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#1
11-02-09, 07:12 PM
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Friend with advanced tc
I have a friend that was diagnosed with tc but it was very late he caugh it he has spots all over his lungs pelvis a big mass on neck and is starting kemo tommorrow the doctors said he has a 50/50 chance and i am trying to educate myself on this type of cancer and trying to learn from people that have gone threw this any help would be appriciated
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#2
11-02-09, 07:20 PM
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I would highly recommend contacting Dr. Einhorn at Indiana University. He is considered the testicular cancer expert. Your friend should be seen by testicular cancer experts. This is somewhat rare so again a expert would increase his chances of survival. Good luck!
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#3
11-02-09, 07:20 PM
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bigmac:
Even very advanced cases of tc can be cured. Do you have any specicis on what the path report said.
__________________
Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since. "It's never too late to become the person you might have been." - George Elliot
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#4
11-02-09, 07:26 PM
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not yet tommorrow they will have path they are positive it is what he has thats why they schedualed kemo to start tommorrow i will post that when i find out
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#5
11-02-09, 08:13 PM
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i dont know what level it was but its normally a 2 and his is 390,000
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#6
11-02-09, 08:27 PM
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I would bet the chemo he will receive is 4xBEP. The treatment takes 12 weeks, and it is the most aggressive first line treatment available. The specifics on the pathology report are crucial to see what the course of action will entail. Know that we're here to help as much as we can.
__________________
"Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller 11.22.06 -Dx the day before Thanksgiving 12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Almost four years down! Next follow-up: 02/11.
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#7
11-02-09, 09:28 PM
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thank you i will find out i know he is checking in tommorrow at university of iowa hospital but i will find out and let you know like i said thank you
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#8
11-02-09, 10:04 PM
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you are a great friend to want to find out more about whats happening to your friend. You have found a great place to gather knowledge as well as support. Post more when you know and we will help out on both fronts as much as we can.
Kim
__________________
Co-warrior Dx Left orchiectomy Feb2008 100% pure seminoma, April 2008 17 fractions XRT 25.5 gy Sept 2009 4XBEP 12/09 01/10 3/10 All Clear, fractured pelvis 4-29-10 Relaspe.. 5-11-10 Partial Sacrectomy 5-19-10 1X Carbo, Cytoxan 5-23-10 15 fractions of XRT 25.5 6-14-10 Fractured Sacrum 7-10-10 Tandem HDC w/SCT http://jasonejourney.blogspot.com
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#9
11-03-09, 03:54 PM
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BigMac,
You are a great friend indeed. It's so geat that you are taking the time to help and support your friend. There are alot of us caregivers here on the site. Please ask us anything. We're here to support you and we've all walked down this path or are walking through it. ~Mary Ann
__________________
CaregiverSon Josh 22 yr dx 3/5/08 IIIC NonSeminoma affected lung, kidney liver back & tumor/clots in vena cava & celiac artery 3/7/08 L I/O 3/30/08 PostOp surgery 4XEP (VP16 & Cisplatin) 3/12-5/25 LDH > 5000 & AFP 145 (3/5 pre-op) LDH 563 & AFP 4 (5/26 after 4Xchemo) off blood thinners 3/18/09 Surveillance per Dr E 8/4/08 *4/10 ALL CLEAR! Self 1/29/09 dx thyroid cancer metastasized to right lung 2/10 thyroid removed 4/17 rx RA131 5/11/10 cancer still active 7/17/10 2nd RA131 on 7/16/10
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#10
11-03-09, 04:30 PM
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Welcome, bigmac. If you can post the final pathology, tumor markers (AFP, b-HCG) and a CT scan summary we'll be able to help more. Definately need to start chemo ASAP if he has extensive metastases.
Keep in ming that even advanced TC can be cured. We're here to help. You're a good friend...he'll need your support.
__________________
husband, left I/O 16Dec2005, stage I seminoma, no LVI, RTx15 (25Gy). "All clear" as of 04May2010
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#11
11-03-09, 06:56 PM
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You're one very good friend indeed. We're all pulling for him.
__________________
TC1: 1996, right orchiectomy, seminoma stage I 3.5 cm mass, radiation therapy (peri-aortic & pelvic 27.3 Gy) TC2: 2008, left orchiectomy, seminoma stage IA 5 cm mass, left & right prostheses, AndroGel TRT, surveillance at MSKCC
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#12
11-05-09, 12:23 PM
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his afp is 21 his b-hcg # was 390,000 and the mass in his stomache was a metatastic germ cell tumor the size of a softball and also has one on his neck they said it was stage 3c he started rounds of kemo yesterday for five days then off two weeks then five days for five cycles i think the treatment is vip thank you everyone for the support
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