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#51
03-16-10, 11:32 AM
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Thank you Karen I will try it.
__________________
-Husband-Primary Mediastinal GCT Choriocarcinoma , Stage 3-Diagnosed on Mar10 BHCG 35596 -4 BEP Mar 15-Jun 10, BHCG down to 3 -Jul 27, relapse BHCG 23 -Brain Radiation 8/18-9/18 -BHCG-4 -12/21 BHCG12800 12/22-5/7 TIP 2/24-Stereotactic brain radiiation 6/25-BHCG 46400 7/4-Started hospice 7/8-Passed Away R.I.P.-06/19/1974-07/08/2010 
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#52
03-16-10, 02:34 PM
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If you think he's dehydrating call the doc. Banans and rice may help "bind" thing up but if he still has the runs he may need someting stronger than Immodium.
__________________
husband, left I/O 16Dec2005, stage I seminoma, no LVI, RTx15 (25Gy). "All clear" as of 04May2010
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#53
03-16-10, 02:55 PM
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I'll wheat bread to Karen's list. The Pedialyte is great.
__________________
CaregiverSon Josh 22 yr dx 3/5/08 IIIC NonSeminoma affected lung, kidney liver back & tumor/clots in vena cava & celiac artery 3/7/08 L I/O 3/30/08 PostOp surgery 4XEP (VP16 & Cisplatin) 3/12-5/25 LDH > 5000 & AFP 145 (3/5 pre-op) LDH 563 & AFP 4 (5/26 after 4Xchemo) off blood thinners 3/18/09 Surveillance per Dr E 8/4/08 *4/10 ALL CLEAR! Self 1/29/09 dx thyroid cancer metastasized to right lung 2/10 thyroid removed 4/17 rx RA131 5/11/10 cancer still active 7/17/10 2nd RA131 on 7/16/10
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#54
03-16-10, 02:56 PM
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recommend scented candles and some spackle.
__________________
Stage III Non-Seminoma- 7/11/06 Right I/O 7/12/06 Completed 4x BEP 11/06 Bi-Lateral RPLND (Dr. Shenifeld)- 11/27/06 Surveillance since then When you think about it, what other choice is there but to hope? We have two options, medically and emotionally: give up, or Fight Like Hell. Lance Armstrong.
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#55
03-16-10, 03:56 PM
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Just to make sure, he doesn't have any fevers? Obviously all the meds are causing a stress to his GI system but, always in the back of my mind when somoene has diarrhea is infection (especially when they are immunocompromised).
Pedialyte is the best thing for replacement because it is more isoosmotic - will be absorbed into the bowel lumen resulting in hydration. Sodas and sugary drinks can actually worsen diarrhea because they are hyperosmotic (will pull fluid from the bowel wall and excrete it ... making the dehydration worse). Hope he is through the worst!
__________________
MY husband: 1/15/2010 - diagnosed with testicular mass (2.5x2cm): 2cmx2cm para-aortic lymph node on CT scan (no other abnormalities) 1/19/10 - R I/O 1/21/10 - path results back Embryonal carcinoma 95%, teratoma 2%, seminoma 2%, and yolk sac tumor 1% 2/1/10-end of March - 3xBEP 4/7 - CT chest/abd/pelvis - lymph node normal, no new masses: on surveillance
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#56
03-16-10, 05:39 PM
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Actually he did get a fever. It was around 100.8. I gave him tylenol and his is better now. He was getting fever in the hospital too, and they had tested his stool and it came back negative. I have been giving him gatorade is that okay? Also should I call the doctor?
__________________
-Husband-Primary Mediastinal GCT Choriocarcinoma , Stage 3-Diagnosed on Mar10 BHCG 35596 -4 BEP Mar 15-Jun 10, BHCG down to 3 -Jul 27, relapse BHCG 23 -Brain Radiation 8/18-9/18 -BHCG-4 -12/21 BHCG12800 12/22-5/7 TIP 2/24-Stereotactic brain radiiation 6/25-BHCG 46400 7/4-Started hospice 7/8-Passed Away R.I.P.-06/19/1974-07/08/2010
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#57
03-16-10, 05:45 PM
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Hi Sweetie....
