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#201
11-10-09, 11:56 PM
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Larry,
I haven't been here for a while, but was so thankful and happy to read the good news about Steve. I continue to pray for Steve, you and your family. ~Mary Ann
__________________
CaregiverSon Josh 22 yr dx 3/5/08 IIIC NonSeminoma affected lung, kidney liver back & tumor/clots in vena cava & celiac artery 3/7/08 L I/O 3/30/08 PostOp surgery 4XEP (VP16 & Cisplatin) 3/12-5/25 LDH > 5000 & AFP 145 (3/5 pre-op) LDH 563 & AFP 4 (5/26 after 4Xchemo) off blood thinners 3/18/09 Surveillance per Dr E 8/4/08 *4/10 ALL CLEAR! Self 1/29/09 dx thyroid cancer metastasized to right lung 2/10 thyroid removed 4/17 rx RA131 5/11/10 cancer still active 7/17/10 2nd RA131 on 7/16/10 
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#202
11-16-09, 09:08 AM
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Larry,
That is just wonderful news. It is going to be a great thanksgiving around your house this year. Dave
__________________
My son Matt was diagnosed on 5-1-09 W/TC, 5-14-09 R/O, Non-seminoma. (embryanol carcinoma) mulitple bilateral nodular metastases in lungs Stage III, 19 years old, Markers Normal Vascular/lymphatic involvement Scans All Clear 5-20-10
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#203
11-27-09, 06:29 PM
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I hope everyone had a happy Thanksgiving and ate way too much. Steven went to the doctor here in Tyler on Monday (11-23) and had blood drawn for his marker checks. We did not get the results until Wednesday moring. AFP was 1.9 and BHCG was <2 non- detectable. Wow, what a great way to celebrate Thanksgiving. I continue to pray for everyone.
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#204
11-27-09, 06:56 PM
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Awesome news, to go along with an awesome Cowboy win, and even a Roy Williams Touchdown!
__________________
Stage III Yolk-Sac Mets in Abd, liver, and lung 4XBEP AFP in limbo HDCT to begin July '09
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#205
11-27-09, 09:32 PM
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Fantastic news! I think about Steven often and include him in my prayers each and every day. I so happy for Steven and your entire family. We also had a great Thanksgiving here in Indiana. Our Steve and the rest of the family had a great time relaxing and watching Steve's little Kramer.
Cheryl
__________________
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#206
11-27-09, 11:30 PM
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Awesome news!!
__________________
CaregiverSon Josh 22 yr dx 3/5/08 IIIC NonSeminoma affected lung, kidney liver back & tumor/clots in vena cava & celiac artery 3/7/08 L I/O 3/30/08 PostOp surgery 4XEP (VP16 & Cisplatin) 3/12-5/25 LDH > 5000 & AFP 145 (3/5 pre-op) LDH 563 & AFP 4 (5/26 after 4Xchemo) off blood thinners 3/18/09 Surveillance per Dr E 8/4/08 *4/10 ALL CLEAR! Self 1/29/09 dx thyroid cancer metastasized to right lung 2/10 thyroid removed 4/17 rx RA131 5/11/10 cancer still active 7/17/10 2nd RA131 on 7/16/10
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#207
11-28-09, 08:26 AM
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So glad to hear you got good news. Let's keep it coming.
We head to Indiana on Monday for Dr. E.'s opinion and your posts have been helpful. Counting our blessings. P
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#208
12-02-09, 11:39 AM
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Terrific news. Just in time for the Holidays! Awesome
__________________
My son Matt was diagnosed on 5-1-09 W/TC, 5-14-09 R/O, Non-seminoma. (embryanol carcinoma) mulitple bilateral nodular metastases in lungs Stage III, 19 years old, Markers Normal Vascular/lymphatic involvement Scans All Clear 5-20-10
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#209
12-22-09, 03:27 PM
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Hey everyone,
Well my family just received a great early Christmas gift. Steven's BHCG is normal (<2) and his chest X-ray was normal. We were all relieved once again and it will definitely be a Happy Holiday season around our house. There is a lot to be thankful for right now and I am thankful for all of you. I hope everyone has a very Merry Christmas and a Happy New Year. I continue to pray for all of you. Larry
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#210
12-22-09, 03:30 PM
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That is wonderful news, Larry! Congratulations and the very best of holidays to your family!
