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Thread: Tinnitus - ear ringing advice???

  1. #1

    Red face Tinnitus - ear ringing advice???

    Question for former BEP veterans.....I had my final BLEO shot 10 days ago and officially done with my chemo. I'm getting stronger everyday, but the ear ringing (tinnitus) is still with me. Last Sunday it was gone for 2/3 of the day but then came back in the evening. Now it seems to be around all the time, but quieter in the mornings and louder when I am tired in the evenings. Its better than it was During my final chemo week, but It's still driving me nuts. I hope it is a good sign that it did go away on Sunday and seems to go up and down. I'm just so worried its permanent. Any feedback is so appreciated. I also must add that my bloodwork says I'm anemic and also low on white blood counts.

    Thank you for any advice.

    Sincerely,

    Rob

  2. #2
    Join Date
    Apr 2009
    Location
    Yankton, South Dakota Woo-Hoo...
    Age
    28
    Posts
    923
    It will take some time(weeks to months), but likely your ringing will go away completely.

    Diagnosed 4/17/08
    Right orchiectomy 4/18/08
    Pure choriocarcinoma; HCG 715,000; lungs, lymphnodes, liver, and random other places
    4X VIP chemo at IU with Dr. Einhorn 4/25/08-7/4/08
    HCG down to 7.2 10/28/08
    HCG back up to 198 12/29/08
    1 X PVB 1/2/09-1/6/09
    2 X HDC w/ stem cell rescue 2/4/09-3/14/09
    Follow-up with Dr. Einhorn 4/22/09
    HCG 1.2
    3 rounds, 21 days, twice daily, VP-16 50mg 4/24/09-7/10/09

    http://www.caringbridge.org/visit/johncovell

  3. #3
    Join Date
    Mar 2010
    Location
    Northern California
    Posts
    1,399
    Afraid mine are still ringing 2+years later. It doesn't bother much anymore though, I don't even notice most of the time, only if I think to listen for it & when I'm relaxing. The intensity does vary also.

    Dave
    Jan, 1975: Right I/O, followed by RPLND
    Dec, 2009: Left I/O, followed by 3xBEP

  4. #4
    Join Date
    Aug 2010
    Location
    England
    Posts
    295
    My experience is the same as Dave's. I've still got (intermittent) tinnitus 18+ months post chemo. Interestingly, to me, when I had my post chemo hearing test they said my hearing hadn't degraded much, and apart from this background ringing I'd agree with that.
    http://doublezeroami.blogspot.com

    Feb/Mar 2009: RHS - Seminoma (with Radio Therapy)
    Mar 2010: LHS - Embryonal carcinoma (with Surveillance)
    Aug 2010: Relapse, awaiting 3 BEP
    1st Sep 2010 - 29th Oct: three cycles of BEP.
    6th Dec 2010: Scan results: lymph node shrunk from 2.4 -> 1.2cm
    Dec 2010: Back on surveillance.
    13 June 2011: ALL CLEAR!

  5. #5
    Join Date
    Jan 2011
    Location
    Lexington, KY
    Age
    21
    Posts
    48
    Mine persisted on and off for a few months after chemo but is now pretty much completely gone.
    I/O - Jan 3rd 2011 (Diagnosis) 95% embryonal, 5% mixed (trace teratoma)
    CT Scan - April 2011 (Relapse) 1.8cm enlarged node
    RPLND - May 10th 2011, 1 node positive for embryonal carcinoma
    2x BEP - Began June 20th 2011, ended July 25th 2011
    CT Scan - November 17th 2011 (Clear), February (Clear), May (Clear)

  6. #6
    Join Date
    Nov 2010
    Location
    Arlington, VA
    Age
    27
    Posts
    756
    Definitely has become less pronounced but at 16+ months I can still hear it when it is very, very quiet such as at night sometimes. Not bothersome though.