I am sure that Gatorade is ok. Les drank lots while he was sick. I would just give him what ever he wants and can keep down. I would think that any fever isnt good and might need to let the doctor know. Sweet Friend.. when it is time.. Hospice would come to you to check him. It doesnt have to mean you have given up hope and he can still get treatment. It will just keep him from having to go to the doctor. I am here for you as is everyone else. There are some wonderful people from this site who live in NJ. You can lean on Karen, Alex, Bill, and Nancy for a few. I wish I was closer and I would come and take care of YOU! We are coming to NJ in October for Phil's dad's birthday. We also hope to make the trip this summer. Phil's dad lives in Lakewood. Is that close to you? Karen is in Warren.. Please lean on her.. she is a sweetie.. Love, Pam
__________________
Son Les diagnosed 5/7/07-Right I/0 5/9/07-Stage 3C Non-seminoma Mixed Cell Germ Tumor-Tumors in liver, lungs, lymph nodes, brain-4XBED Finished 7/31/07 HCG 9 tumors smaller, brain lesion gone-9/30/07 HCG 999-TIPx4 started 10/2/07, IU 11/29 Told he had Choriocarcinoma Syndrome HDC and Stem Cell Transplant to begin 1/3/08 Finished Transplant 3/1/08 HDC and Stem Cell Transplant Failure 3/20. 4/17 RPLND & Liver resection, Molecular profiling of tumor, 6/2 Hospice Services- Passed Away 12/12/08
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#58
03-16-10, 06:33 PM
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Sussa,
Pedialyte may be better than Gatorade, as Loveumms stated, keep away from sugary stuff. I think Gatorade can be up there in sugar, so G2 may be better. We're just giving general tips on diarrhea, If you are wondering for even a minute about calling the doctor...call the doctor.
__________________
husband, left I/O 16Dec2005, stage I seminoma, no LVI, RTx15 (25Gy). "All clear" as of 04May2010
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#60
03-17-10, 09:25 AM
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Thank you guys, Andy feels better this morning. No fever yet.
__________________
-Husband-Primary Mediastinal GCT Choriocarcinoma , Stage 3-Diagnosed on Mar10 BHCG 35596 -4 BEP Mar 15-Jun 10, BHCG down to 3 -Jul 27, relapse BHCG 23 -Brain Radiation 8/18-9/18 -BHCG-4 -12/21 BHCG12800 12/22-5/7 TIP 2/24-Stereotactic brain radiiation 6/25-BHCG 46400 7/4-Started hospice 7/8-Passed Away R.I.P.-06/19/1974-07/08/2010
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#61
03-17-10, 09:29 AM
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That's a bit of welcome news.
__________________
Son Jason diagnosed 4/30/04, stage III. Right I/O 4/30/04. Graduated College 5/13/04. 4XEP 6/7/04 - 8/13/04. Full open RPLND 10/13/04. All Clear since. "It's never too late to become the person you might have been." - George Elliot
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#62
03-17-10, 10:01 AM
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Yay! That's good to hear!
__________________
Husband diagnosed April 09 with Mediastinal Germ Cell Cancer Mets-1 in liver, 2 in brain, multiple nodules in lungs bHCG 60,000+ 4xBEP from April-July 09 (bHCG 17.5) Rising bHCG-1 new lung lesion found 2xVeIP from July-Aug 09 (bHCG dropped from 200+ to 60) Medial Thoracotomy (Path report indicates necrosis) Rising bHGC-more brain mets-Whole Brain Irradiation; Left lung masses growing 4xVIP (bHCG dropped from 2400 to 5.9-normal is <7) HDC from Jan-Mar 10 Rising bHCG-Mar 10
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#63
03-19-10, 07:30 PM
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Exhaustion
Andy wanted me to ask the forum family if it is normal to feel so drained out after just the second cycle of TIP.