__________________
Scott, scott@tc-cancer.com right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since Please click here to sponsor my 2010 LIVESTRONG Challenge Austin ride and help fight for people affected by cancer.
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#211
12-22-09, 04:33 PM
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I'm so pleased to hear such great news. Congratulations!
__________________
Nick Embryonal Carcinoma; Seminoma. Right I/O August 2001. Surveillance August - December 2001. Relapse: December 2001. Stage III, mets in lymph nodes and lung. 3xBEP Dec 2001 - March 2002. Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.
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#212
12-22-09, 06:03 PM
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That bit of news certainly brightened my holiday. Congratulations.
__________________
Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since. "It's never too late to become the person you might have been." - George Elliot
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#213
12-22-09, 08:32 PM
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Larry, we're very happy to hear Steven's good news. Hoping for many more to come.
__________________
Diagnosis: 05Sept07 Right I/O: 13Sept07 Seminoma IB Surveillance: All clear: 16Aug2010; Next check 14Feb2011=Valentine's Day  Visit my Philly 2010 LIVESTRONG Challenge Page
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#214
12-23-09, 05:40 PM
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Larry,
That is just beautiful. What a great Christmas present. Happy Holidays Dave
__________________
My son Matt was diagnosed on 5-1-09 W/TC, 5-14-09 R/O, Non-seminoma. (embryanol carcinoma) mulitple bilateral nodular metastases in lungs Stage III, 19 years old, Markers Normal Vascular/lymphatic involvement Scans All Clear 5-20-10
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#215
12-23-09, 09:37 PM
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Fantastic news! Who needs Christmas presents when you get this kind of news??? Tell Steven congratulations from all of us here in Indiana! Merry Christmas!
Cheryl
__________________
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#216
01-18-10, 10:59 AM
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Hey ProudPop, Lorinda and I are with you guysthis week. We are expecting good news! Keep strong tell Steven he is always welcome to call.
John
__________________
 Diagnosed 4/17/08 Right orchiectomy 4/18/08 Pure choriocarcinoma; HCG 715,000; lungs, lymphnodes, liver, and random other places 4X VIP chemo at IU with Dr. Einhorn 4/25/08-7/4/08 HCG down to 7.2 10/28/08 HCG back up to 198 12/29/08 1 X PVB 1/2/09-1/6/09 2 X HDC w/ stem cell rescue 2/4/09-3/14/09 Follow-up with Dr. Einhorn 4/22/09 HCG 1.2 3 rounds, 21 days, twice daily, VP-16 50mg 4/24/09-7/10/09 http://www.caringbridge.org/visit/johncovell
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#217
01-18-10, 05:48 PM
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Thanks John and Lorinda...Yes it is that time again. Steven went in for the blood draw this afternoon. The results usually take one to two days to come back. I am about to purchase our plane tickets for Indy on-line. Steven has his six-month check-up with Dr. Einhorn on Feb. 8 This came around pretty fast. Steven is feeling really good and he is pretty much doing whatever he wants. Right now he is at the lake bowfishing with a friend, He seems to be getting healthier every day and his hair has grown back nicely. He has a couple of more weeks on his last round of chemo pills. So far, he hasn't had many side effects except slightly lower white blood counts. He did get "the crud" like everyone else in the family but he knocked it out quicker than me and with no antibiotics.
Steven really wants to move ahead with his life now but still seems somewhat hesitant to do so. He does talk about wanting to be a police officer and other aspects of the future but it isn't without trepidation. All I can do is try and assure him that things are headed in a positive direction. Has anyone else experienced this with their son or themselves. Any advice? He really seems to get worse when it is time for the tumor marker checks and works himself up pretty good. I can't lie, I get worked up too. I have been keeping up with most everything that is going on with everyone. I know several of you are going through some pretty trying times right now and my thoughts and prayers are always with all of you. I continue to thank all of you for being there for us. Larry
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#218
01-25-10, 09:57 PM
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Larry,
My Steve appears to be able to move on and assume that his cancer is gone for good. I, on the other hand, worry excessively and always feel like I'm waiting on the other shoe to drop. Is it the mother or the nurse in me that causes this.......or a combination of the two? Have you got the latest test results yet? Steve goes to Indy in early February for tests and a follow up with Einhorn. This is the first time they've waited four months to check him so I'm pretty nervous about it. I've resigned myself to being nervous forever. Let us know the results. Steven remains in my prayers each and every day. Cheryl
__________________
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#219
01-26-10, 12:53 AM
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markers normal!!!
