature & atypical cartilage
12/30/11 CT - 6 nodes largest is 2.8 x 2.2 cm
1/13/12 - AFP-24, HCG -7, LDH-389
1/24/12 - BEP x3 round 1 began
3/27/12 - BEPx 3 completed,6 nodes remain largest 2.9 x 2.2
4/26/12 - RPLND at University of Colorado,1dead, 5 teratomas
5/3/12 - All clear - surveillance
7/19/12, 10/1912 - all clear!