He keeps getting a fever of 100.8. Diarreah is much better. I told his doctor and she said he needs to come in for blood work but Andy is just too tired to go. Pam, Hospice would mean he can continue chemo? If he can still get chemo I think he would consider it. Do I talk to the doctor to find out more? Also how does the insurance work on that? Pls. let me know and anyone else who has had hospice, I would really like to hear from you. Thank you.
__________________
-Husband-Primary Mediastinal GCT Choriocarcinoma , Stage 3-Diagnosed on Mar10 BHCG 35596 -4 BEP Mar 15-Jun 10, BHCG down to 3 -Jul 27, relapse BHCG 23 -Brain Radiation 8/18-9/18 -BHCG-4 -12/21 BHCG12800 12/22-5/7 TIP 2/24-Stereotactic brain radiiation 6/25-BHCG 46400 7/4-Started hospice 7/8-Passed Away R.I.P.-06/19/1974-07/08/2010
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#64
03-19-10, 10:58 PM
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sussa,
I'm glad the diarhhea is better. I'm betting if you PM Pam your phone number she will give you a call. Any way of r anurse to go to your home for the blood draw and maybe get him some IV fluids? Ths hospital Andy is treated in should have a social worker that can help you with home care and insurance issues. Strength, hope and prayers, Karen
__________________
husband, left I/O 16Dec2005, stage I seminoma, no LVI, RTx15 (25Gy). "All clear" as of 04May2010
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#65
03-19-10, 11:25 PM
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Hello Sussa
TIP kicked the poop out of my husband, it knocked him down more then the HD chemo did and it made the most impact on this cancer, his tumour markers took a nose dive with this protocol, bugs me to this day as I often wonder if they had not followed normal protocal and had given him another round or two of this instead of the HD chemo what would of happened. But he had many of the symptoms your husband is experiencing, it was the only time he got physically ill through his whole year of treatment. But at the end he had the best outcome from it. Tell your husband to hang in there. Thinking of you guys Dawn Ann
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#66
03-20-10, 11:25 AM
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Thank you Dawn and Karen.
I left a message for Pam.
__________________
-Husband-Primary Mediastinal GCT Choriocarcinoma , Stage 3-Diagnosed on Mar10 BHCG 35596 -4 BEP Mar 15-Jun 10, BHCG down to 3 -Jul 27, relapse BHCG 23 -Brain Radiation 8/18-9/18 -BHCG-4 -12/21 BHCG12800 12/22-5/7 TIP 2/24-Stereotactic brain radiiation 6/25-BHCG 46400 7/4-Started hospice 7/8-Passed Away R.I.P.-06/19/1974-07/08/2010
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#67
03-23-10, 08:55 PM
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Visitng Nurse Service
Today we had a nurse from the visiting nurse association come in for Andy's blood work. Thank you Pam for the idea. I told the doctor that Andy is too drained out to come to the clinic for anything and mentioned to her about a nurse coming to our house. She agreed right away and we had a nurse come in to draw blood. We will have the results of that tomorrow. Overall Andy is feeling better, diarreah under control and no fever. Cough is still there though.
I will post the results of the blood work tomorrow.
__________________
-Husband-Primary Mediastinal GCT Choriocarcinoma , Stage 3-Diagnosed on Mar10 BHCG 35596 -4 BEP Mar 15-Jun 10, BHCG down to 3 -Jul 27, relapse BHCG 23 -Brain Radiation 8/18-9/18 -BHCG-4 -12/21 BHCG12800 12/22-5/7 TIP 2/24-Stereotactic brain radiiation 6/25-BHCG 46400 7/4-Started hospice 7/8-Passed Away R.I.P.-06/19/1974-07/08/2010
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#68
03-24-10, 07:29 AM
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Good that Andy is feeling better. Is he able to get up and move around a fair amount at home?
__________________
husband, left I/O 16Dec2005, stage I seminoma, no LVI, RTx15 (25Gy). "All clear" as of 04May2010
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#69
03-24-10, 05:09 PM
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Chemo working!!