hey this is steven, im posting on my dads profile because i cant remember my password...
i got the the results to my markers last week, and they are still normal. thank god. i really appreciate everyones prayers and concerns regarding my situation. since ive been on my dads profile ive read all the posts on here. my dad read them to me while i was in indiana but i had other things going on in my head. ( i guess you all can imagine what was going through my head). while reading through them i got teary eyed thinking about all of you who have gave me blessings and continued to keep track of my progress on this forum.. its people like you who have kept my spirits up during this hard time. i know both my dad and i will continue to pray for all of you guys ( and girls ) on this forum.... with MUCH love.. Steven
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#220
01-26-10, 06:29 AM
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Steven:
Congratulations on the good marker news. As you move on with your life remember we're here for you and yours through good and bad. Take care.
__________________
Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since. "It's never too late to become the person you might have been." - George Elliot
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#221
01-26-10, 01:22 PM
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Great news Steven! It's nice to hear it straight from you! Congratulations to you and your family on the reassuring news. I know how important those numbers are to all of us!
Cheryl
__________________
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#222
01-26-10, 01:30 PM
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Thank you very much for sharing that wonderful update!
__________________
"Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller 11.22.06 -Dx the day before Thanksgiving 12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Almost four years down! Next follow-up: 02/11.
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#223
01-26-10, 04:28 PM
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That's awesome Steven!!!
__________________
Best, Zsolt Friendship is born at that moment when one person says to another; "What! You too? I thought I was the only one." - C.S Lewis “Experience: that most brutal of teachers. But you learn, my God do you learn.” - C.S. Lewis Mass found 11/20/08 Left I/O 11/25/08 Pathology: Seminoma, Stage 1 Surveillance: All Clear since
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#224
01-26-10, 06:29 PM
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Steven,
Awesome News!!! Congratulations. Thanks for sharing such good news. It provides so much HOPE for all. Stay Strong and God Bless Debbie
__________________
01/14/08 Right I/O 8.6 cm Teratoma 75%, Seminoma 25%, yolk sac <5%, adenocarcinoma <5% AFP 342.40 02/14/08 Surveillance 07/05/08 CT abdomen ? 1.7 cm nodule LLL 07/10/08 CT chest 1.7 cm nodule LLL 07/17/08 VATS left wedge resection 1.8 cm, metastatic teratoma with somatic spindle cell sarcoma, yolk sac, embryonal 09/08/08 Dr. Einhorn: Stage III, enlarged abd. lymph nodes. 10/16/08 RPLND Dr. Foster-neg nodes-surveillance
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#225
01-27-10, 02:04 PM
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Continued blessings and good news to you Steven! Now you know that your Dad's nickname on this forum mirrors how he feels about you. Thanks for posting!
