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Thread: new guy here - hi all

  1. #1
    Join Date
    Jan 2008
    Location
    Ontario Canada
    Age
    47
    Posts
    37

    new guy here - hi all

    hi my name is andrew,
    just lost the left a few days ago and have been for a bunch of test and seeing different doctors to determine the next right thing. I have non-seminoma with three kinds of cancer and no tumor markers showing, the CT scan showed a 1.7 cm node, but they say it's not in the flight path of TC. Many test and appointments.

    I'd like to thank everyone who has left infomation for those coming up behind.
    bye for now, Andrew

  2. #2
    Join Date
    Mar 2006
    Location
    New Jersey
    Age
    54
    Posts
    4,048
    Hi Andrew, welcome. We will do all we can to help you through a tough time.
    Can you tell us the make up of the tumor, percentage wise?
    Retired moderator. Husband, left I/O 16Dec2005, stage I seminoma with elevated b-HCG, no LVI, RTx15 (25Gy). All clear ever since.

  3. #3
    Join Date
    Jul 2007
    Location
    Mountain Top, PA - born and raised Long Island, NY
    Age
    41
    Posts
    1,648
    What's going on here? Was there a sale on TC or something. Seems like a lot of new guys all of a sudden. As much as I like to say welcome to new members I wish I never had welcome anyone again.

    I didn't mean to go but welcome Andrew. I lost my left one 20 years ago. So let me assure you, you can live just fine without it. There is a wealth of information here as you may have seen but if you have any questions feel free to post away. Good luck.
    Jason
    If you look for the truth outside yourself, it gets farther and farther away. ~ Tung-Shan
    If you love life, don't waste time, for time is what life is made up of. ~ Bruce Lee
    Please sponsor me for the 2011 LiveSTRONG Challenge Philadelphia.
    My Blog

    Diagonosed 1988. Left I/O - 3 rounds of chemo
    Relasped 1989. RPLND - 3 rounds HDC - Bone Marrow transplant.
    There is Army Strong, There is Live Strong and then there is me. Crazy Strong

  4. #4
    Join Date
    Sep 2005
    Location
    Maryland
    Age
    51
    Posts
    1,717
    Welcome Andrew,

    We'll be happy to answer questions and give you whatever information you need. On important item - ask for copies of ALL your test results, tumor pathology, tumor markers (even though they're negative) and the radiologist report from the CT scan, sometimes you can even get the actual scan pictures on a CD. It's good to have all this information; if you ever want a 2nd opinion, you're all set to go.

    Best wishes.
    Fish
    TC1
    Right I/O 4/22/1988
    RPLND 6/20/1988
    TC2
    Left I/O 9/17/2003
    Surveillance

    Tho' much is taken, much abides; and though we are not now that strength which in old days moved earth and heaven; that which we are, we are; one equal temper of heroic hearts, made weak by time and fate, but strong in will; to strive, to seek, to find, and not to yield.


  5. #5
    Join Date
    Dec 2006
    Location
    Gaithersburg, MD
    Age
    38
    Posts
    5,280
    Hey Andrew,

    Welcome to the Forum. It's good that you have set the wheels in motion and that you are well on your way to being rid of this beast. I have couple of questions for you. The first is whether you have information on the extent of invasion of the primary tumor (i.e. lymphovascular invasion and other such things). You will find that in your pathology report. The second one is about your CT result. When was that CT taken? If it was taken soon after the I/O, then there is a slight chance that node could be due to the surgery itself, in which case that would be normal.

    As others have said, we'll help you along the way. Cheers dude,
    "Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller
    11.22.06 -Dx the day before Thanksgiving
    12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Six years out! Final follow-up: 07/2014.
    Please support my fundraising efforts for the 2013 Austin LIVESTRONG Half Marathon!


  6. #6
    Join Date
    Jan 2007
    Location
    Apex, NC
    Age
    40
    Posts
    2,147
    Welcome...we are here to help
    Co-survivor with husband Boyce, Diagnosed 7-11-06, orchiectomy right testicle on 7-12-06- Stage 3A: Mixed germ cell tumor with inguinal seminomatous and kartotypic carcinoma. One tumor over 10 cm, second tumor 4 cm, Chemo 4xBEP: Bi-lateral RPLND Dec 2006, nerve sparing but left sterile.
    Current DVT
    Current testosterone replacement therapy, Testim.

    "You must abandon the life you planned, to live the life that was meant for you" ~wisdom I have learned from my family on this forum

  7. #7
    Join Date
    Nov 2007
    Location
    California
    Posts
    58
    Hey Andrew-
    Glad you have found us. You now have a wealth of information and experience to draw upon.

    I am sure you find as I have what family you have joined.

    I'll wait to see what additional information you can provide before lending my two cents.

    Hang in there, you are going to be just fine! You are already on the road to being cured!

    Best,
    Ben
    Ben
    11/23/2007 - Right Inguinal Orchiectomy
    11/27/2007 - Pathology Stage IB, Vascular Invasion, 40% Embryonal Carcinoma, 30% Yolk Cell, 30% Immature Teratoma
    11/27/2007 - CT Clear, X-Ray Clear.
    12/20/2007 - Modified template R-RPLND , 39 lymph nodes removed and residual spermatic cord.
    12/27/2007 - Pathology "all clear."
    12/27/2007 - Surveillance.

    12/20/2012 - Five years, all clear!

  8. #8
    Join Date
    Aug 2007
    Location
    South Florida
    Age
    50
    Posts
    546
    Just adding my welcome words to you as a new member. Ditto on everything all the others have written so far. Think of this as your electronic TC home where you can come in, relax and feel right at home. You got questions...we got answers!
    "Faith is being sure of what we hope for and certain of what we do not see". Heb 11:1

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