Results are in BHCG is now 3185 down from 34516!!! AFP is normal and LDH is 690. Atleast we know the chemo is working.
Andy is stll fatigued and so he does not move around. In bed all the time. The plan is to start the next cycle on 4/5.
__________________
-Husband-Primary Mediastinal GCT Choriocarcinoma , Stage 3-Diagnosed on Mar10 BHCG 35596 -4 BEP Mar 15-Jun 10, BHCG down to 3 -Jul 27, relapse BHCG 23 -Brain Radiation 8/18-9/18 -BHCG-4 -12/21 BHCG12800 12/22-5/7 TIP 2/24-Stereotactic brain radiiation 6/25-BHCG 46400 7/4-Started hospice 7/8-Passed Away R.I.P.-06/19/1974-07/08/2010
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#70
03-24-10, 07:33 PM
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YEAH>>> this is awesome. Maybe they have found the right combination of drugs for Andy...
Much love, Pam
__________________
Son Les diagnosed 5/7/07-Right I/0 5/9/07-Stage 3C Non-seminoma Mixed Cell Germ Tumor-Tumors in liver, lungs, lymph nodes, brain-4XBED Finished 7/31/07 HCG 9 tumors smaller, brain lesion gone-9/30/07 HCG 999-TIPx4 started 10/2/07, IU 11/29 Told he had Choriocarcinoma Syndrome HDC and Stem Cell Transplant to begin 1/3/08 Finished Transplant 3/1/08 HDC and Stem Cell Transplant Failure 3/20. 4/17 RPLND & Liver resection, Molecular profiling of tumor, 6/2 Hospice Services- Passed Away 12/12/08
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#71
03-24-10, 08:08 PM
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Wonderful news! Congratulations and the great results!
__________________
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#73
03-24-10, 09:03 PM
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Goodness, that is an amazing drop! Good for Andy!!
 Ally
__________________
Husband DJ: Dx 7/16/2008 Right I/O 7/25/2008 90% Embryonal, <5% Yolk sac,<5% Seminoma, <2% Mature teratoma Began 3xBEP 9/8/2008, changed to 2xBEP + 1xVIP because of changes in oxygen diffusion. Completed 10/24/2008 All Clear Ever Since 
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#75
03-25-10, 01:50 AM
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Fantastic news! *big hug to you and Andy* He did not suffer the side effects in vain!
Yay! The chemo is working its magic. What wonderful news to almost start the weekend!
__________________
Husband diagnosed April 09 with Mediastinal Germ Cell Cancer Mets-1 in liver, 2 in brain, multiple nodules in lungs bHCG 60,000+ 4xBEP from April-July 09 (bHCG 17.5) Rising bHCG-1 new lung lesion found 2xVeIP from July-Aug 09 (bHCG dropped from 200+ to 60) Medial Thoracotomy (Path report indicates necrosis) Rising bHGC-more brain mets-Whole Brain Irradiation; Left lung masses growing 4xVIP (bHCG dropped from 2400 to 5.9-normal is <7) HDC from Jan-Mar 10 Rising bHCG-Mar 10
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#76
03-25-10, 09:21 AM
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A 90% drop?!?!?
Awesome...and even though he's not getting around much, you know how much effort he's giving it! Warrior Spirit indeed!
__________________
Stage III Non-Seminoma- 7/11/06 Right I/O 7/12/06 Completed 4x BEP 11/06 Bi-Lateral RPLND (Dr. Shenifeld)- 11/27/06 Surveillance since then When you think about it, what other choice is there but to hope? We have two options, medically and emotionally: give up, or Fight Like Hell. Lance Armstrong.
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#77
03-25-10, 09:22 AM
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Wow! This is outstanding!
__________________
"Life moves pretty fast; if you don't stop and look around once in a while, you could miss it." -Ferris Bueller 11.22.06 -Dx the day before Thanksgiving 12.09.06 -Rt I/O; 100% seminoma, multifocal; Stage I-A; Surveillance; Almost four years down! Next follow-up: 02/11.
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#78
03-25-10, 09:52 AM
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Yea for chemo working!!