__________________
Right I/O 09/11/2007 100% Stage I Seminoma - Surveillance
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#226
01-27-10, 04:38 PM
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Hi Steven,
It is good to hear from you! I'm so glad that your numbers are good! Live Strong!!! When you have been faced with cancer, those two little words - LIVE STRONG really means something different to those who have never had to fight for their life. I have a 22 yr old son. He is moving forward, his plans have changed a little, but he is still moving forward. Not attending college in Australia, but a college 1 hour away. It's great to see him just being 22. Now I'm back to worrying about his grades and drinking, etc. and it's alot better than worrying about cancer. ~Mary Ann
__________________
CaregiverSon Josh 22 yr dx 3/5/08 IIIC NonSeminoma affected lung, kidney liver back & tumor/clots in vena cava & celiac artery 3/7/08 L I/O 3/30/08 PostOp surgery 4XEP (VP16 & Cisplatin) 3/12-5/25 LDH > 5000 & AFP 145 (3/5 pre-op) LDH 563 & AFP 4 (5/26 after 4Xchemo) off blood thinners 3/18/09 Surveillance per Dr E 8/4/08 *4/10 ALL CLEAR! Self 1/29/09 dx thyroid cancer metastasized to right lung 2/10 thyroid removed 4/17 rx RA131 5/11/10 cancer still active 7/17/10 2nd RA131 on 7/16/10
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#227
01-27-10, 08:32 PM
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Steven,
After all you have been through, it is great to hear the good news. I hope you and your family can enjoy each day - you deserve it. Take care, P
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#229
02-08-10, 05:33 PM
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Steven went to Dr. Einhorn's office this morning and had his blood drawn early. His appointment was at 1:00 p.m. By the time we saw Dr. Einhorn the tumor markers were already back. Dr. Einhorn said that Steven's BHCG was zero! All of the other checks were normal too. He cut Steven's checkups back to once every two months and we see him again in September. Dr. Einhorn was very enthusiastic about Steven's prognosis and told him to get back to normal activity. We will be flying back home tomorrow if we don't get snowed in. Thanks again to everyone for their good thoughts and prayers. Continued prayers to all.
Larry
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#230
02-08-10, 06:54 PM
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Fantastic news Larry. I'll bet even a snow storm can't dampen your happiness.
__________________
Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since. "It's never too late to become the person you might have been." - George Elliot
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#231
02-08-10, 07:05 PM
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Larry & Steven,
What fantastic news! I'm so happy for your entire family. I know all too well just how important those markers are and how we hold our breath until the results are in. We live about 2 hours south of Indy and we're expecting snow tonight and tomorrow. Hope you get out without a delay. Have a safe trip back home and congratulations! Cheryl
__________________
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#232
02-08-10, 08:19 PM
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Great news, Larry!
Hope you make it out before the storm and get back home safe and sound.Ally
__________________
Husband DJ: Dx 7/16/2008 Right I/O 7/25/2008 90% Embryonal, <5% Yolk sac,<5% Seminoma, <2% Mature teratoma Began 3xBEP 9/8/2008, changed to 2xBEP + 1xVIP because of changes in oxygen diffusion. Completed 10/24/2008 All Clear Ever Since
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#233
02-09-10, 07:21 AM
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Thanks everyone. The new snow is beautiful and your right, Dadmo, I'm still very happy right now. Just one question...That plastic thing with a handle in the glovebox of my rental car, is that for scraping snow?
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#234
02-09-10, 07:30 AM
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Quote:
John
__________________
Diagnosed 4/17/08 Right orchiectomy 4/18/08 Pure choriocarcinoma; HCG 715,000; lungs, lymphnodes, liver, and random other places 4X VIP chemo at IU with Dr. Einhorn 4/25/08-7/4/08 HCG down to 7.2 10/28/08 HCG back up to 198 12/29/08 1 X PVB 1/2/09-1/6/09 2 X HDC w/ stem cell rescue 2/4/09-3/14/09 Follow-up with Dr. Einhorn 4/22/09 HCG 1.2 3 rounds, 21 days, twice daily, VP-16 50mg 4/24/09-7/10/09 http://www.caringbridge.org/visit/johncovell
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#235
02-10-10, 11:10 AM
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So glad to hear the good news.
Take care, P
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#236
02-10-10, 11:32 AM
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"0" that is as good as it gets, period. Congrats Steven you've earned it! The cure is all but in the bag.
__________________
Stage III Yolk-Sac Mets in Abd, liver, and lung 4XBEP AFP in limbo HDCT to begin July '09
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#237
04-01-10, 03:54 PM
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Hey Forum Family,
Sorry I haven't posted in a while. Steven just visited with the local oncologist. His markers are still undetectable, so I guess that is as good as it can be. We are inching ever closer to that one year all clear. We just need about five more months. What great news right before the Easter weekend. I still pray for everyone on the forum. God Bless all of you! Larry
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#239
04-01-10, 08:05 PM
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So lucky...congrats on the all clear.
