From one Mom to another........I was at the same place you are now about six months ago. I knew absolutely nothing about TC one day and the next it was all I could think about. Once the pure shock and disbelief wore off, I spent weeks glued to the internet trying to learn everything I could about this disease.
One thing that REALLY helped me and still does, is a notebook I keep with all the Doctors names and appointments, all the test results as well as information I find, questions I have for the Doctors and the answers I receive. It was empowering to me to learn as much as I could, but I also needed to feel organized, as it can be overwhelming.
You will find a vast wealth of knowledge, advice and support from people on this site. It can be an invaluable asset to you and/or son as you navigate your way through his treatment. It sounds like his TC was caught early and whether you choose surveillance or chemo ( or RPLND), the chances for him to be cured are extremely high. I would listen to whatever Dr. Einhorn suggest if I were you. TC is not very common, so many Oncologists have little experience with it, but he knows TC inside and out as well as all the various options for treatment.
You are right, the waiting is the WORST, because you feel powerless. It sounds like Eli has a great support system though and you will all get through this! Hang in there!!
Cook/Maid/Chauffeur/ATM Machine/Personal Asst. to Austin
12/07/11 I/O AFP: 291 hCG: 151
12/08/11 CT Scan, Xrays - clear
12/15/11 Non Seminoma Stage1-B
EC, Teratoma, Yolk Sac, Intratubular
4/21/12 Relapse- Start 3XBEP
6/25/12 Finished BEP
7/02/12 Markers and CT Scan normal
7/11/12 Port Removed- back on Surveillance
10/3/12 3 month post-chemo check-up - All Clear!
2/28/13 8 month post-chemo check-up - All Clear!