My son just had his first post chemo CT Scan last week, exactly one week after his final Bleo. Like you, all of his markers normalized after the first round and continued through the end of his BEP. Initially, we were just told his CT Scan was clear, but he had one enlarged node when he relapsed 4 months after his I/O. Our Oncologist sent me the comparative CT Scan images so we could see for ourselves what it looked like. His node measured 1.38 x .57 at diagnosis ( which was apparently considered normal). At relapse it grew to 1.85 x 1.05. Last week the node measured 1.36 x.55.
When we were initially given the post chemo news, I was sick at the thought this meant an RPLND. However, our Oncologist and the " Johns Hopkins Tumor Team" are all in agreement Austin is in complete remission and should be back on surveillance. This is due to the normalization of his markers and what they feel is a node within the normal range. What he said was that the node could possibly enlarge due to a pelvic infection or something of that sort and there is also a possibility it could still shrink some, but it will never disappear as it is there to serve a purpose. He reassured us they would certainly be keeping an eye on it though in future scans. He went on to site some of Dr. Einhorns recent studies, which basically conclude that , while there is a chance Austin will need a RPLND, it is not significant enough to warrant surgery at this point. Of course, he knows we will be diligent about bringing Austin in for his scheduled check ups as well.
So.... I am assuming that there must be some leeway with that 1 cm. cut off that I have always read about. This information was all relayed in a very lengthy email ( on the 4th of July , no less) because we couldn't wait to get the results, so I did not question it. However, when we go in for our next appointment in a couple of weeks, I am curious to know why the size (over 1 cm.) was considered normal in the first place.
In any case, our Oncologist sent me a couple of recent studies that back up the surveillance decision in our situation. If you are interested and would like to read them, you can P.M. me and I will attempt to forward them to you.
Wishing you the best,
Cook/Maid/Chauffeur/ATM Machine/Personal Asst. to Austin
12/07/11 I/O AFP: 291 hCG: 151
12/08/11 CT Scan, Xrays - clear
12/15/11 Non Seminoma Stage1-B
EC, Teratoma, Yolk Sac, Intratubular
4/21/12 Relapse- Start 3XBEP
6/25/12 Finished BEP
7/02/12 Markers and CT Scan normal
7/11/12 Port Removed- back on Surveillance
10/3/12 3 month post-chemo check-up - All Clear!
2/28/13 8 month post-chemo check-up - All Clear!