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#301
05-20-10, 08:04 AM
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I am stoked that Steven has the fire under his belly and is ready to have that mass obliterated. The call from Einhorn must have been great to receive, and it certainly provides a boost of confidence. I'll be thinking about you guys today.
__________________
"Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller 11.22.06 -Dx the day before Thanksgiving 12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Almost four years down! Next follow-up: 02/11. 
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#302
05-20-10, 09:07 AM
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Not too many docs would do what Dr. E. just did. The man tells it like it is. Steven will beat this dark passenger back to hell!!
__________________
Best, Zsolt Friendship is born at that moment when one person says to another; "What! You too? I thought I was the only one." - C.S Lewis “Experience: that most brutal of teachers. But you learn, my God do you learn.” - C.S. Lewis Mass found 11/20/08 Left I/O 11/25/08 Pathology: Seminoma, Stage 1 Surveillance: All Clear since
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#303
05-20-10, 10:08 AM
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What a heartbreak it will be to the testicular cancer world when Dr Einhorn passes away or actually retires. That man holds and respects the hopes and dreams of boys/men all over the world with testicular cancer. Not to mention their wives, mothers, and fathers. He's done more for our niche group of people than any other being. Yet, he continues to be only hours away from anyone by e-mail. Bearing the responsibility of all that like he does is amazing. I have so much respect for Dr. Einhorn.
__________________
http://seanmartella.blogspot.com/ <---full story here Diag. 12/07, stage 3 non/sem mix lg tumors in abd. lymph nodes, sm mets in R lung. 01/08-R Orch 02/08-4xBEP, 08/08-RPLND remove tertoma. 08/08-Rlpsd, sm tumors in liver, 09/08-2xHDC/stem cell 12/08-complete remission, 06/09-rlpsd tumor in abdmnl node, 07/09-2nd RPLND, 08/09-all clear, rmssn, 10/09-rlpse, mult mets in liver, lungs, and abdmn. 10/09 -Tax/Gemzar begun, 02/10-Tax/Gem failed 03/2010 - ARQ-197 in NY. 05/10 - Oxalitplatin begun Last edited by SeanTella; 05-20-10 at 03:00 PM.
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#304
05-20-10, 12:40 PM
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Larry, I think you will be a "PROUDPOP" for many years to come! Dr. Einhorn is truly an angel.
"For it is written: 'He will command his angels concerning you to guard you carefully" Luke 4:10
__________________
Right I/O 09/11/2007 100% Stage I Seminoma - Surveillance
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#305
05-20-10, 01:18 PM
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It must be such a relief to hear such a positive assessment from the man who really knows. The cyberknife should see it off for good.
__________________
Nick Embryonal Carcinoma; Seminoma. Right I/O August 2001. Surveillance August - December 2001. Relapse: December 2001. Stage III, mets in lymph nodes and lung. 3xBEP Dec 2001 - March 2002. Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.
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#306
05-20-10, 01:47 PM
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Quote:
__________________
 Diagnosed 4/17/08 Right orchiectomy 4/18/08 Pure choriocarcinoma; HCG 715,000; lungs, lymphnodes, liver, and random other places 4X VIP chemo at IU with Dr. Einhorn 4/25/08-7/4/08 HCG down to 7.2 10/28/08 HCG back up to 198 12/29/08 1 X PVB 1/2/09-1/6/09 2 X HDC w/ stem cell rescue 2/4/09-3/14/09 Follow-up with Dr. Einhorn 4/22/09 HCG 1.2 3 rounds, 21 days, twice daily, VP-16 50mg 4/24/09-7/10/09 http://www.caringbridge.org/visit/johncovell
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#307
05-20-10, 01:54 PM
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Wow, that's just remarkable. I know I would be elated after getting a call like that. I can't think of any doctors who, as sadly in demand as they are, even approach the level of personal contact and warmth of Dr. Einhorn. I can only hope every cancer has such an icon as he is in the world of TC. And I often think of what Sean put in words: I hope through working with him, there are many doctors specializing in TC out there who can pick up the slack the day he retires from the field.
