Reply With QuoteWhat an excellent resource. This is a great find, Chris, and will be very useful to Brits who come here looking for information.
Registered User
UK Follow-Up Guidelines, Updated Feb 2009
edit: 5-Apr-11
Please see new document for 2009, last updated Feb 2009 and due for review September 2011.
The Royal Marsden's guidelines about follow-up schedules
Original post kept in quotes for reference
Royal Marsden follow-up guidelines (clinical examination, tumor markers, chest x-ray, abdominal CT).
This document is dated January 2007. I found it on the Sussex Cancer Network site but the document clearly makes reference to "Guidelines for follow-up from the Royal Marsden (specialist MDT for SCN)".
MDT = multidisciplinary team
SCN = Sussex Cancer Network
I believe that these guidelines are the closest thing that we have to UK national standards for follow-up care, equivalent to those in the American NCCN guidelines.
UK standards for all healthcare are decided at the top level by NICE (National Institute for Clinical Excellence). However, NICE guidelines offer no specifics on follow-up schedules for TC.
RM are leading world centre for TC and many, if not most, UK TC oncologists will follow their guidelines.
http://www.sussexcancer.nhs.uk/profe...lowupJan07.pdf
n.b. All references to "teratoma" are the UK equivalent of US/WHO "non-seminoma". By the way, if you're interested, you can see a direct comparison between British and US (World Health Organisation) classifications here (page 8).
I have verified first-hand that the table is up to date at least for Stage I seminoma. I would assume that the other tables are also accurate.
I have created a backup copy of the pdf that can be viewed or saved online here, should the original go missing (it is from a rather obscure source, a single hospital trust).
Last edited by ukboyuk; 04-05-11 at 11:14 AM.
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What an excellent resource. This is a great find, Chris, and will be very useful to Brits who come here looking for information.
Nick
Embryonal Carcinoma; Seminoma. Marker negative.
August 2001: Right I/O .
August - December 2001: Surveillance .
December 2001: Relapse - Stage III. Mets in lymph nodes and lung.
December 2001 - March 2002: 3xBEP .
Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.
March 2012 - Ten years since finishing chemo.
Survivorship Blog is here
Registered User
The current url for this document appears to be HERE
Jan 12 - Suspicious swelling
Feb 12 - Ultrasound confirms, Urologist says probably tumour AFP 2, HGC 3, LDH 644, CT Scan - clear
28 Feb 12 - Left I/O
Mar 12 - Urology review, Classic Seminoma (Alveolar) 3.9cm max, no LVI or RTI, encapsulated and excised. pT1. AFP 2, HGC <1
Apr / May / Aug 12 / Dec 12 - Oncologist - All clear inc CT / CXR
Mar 13 (notionally 1 Year) - next planned surveillance
Grumpy is just a 20 year old nickname not an instruction Okay
Registered User
It's interesting as on my last check up (10 months) I was told I would not have markers or a scan for a further 7 months. Which is different to the original schedule I was given and outlined in this doc.
I phoned them up about this and told me markers wouldn't be needed in between. Left me a little worried.
Dave Hanson
Found lump 18/02/2011
Ultrasound confirmed mass 23/02/2011
CT Abdomen, pelvis, chest (clear) 24/02/2011
Left I/O 1/03/2011
99% Seminoma <1% Unknown germ cell 10/03/2011
Staging T1 - 1A 10/03/2011
2 month - 27/04/2011 - All clear!
5 month - 16/07/2011 - All clear!
9 month - 22/12/2011 - All clear!
14 month - 22/12/2011 - All clear!
Yesterday was history, tommorrow a mystery, but today is a gift. That's why it's called the "present"
Registered User
Originally Posted by davidhanson90
I could also swear that CTs were advised for 10 years (can't find that original document, SWLCNTESTICULAR2.09.pdf, anymore to verify) but my docs advised me it would only be for 5 (which I'm happy about).
It's worth adding here that Marsden doctors and other European doctors published this more recent document in 2011 "European Association of Urology Guidelines on Testicular Cancer".
Worth reading and provides an interesting comparison between American (NCCN) policy and European policy:
Click here to download/view
100% classical seminoma (I-A, RTI). Surveillance (no adjuvant therapy). 4 years all-clear and hoping for many more.
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