Great news! Becki
__________________
Husband Right I/O 09/06 -70% Embryonal Carcinoma -20% Teratoma -10% Yolk Sac Tumor 11/06- lymph nodes 1.8x1.4 and 1.9x1.4 12/06-PET Scan confirms activity in lymph nodes, lymph nodes 2.2x2.2 and 2.4x2.3 1/07-Start 3xBEP 4/07-PET clear, lymph nodes down to 1.1x0.5 and 1.8x1.0 6/07-lymph nodes 1.2x1.0 and 1.9x.9 8/07-lymph nodes 1.1x1.0 and 2.0x1.2 10/07-lymph nodes 2.0x1.5 and 2.7x1.8 11/07- PostChemo LRPLND-found burnt out teratoma 11/09-Enlarging lymph node 1.2 cm near renal veins
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#80
04-08-10, 03:45 PM
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chemo cycle 3
Andy started chemo cycle 3 on monday, 4/5. He has been okay, no major side effects or complications. He has been breathing on his own. We even went away this weekend to Poconos, PA. It was fun. He finishes chemo tomorrow and will be hopefully discharged too.
__________________
-Husband-Primary Mediastinal GCT Choriocarcinoma , Stage 3-Diagnosed on Mar10 BHCG 35596 -4 BEP Mar 15-Jun 10, BHCG down to 3 -Jul 27, relapse BHCG 23 -Brain Radiation 8/18-9/18 -BHCG-4 -12/21 BHCG12800 12/22-5/7 TIP 2/24-Stereotactic brain radiiation 6/25-BHCG 46400 7/4-Started hospice 7/8-Passed Away R.I.P.-06/19/1974-07/08/2010
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#82
04-08-10, 08:13 PM
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My friend,
I am so glad you guys got away!!!! Love, Pam
__________________
Son Les diagnosed 5/7/07-Right I/0 5/9/07-Stage 3C Non-seminoma Mixed Cell Germ Tumor-Tumors in liver, lungs, lymph nodes, brain-4XBED Finished 7/31/07 HCG 9 tumors smaller, brain lesion gone-9/30/07 HCG 999-TIPx4 started 10/2/07, IU 11/29 Told he had Choriocarcinoma Syndrome HDC and Stem Cell Transplant to begin 1/3/08 Finished Transplant 3/1/08 HDC and Stem Cell Transplant Failure 3/20. 4/17 RPLND & Liver resection, Molecular profiling of tumor, 6/2 Hospice Services- Passed Away 12/12/08
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#83
04-08-10, 08:32 PM
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I'm hoping the weather is great up there and that you have a well-deserved good time.
__________________
TC1: 1996, right orchiectomy, seminoma stage I 3.5 cm mass, radiation therapy (peri-aortic & pelvic 27.3 Gy) TC2: 2008, left orchiectomy, seminoma stage IA 5 cm mass, left & right prostheses, AndroGel TRT, surveillance at MSKCC
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#84
04-11-10, 03:50 PM
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Andy got home on Friday. He threw up a few times since then. Today, he has diarrhea, and also a stomach ache. He even threw up. He seems okay, but week. Every TIP cycle has its issues. Last cycle he had a lot of diarrhea, they even run some lab tests to see if he had an infection, everything came back clear, His oncologist said it was probably due to chemo.
His hospital stay went pretty smooth, no issues. He had a little nausea on day 4 and 5, but nothing major. Well, I guess it was too good to be true. He is feeling down, now that he is home.
