Reply With QuoteCongrats Kurt!
Registered User
Today I have been given another all clear which marks three years since diagnosis and subsequent treatment. My wife and I are just about to celebrate!
My most recent CT scan does show corruption to the top third of my left lung lobe which is causing me to cough up phlegm and also blood from time to time. This is a result of BEP. I am also infertile and have been since finishing BEP three years ago.
However, in the grand scheme of all things considered, these are small prices to pay and I consider myself very lucky indeed.
Thank you and best wishes to everyone on this forum. All members, new and old, are in my thoughts everyday.
Kurt
Diagnosed 5th June 2009
Stage III TC with mets in abdomen and lungs
No tumor markers
Righ I/O 17th June 2009
Married Janet 27th June
July 3rd began 3x BEP
September 3rd CT scan....clear!
October 20th: Chest xray clear, no markers
December 21st second CT scan....clear!
June 29th CT scan...clear.
Administrator
Congrats Kurt!
Steve - http://www.caringbridge.org/visit/stevep
February 2011 - DX Stage IIB, 90% Embryonal Carcinoma, 10% Yolk Sac
Mar-May 2011 - EPx4 per Dr. Bosl at MSKCC, administered locally in DC
6-Jun 2011 - post chemo CT shows one lymph node at 1.4cm remaining
22-Jun 2011 - RPLND with Dr. Sheinfeld at MSKCC, all 51 nodes removed negative
Dec 2012 - 1.5 YEARS ALL CLEAR!
Registered User
Wonderful News!
Registered User
Kurt, congrats. I am 1.5 years out, and I am also coughing from time to time, mostly in the mornings. Did your lungs get worse in time? Did the prior CTs not show any damage? I thought the damage would be done at its max extent when the chemo ends or a little thereafter. Also, how is your physical condition? Did you see any changes compared to last year? I am completely out of breath if I run just a little. Steps are the worst. I am perfectly fine walking in a fast pace though...
Jan '11 - Stage IIIc, Mets in lungs and liver, abdo 7*7, pulmonary embolism
Right I/O AFP 13,000, bHCG 110, Scrotal Hematoma
Vena Cava Filter placed
4*BEP, self-injected Lovenox
AFP 20 end of 4*BEP
May '11 - RPLND @ Indiana U - inferior vena cava dissected, necrosis, AFP<5
Filter Removed
Surveillance (blood & X rays) and all clear for 24 months
April '13 - AFP 26
Registered User
My lungs have been this way since finishing chemo. My first CT scan following BEP highlighted damage to the lobe and my onco has been keeping an eye on it ever since. My concerns with the damaged lung only really come to light when I cough up blood which looks more scary than it actually ever is.
Physically, I have been well. I am much more prone to chest infections these days but I run four times per week and and regularly attend the gym so chemo has not hindered my training. I dont feel out of breathe when running but I do cough an awful lot. Yet, my onco, tells me not to worry about this.
I hope that all continues to be well with you and please message me Tarc if you need to.
Kurt
Diagnosed 5th June 2009
Stage III TC with mets in abdomen and lungs
No tumor markers
Righ I/O 17th June 2009
Married Janet 27th June
July 3rd began 3x BEP
September 3rd CT scan....clear!
October 20th: Chest xray clear, no markers
December 21st second CT scan....clear!
June 29th CT scan...clear.
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