__________________
TC1: 1996, right orchiectomy, seminoma stage I 3.5 cm mass, radiation therapy (peri-aortic & pelvic 27.3 Gy) TC2: 2008, left orchiectomy, seminoma stage IA 5 cm mass, left & right prostheses, AndroGel TRT, surveillance at MSKCC
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#308
05-20-10, 04:56 PM
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love Dr. Einhorn
We feel the same way. We owe him my husbands life. Everytime we see him he always asks how our daughter is (she was born while he was going through treatment). Also when my husband was hospitalized recently he came to see him even though he was not on call or even there that day. God created a very special person and doctor in Dr. Einhorn. I agree, I hope there is someone there to pick up the slack when he dies. The TC world will be at a lost without him. He is so humble too. He is so amazing yet he acts like he has no idea how intelligent and wonderful he is. We trust him with my husbands life.
__________________
Erin (caregiver) Hubby Stage IIIC Diagnosed 10/27/05, HCG 512,000 AFP 636 LDH 1012, I&O 10/28/05 1 x EP, 2 x VIP, then 2 x BEP (10/31/05-1/06) Sterotactic Radiation to two brain tumors 12/05 Sterotactic Radiation to new brain tumor 4/4/06 Whole brain radiation 4/15 -5/18/06 Tandem High dose chemo and stem cell 6/5/06-7/31/06 - markers normalized RPLND with 9cm x 24 cm abd mass removal 9/14/06 - Only teratoma and necrotic tissue removed Currently on surveillance
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#309
05-20-10, 07:03 PM
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Again, thanks for all of the thoughts and prayers. We went to the cancer center today and got a tour of the Cyberknife before they took Steven in for his surgery. That is one amazing piece of medical equipment. Anyway, the procedure went off without a hitch and Steven said he did not feel a thing. I could not see any mark or redness anywhere on his head afterward. We are scheduled for the second round tomorrow at 12:45 pm.
You know, Sean made me think alot about the fact that one day Dr. Einhorn may retire. What a loss to the cancer community that would be. Let's just hope that Dr. Einhorn will practice till his 100th birthday and then, when he retires, he could consult doctors that haven't even been born yet.
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#310
05-21-10, 01:18 PM
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How wonderful it is that a man as busy as Einhorn takes the time to call and reassure Steven. I also got teary just reading about it. I can only imagine what it meant to Steven and the rest of your family. Prayers continue on this end and anxiously awaiting your updates. Please tell Steven that all of us here in Indiana are thinking of him.
Cheryl
__________________
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#311
05-21-10, 02:42 PM
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Larry,
I'm so elated to read this post. YAY!! One day down! You all still continue to be in my prayers!! Mary Ann
__________________
CaregiverSon Josh 22 yr dx 3/5/08 IIIC NonSeminoma affected lung, kidney liver back & tumor/clots in vena cava & celiac artery 3/7/08 L I/O 3/30/08 PostOp surgery 4XEP (VP16 & Cisplatin) 3/12-5/25 LDH > 5000 & AFP 145 (3/5 pre-op) LDH 563 & AFP 4 (5/26 after 4Xchemo) off blood thinners 3/18/09 Surveillance per Dr E 8/4/08 *4/10 ALL CLEAR! Self 1/29/09 dx thyroid cancer metastasized to right lung 2/10 thyroid removed 4/17 rx RA131 5/11/10 cancer still active 7/17/10 2nd RA131 on 7/16/10
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#312
05-21-10, 02:44 PM
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Hey, glad the procedure went smooth! The second one will as well, and then he can get back to regular life, and the police academy! Dr. Einhorn is incredible, and has one heck of a presence. His timely e-mails are mind boggling. He's a stud.
__________________
Stage III Yolk-Sac Mets in Abd, liver, and lung 4XBEP AFP in limbo HDCT to begin July '09
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#313
05-21-10, 03:09 PM
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I second that!