__________________
-Husband-Primary Mediastinal GCT Choriocarcinoma , Stage 3-Diagnosed on Mar10 BHCG 35596 -4 BEP Mar 15-Jun 10, BHCG down to 3 -Jul 27, relapse BHCG 23 -Brain Radiation 8/18-9/18 -BHCG-4 -12/21 BHCG12800 12/22-5/7 TIP 2/24-Stereotactic brain radiiation 6/25-BHCG 46400 7/4-Started hospice 7/8-Passed Away R.I.P.-06/19/1974-07/08/2010
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#85
04-13-10, 12:47 AM
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Hi Susan
I've been a silent observer of your postings. I'm so glad your husband is doing well; especially with the drop in the BHCG. This is fantastic news. Woohoo. patti
__________________
Wife of Kevin Murphy Diagnosed 7/16/04 100% Choriocarcinoma Oriechtomy 7/20/04 4xBEP 8/04-11/04 BHCG:1200 (lung only) Rediagnosed 12/27/04 BHCG: 50 1xVIP 1/05 (lung) HDC/Stem cell Indiana 2/05-4/05 BHCG: 51-4.5 (lung) HDC failure 5/05 3xGemzar/Taxol 6/05-9/05 (lung only) VP-16 w/Avastin 9/05-1/06 (lung only) Cyberknife 5" lung tumor 2/06 cyberknife 6 brain tumors 3/06 1xOxaliplatnin 3/06 (liver, lungs, kidneys, left hip) Passed away 4/13/2006
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#86
04-13-10, 06:09 AM
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Hi Sussa
Is Andy feeling better today?
__________________
Husband diagnosed April 09 with Mediastinal Germ Cell Cancer Mets-1 in liver, 2 in brain, multiple nodules in lungs bHCG 60,000+ 4xBEP from April-July 09 (bHCG 17.5) Rising bHCG-1 new lung lesion found 2xVeIP from July-Aug 09 (bHCG dropped from 200+ to 60) Medial Thoracotomy (Path report indicates necrosis) Rising bHGC-more brain mets-Whole Brain Irradiation; Left lung masses growing 4xVIP (bHCG dropped from 2400 to 5.9-normal is <7) HDC from Jan-Mar 10 Rising bHCG-Mar 10
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#87
04-13-10, 01:27 PM
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Yesterday was not too good. He threw up after eating. He would throw up like after 2 hours after eating something. His stomach was hurting a lot. Today he has not vomitted so far. He looks okay at best.
__________________
-Husband-Primary Mediastinal GCT Choriocarcinoma , Stage 3-Diagnosed on Mar10 BHCG 35596 -4 BEP Mar 15-Jun 10, BHCG down to 3 -Jul 27, relapse BHCG 23 -Brain Radiation 8/18-9/18 -BHCG-4 -12/21 BHCG12800 12/22-5/7 TIP 2/24-Stereotactic brain radiiation 6/25-BHCG 46400 7/4-Started hospice 7/8-Passed Away R.I.P.-06/19/1974-07/08/2010
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#89
04-13-10, 05:57 PM
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I really hope he'll start to turn the corner and feel better soon.
__________________
Nick Embryonal Carcinoma; Seminoma. Right I/O August 2001. Surveillance August - December 2001. Relapse: December 2001. Stage III, mets in lymph nodes and lung. 3xBEP Dec 2001 - March 2002. Complications: Neutropaenic sepsis during cycles 1 & 3. I/V antibiotics and isolation.
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#91
04-14-10, 01:51 AM
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Oh, poor Andy! A fellow patient I know from the hospital throws up 2 hours after each meal time. His caregiver said that you could time your clocks by his regular 'sessions'. But after each session, he would snack a little because that's when he feels good enough to eat.
I hope Andy feels better soon.
__________________
Husband diagnosed April 09 with Mediastinal Germ Cell Cancer Mets-1 in liver, 2 in brain, multiple nodules in lungs bHCG 60,000+ 4xBEP from April-July 09 (bHCG 17.5) Rising bHCG-1 new lung lesion found 2xVeIP from July-Aug 09 (bHCG dropped from 200+ to 60) Medial Thoracotomy (Path report indicates necrosis) Rising bHGC-more brain mets-Whole Brain Irradiation; Left lung masses growing 4xVIP (bHCG dropped from 2400 to 5.9-normal is <7) HDC from Jan-Mar 10 Rising bHCG-Mar 10
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#92
04-14-10, 03:09 PM
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Thank you guys.
