I understand you frustration but don’t panic. One thing we know is how difficult it is to understand what’s going to happen without all pieces of the puzzle. And sometimes it’s tough to pull those pieces together.
Originally Posted by EyesWideShut
As for the nodes, they do vary in size and location is important. The first line of effected nodes is usually the retroperitoneal lymph nodes. They are located in the back of the abdomen and are generally considered ok if they measure 1cm or less.
Some TC travels more readily through the lymph vessels and can show up in the nodes. Other types, such as Embrional Carcinoma spreads more easily through blood vessels and can show up next in the lungs. This doesn’t mean there aren’t exceptions but there are general patterns.
The Pathology report should clearly state if lymphovascular invasion was present. This is important in staging to help identify the likelihood of spread.
As for some of your previous concerns, the effects (if any) of replacement therapy can range from fatigue if dose is too low to acne if dose is too high. “Dialing in” on the correct dose, for me, was easy and I experienced practically no side effects. Also, fertility after TC does vary but more often couples have little trouble. My youngest son is post TC and just turned one in October.
Keep asking questions but do what you can to get copies of the reports. Your doc only knows ‘swollen nodes’ if he has a copy of the report. Sorry the Uro didn’t provide more info. It sounds like a good time for you to get a little pushy. A disconnect during the handoff from Uro to Onc is really frustrating but the Onc is the primary contact now. Collect the reports and bring them with you to see the onc.
Best to you
TC 1 10.18.2005
Left I/O, Stage IA (pT1)
Normal Markers, No VI or LI
Teratoma, Yolk Sac
TC 2 9.12.2006
Right Organ Sparing I/O, Stage IB (pT2)
^Markers, LVI, ITGN @ margin
Embryonal Carcinoma, Yolk Sac, Teratoma
RTx10 18Gy testicle only Complete 11.1.2006
Surveilling Again, HRT