I tried once to email my husbands oncologist with a question that I didn't want to bother him over the phone about and he gave me this long speach about it being against the rules to email patients and their families so I tried to call him and his assistant would not put me through. I emailed Dr. Einhorn on so many occations as I did not trust my husbands oncologist, but my husband did, so I would email Dr. Einhorn to check that the treatment was correct and he would email me back no questions asked that same day. If he couldn't, his lovely assistant would. Amazing, amazing people.
__________________
Dawn Ann (Ryder) Caregiver Husband diagnosed Oct 2008 Pure choriocarcinoma., HCG 425000, 4xBEP, Left orchiectomy, marker did not normalize, 1xICE, Found 3 Tumours in Brain and more in Lungs, radiation on brain and back, 2xTIP, 2 rounds HDC with Stemcell transplant, markers still did not normalize, lost the love of my life, my best friend and soul mate on September 23, 2009. 
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#314
07-01-10, 09:31 PM
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Has anyone heard any news about Steven? Just wondering how his treatment is going.
__________________
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#315
07-04-10, 08:42 PM
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Hey Cheryl, thanks for asking about Steven. I am sorry I have been remiss about posting but I was saddened by all the bad news going on. Steven's good friend, Robert, that he met in Indiana passed away and, of course, Sean. It's been a little overwhelming to Steven as well.
Steven finished his last round of 2XEP on June 25th. During those rounds he was admitted once to the hospital for four days due to fever. So far he has held up pretty well since completion except for mouth sores and neuropathy to his feet. His last tumor marker check came back normal and that was only two weeks ago. We go to the doctor on July 7th for a brain MRI. This will be the first time we'll see how effective the Cyberknife surgery was on the tumor. Obviously, Steven is worried about the existing tumor and if there is any new activity. Steven remains in good spirits and seems to be improving both, physically and mentally, each passing day. I feel very hopeful about the absence of visible cancer in his body coupled with the normal tumor markers. I still can't help but believe that this may have been just a rogue cancer cell in his brain that the HDC kept at bay temporarily. I will let everyone know how the MRI turns out. Please continue sending good thoughts and prayers to Steven. Happy Independance Day. Larry
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#316
07-04-10, 09:52 PM
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Larry,
I completely understand that things get overwhelming and you need a break from bad news. I'm thrilled to hear that Steven's tumor markers were normal. Extra prayers will be coming Steven's way for a good report on the MRI. Hope you also had a good July 4th. Today is Steve's 29th birthday so we had a little family get together tonight. Please keep us posted and we will keep you all in our prayers. Cheryl
__________________
Last edited by Another Mom; 07-04-10 at 10:16 PM.
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#318
07-05-10, 07:51 AM
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Many thanks for the update, Larry. I am hopeful that the brain MRI later this week gives good results. Please give my best to Steven.
__________________
"Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller 11.22.06 -Dx the day before Thanksgiving 12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Almost four years down! Next follow-up: 02/11.
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#319
07-05-10, 06:24 PM
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Normal markers is a wonderful thing. Thanks for the update and good luck with the MRI.
__________________
Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since. "It's never too late to become the person you might have been." - George Elliot
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#320
07-06-10, 08:14 AM
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Good to hear from you, Larry, thanks. Let usknow how the MRI goes. The normal markers are a great sign.
__________________
husband, left I/O 16Dec2005, stage I seminoma, no LVI, RTx15 (25Gy). "All clear" as of 04May2010
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#321
07-07-10, 06:29 PM
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Steven's visit with the Neurologist today was good news. He said that the tumor has disolved very well and there is only a small "sliver" left. This could be either scar tissue or remnants of the still deteriorating tumor. Also, there was no sign of any other tumors in the brain. All things being equal, this was about the best news we could have gotten at this point. Will not see the Neuro again until October 7. Steven is recovering from chemo and mouth sores are almost gone. No fever during second round. He has only missed two days of the police academy and one was the day he was rediagnosed. He's a strong and brave young man. Thanks for the continued thoughts and prayers.