__________________
-Husband-Primary Mediastinal GCT Choriocarcinoma , Stage 3-Diagnosed on Mar10 BHCG 35596 -4 BEP Mar 15-Jun 10, BHCG down to 3 -Jul 27, relapse BHCG 23 -Brain Radiation 8/18-9/18 -BHCG-4 -12/21 BHCG12800 12/22-5/7 TIP 2/24-Stereotactic brain radiiation 6/25-BHCG 46400 7/4-Started hospice 7/8-Passed Away R.I.P.-06/19/1974-07/08/2010
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#240
04-01-10, 09:36 PM
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Larry,
What fantastic news about Steven. Please pass on my congratulations to him. He remains in my prayers every single night. Now you can breathe for awhile! Cheryl
__________________
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#242
04-05-10, 06:31 PM
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Great news Larry!
__________________
My son Matt was diagnosed on 5-1-09 W/TC, 5-14-09 R/O, Non-seminoma. (embryanol carcinoma) mulitple bilateral nodular metastases in lungs Stage III, 19 years old, Markers Normal Vascular/lymphatic involvement Scans All Clear 5-20-10
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#243
04-05-10, 10:05 PM
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Larry,
I'm so happy to read this news. A blessed Easter indeed! Mary Ann
__________________
CaregiverSon Josh 22 yr dx 3/5/08 IIIC NonSeminoma affected lung, kidney liver back & tumor/clots in vena cava & celiac artery 3/7/08 L I/O 3/30/08 PostOp surgery 4XEP (VP16 & Cisplatin) 3/12-5/25 LDH > 5000 & AFP 145 (3/5 pre-op) LDH 563 & AFP 4 (5/26 after 4Xchemo) off blood thinners 3/18/09 Surveillance per Dr E 8/4/08 *4/10 ALL CLEAR! Self 1/29/09 dx thyroid cancer metastasized to right lung 2/10 thyroid removed 4/17 rx RA131 5/11/10 cancer still active 7/17/10 2nd RA131 on 7/16/10
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#245
04-16-10, 05:41 AM
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Happy birthday!!!
__________________
-Husband-Primary Mediastinal GCT Choriocarcinoma , Stage 3-Diagnosed on Mar10 BHCG 35596 -4 BEP Mar 15-Jun 10, BHCG down to 3 -Jul 27, relapse BHCG 23 -Brain Radiation 8/18-9/18 -BHCG-4 -12/21 BHCG12800 12/22-5/7 TIP 2/24-Stereotactic brain radiiation 6/25-BHCG 46400 7/4-Started hospice 7/8-Passed Away R.I.P.-06/19/1974-07/08/2010
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#246
04-16-10, 06:03 AM
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A doubly happy birthday to Steven and Matt!
__________________
Scott, scott@tc-cancer.com right inguinal orchiectomy 6/5/2003 > nonseminoma, stage I > surveillance > L-RPLND 6/24/2005 for recurrence, suspected teratoma but found seminoma, stage II > chylous ascites until 9/2005 > surveillance and "all clear" since Please click here to sponsor my 2010 LIVESTRONG Challenge Austin ride and help fight for people affected by cancer.
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#247
04-16-10, 06:39 PM
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So happy for Steven's all clears and Happy Birthday to the Brothers!
Momma P
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#248
04-16-10, 11:48 PM
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Larry,
Please tell Steven and Matt that we wish them both a very happy birthday! So glad that all is going well. Congratulations! Cheryl
__________________
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#249
05-11-10, 01:13 PM
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Hey everybody, a quick question. Steven has been feeling great and doing well. Today, he said he was driving down the road and his left arm started to tingle (numbness) and he got a little lightheaded. He got scared and drove back home. His light headedness has gone away and the tingling has subsided for the most part. We do have a call in to the doctor. I checked Steven's blood pressure and it was OK (122/67 pulse 48).
Anyone experience anything like this after chemo. I'm gonna take him to the ER just to make sure. Thanks, Larry
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#250
05-11-10, 01:58 PM
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All 3 BEP drugs can cause numbness & tingling, according to the handouts we were given. I'd totally get him checked out though--hope he's OK.
__________________
~Carole Son Nick, age 25 2/26/2010 Left I/O 100% Seminoma, Stage IIC 6cm Tumor in abdomen w/ lymph involvement Started 3X BEP 3/29/2010 Tumor reduced to 2.25 cm Now injecting blood thinner for lung clot *But doing great!*
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