  7. #7
    Join Date
    Nov 2009
    Location
    Springfield, MA
    Age
    40
    Posts
    392
    It fades but I still get it from time to time....no big deal
    19 Nov 09 Dx Metastaic Seminoma
    25 Nov 09 Right I/O....Primary tumor burned out
    Stage IIB
    4 JAN 10 - 2 MAR 10 3XBEP
    7 APR 10 All Clear....Surveillance

  8. #8
    Thanks guys! Fingers crossed on it fading away! Tinnitus and brain fogginess are the two most annoying side effects I pray go away soon. I can deal with being tired and weak. I know that will come back.

  9. #9
    Join Date
    Dec 2011
    Location
    Clarksville, Maryland
    Age
    17
    Posts
    461
    Hey Rob,

    So sorry to hear about the tinnitus. That has to be driving you nuts. I just hope it will decrease as time goes on. Are you feeling a little more "clear headed" each day? I would say for Austin, fatigue and lack of energy are the biggest complaints. He had his final Bleo this afternoon around 2 PM, was in bed by 7 PM and is out cold! I bet you (and Celeste) don't miss those Bleo "shake and bake" nights...do you?!!

    Thinking about you and wishing you well!!
    Diane
    Cook/Maid/Chauffeur/ATM Machine/Personal Asst. to Austin

    12/07/11 I/O AFP: 291 hCG: 151
    12/08/11 CT Scan, Xrays - clear
    12/15/11 Non Seminoma Stage1-B
    EC, Teratoma, Yolk Sac, Intratubular
    Surveillance
    4/21/12 Relapse- Start 3XBEP
    6/25/12 Finished BEP
    7/02/12 Markers and CT Scan normal
    7/11/12 Port Removed- back on Surveillance
    10/3/12 3 month post-chemo check-up - All Clear!
    2/28/13 8 month post-chemo check-up - All Clear!

  10. #10
    Join Date
    Jan 2011
    Location
    Spain
    Age
    25
    Posts
    195
    I still have them, even if it does not go away, you will get used to it, I think it's more like your brain learns to ignore it, if I take a moment and think about it I still listen it, but I usually don't, can sometimes notice when I wake up at night and everything is quiet.
    Jan 11/2011 - left orchiectomy
    Biopsy 100% Embryonal Carcinoma
    CT Shows spread to two lynph nodes largest 5.9cm
    Jan 19/2011 Tumoral Markers lowered to almost normal levels but still high
    Staring BEPx3 on FEB 21/2011
    CT scan 5.9cm mass > 1.9cm Markers Normal
    RPLND June 30/2011 Pathologhy reports: necrotic tissue

  11. #11
    Join Date
    Oct 2009
    Location
    Anchorage, Alaska
    Age
    56
    Posts
    140
    I've suffered from tinnitus for 20+ years though mine from being around fighter jets in the Air Force and from target shooting and hunting minus hearing protection. Tupid on my part. You do get used to it but can be bothersome at times. I got headaches for a while the ringing was so loud. Hopefully yours will subside. Mine will never go away.

    15 Dec 08 Son Vincent diagnosed with TC
    20 Dec 08 RT I/O, 85% EC,15% Teratoma
    3XBEP Feb to April 09
    18 Aug 09 ct scan,massive tumor in lymph nodes
    23 Sept 09 RPLND, 80% Immature Teratoma, 20% Mature Teratoma
    21 Dec 09 scan shows neck, abdomen and groin node enlargements
    21 Dec 09 Amended path report, Metastatic Primitive Neuroectodermal Tumor as well as Metastatic Teratoma
    29 Dec 09 starts 6X VAC/IE
    7 March pet scan shows new disease, chemo stopped
    Hospice 5/11/10
    Passed away 5/15/10

  12. #12
    Join Date
    Oct 2010
    Location
    UK
    Posts
    108
    It been a year and a half since I finished 2 x BEP and still get it on the odd occasion but it's less frequent.
    Malignant teratoma undifferentiated (MTU), teratoma differentiated (TD); and classical seminoma.

    Size of testis: 45 x 25 x 25 mm
    Spermatic cord: 80 mm in length
    Location of tumour: Testicular parenchyma
    Size of tumour: 25 mm
    Surface of tumour: irregular and nodular

    ‎"Yesterday is history. Tomorrow is a mystery. Today is a gift. That’s why we call it the present!
    "

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