LArry
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#322
07-07-10, 07:03 PM
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Excellent news, Larry. This is a big relief.
Ally
__________________
Husband DJ: Dx 7/16/2008 Right I/O 7/25/2008 90% Embryonal, <5% Yolk sac,<5% Seminoma, <2% Mature teratoma Began 3xBEP 9/8/2008, changed to 2xBEP + 1xVIP because of changes in oxygen diffusion. Completed 10/24/2008 All Clear Ever Since
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#323
07-07-10, 07:56 PM
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This is such great news. I am so so happy for Steven and for you. You guys are tough as nails! October 7th is my birthday, so I will do my best to wish it as great a day for me as it will be for you guys.
God bless, Joe
__________________
diagnosed august 09 stage 1S august 09 left I/O october started 4x bep Re dx. stage II I believe, cancer only in lymphnodes Dec. 17th finished chemo Jan 29th all clear April 15th all clear July 15th all clear "we are all all we've got" -cap n jazz
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#324
07-07-10, 08:51 PM
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Larry,
I'm sure you and your family are so relieved! I'm amazed that he's been able to attend the police academy during his treatment. Please pass on my best wishes to Steven and tell him he is thought of often. Cheryl
__________________
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#326
07-08-10, 11:43 AM
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Very glad to read this, Larry. Please give my best to Steven.
__________________
"Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller 11.22.06 -Dx the day before Thanksgiving 12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Almost four years down! Next follow-up: 02/11.
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#327
07-08-10, 05:12 PM
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Larry,
I'm so glad to read this news! Josh used Tea Tree Oil mouthwash to curtail/eliminate mouth sores. It's a natural sanitizer. Rinsed after every brushing, after every meal. What a stron guy Steven is, very impressive!! You'll both be in my thoughts and prayers. Mary Ann
__________________
CaregiverSon Josh 22 yr dx 3/5/08 IIIC NonSeminoma affected lung, kidney liver back & tumor/clots in vena cava & celiac artery 3/7/08 L I/O 3/30/08 PostOp surgery 4XEP (VP16 & Cisplatin) 3/12-5/25 LDH > 5000 & AFP 145 (3/5 pre-op) LDH 563 & AFP 4 (5/26 after 4Xchemo) off blood thinners 3/18/09 Surveillance per Dr E 8/4/08 *4/10 ALL CLEAR! Self 1/29/09 dx thyroid cancer metastasized to right lung 2/10 thyroid removed 4/17 rx RA131 5/11/10 cancer still active 7/17/10 2nd RA131 on 7/16/10
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#328
07-09-10, 10:40 AM
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Wonderful News Larry!
__________________
Dawn Ann (Ryder) Caregiver Husband diagnosed Oct 2008 Pure choriocarcinoma., HCG 425000, 4xBEP, Left orchiectomy, marker did not normalize, 1xICE, Found 3 Tumours in Brain and more in Lungs, radiation on brain and back, 2xTIP, 2 rounds HDC with Stemcell transplant, markers still did not normalize, lost the love of my life, my best friend and soul mate on September 23, 2009.
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#329
07-09-10, 12:28 PM
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Excellent!! Thanks for the update, Larry.
__________________
Best, Zsolt Friendship is born at that moment when one person says to another; "What! You too? I thought I was the only one." - C.S Lewis “Experience: that most brutal of teachers. But you learn, my God do you learn.” - C.S. Lewis Mass found 11/20/08 Left I/O 11/25/08 Pathology: Seminoma, Stage 1 Surveillance: All Clear since
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#330
07-09-10, 06:52 PM
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So glad to hear the good news and that Steven is recovering well.
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#331
08-23-10, 10:16 PM
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Larry,
Just wanted to touch base and tell you that Steven remains in my thoughts and prayers. Hope Steven and the rest of your family are doing well. Take care........Cheryl
__________________
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