Andy is a bit better today. He did not throw up all of yesterday. I have been giving him Prilosec and I think that has helped him a lot.
__________________
-Husband-Primary Mediastinal GCT Choriocarcinoma , Stage 3-Diagnosed on Mar10 BHCG 35596 -4 BEP Mar 15-Jun 10, BHCG down to 3 -Jul 27, relapse BHCG 23 -Brain Radiation 8/18-9/18 -BHCG-4 -12/21 BHCG12800 12/22-5/7 TIP 2/24-Stereotactic brain radiiation 6/25-BHCG 46400 7/4-Started hospice 7/8-Passed Away R.I.P.-06/19/1974-07/08/2010
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#93
04-14-10, 03:20 PM
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Quote:
__________________
Best, Zsolt Friendship is born at that moment when one person says to another; "What! You too? I thought I was the only one." - C.S Lewis “Experience: that most brutal of teachers. But you learn, my God do you learn.” - C.S. Lewis Mass found 11/20/08 Left I/O 11/25/08 Pathology: Seminoma, Stage 1 Surveillance: All Clear since
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#94
04-15-10, 11:22 AM
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Yay! I hope you, Andy and the kids have a fantastic weekend!
__________________
Husband diagnosed April 09 with Mediastinal Germ Cell Cancer Mets-1 in liver, 2 in brain, multiple nodules in lungs bHCG 60,000+ 4xBEP from April-July 09 (bHCG 17.5) Rising bHCG-1 new lung lesion found 2xVeIP from July-Aug 09 (bHCG dropped from 200+ to 60) Medial Thoracotomy (Path report indicates necrosis) Rising bHGC-more brain mets-Whole Brain Irradiation; Left lung masses growing 4xVIP (bHCG dropped from 2400 to 5.9-normal is <7) HDC from Jan-Mar 10 Rising bHCG-Mar 10
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#95
04-29-10, 11:11 AM
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Hi Sussa
Will Andy be done with his inpatient chemo week of the 4th TIP cycle tomorrow? How's he doing with this 4th cycle? I hope its been uneventful!
__________________
Husband diagnosed April 09 with Mediastinal Germ Cell Cancer Mets-1 in liver, 2 in brain, multiple nodules in lungs bHCG 60,000+ 4xBEP from April-July 09 (bHCG 17.5) Rising bHCG-1 new lung lesion found 2xVeIP from July-Aug 09 (bHCG dropped from 200+ to 60) Medial Thoracotomy (Path report indicates necrosis) Rising bHGC-more brain mets-Whole Brain Irradiation; Left lung masses growing 4xVIP (bHCG dropped from 2400 to 5.9-normal is <7) HDC from Jan-Mar 10 Rising bHCG-Mar 10
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#96
04-29-10, 12:58 PM
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No actually Andy wanted to delay his chemo another week to get his strength back. His oncologist was okay with that. So he starts chemo on Monday, 5/3.
We had an appointment today with the doctor, I was waiting to post an update tomorrow after the blood work results come back. The doctor said after this cycle, she may want to give him a 5th cycle, but that would be after he has an MRI of the brain done and he feels well enough to take another cycle. I thought that was strange. Her reasoning was that the first cycle was back in December and then we had a 9 week break in between. She said that cycle almost seems non existent. She trained at MSKCC under Dr. Bosl, so I guess I will have to trust her. Has anyone ever heard of a doctor a 5th cycle. Bear in mind that Andy got TIP the first cycle, then the last 3 cycles were only TP(no Ifosformide) due to the risk of seizures. I will post the results of the blood work tomorrow.
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-Husband-Primary Mediastinal GCT Choriocarcinoma , Stage 3-Diagnosed on Mar10 BHCG 35596 -4 BEP Mar 15-Jun 10, BHCG down to 3 -Jul 27, relapse BHCG 23 -Brain Radiation 8/18-9/18 -BHCG-4 -12/21 BHCG12800 12/22-5/7 TIP 2/24-Stereotactic brain radiiation 6/25-BHCG 46400 7/4-Started hospice 7/8-Passed Away R.I.P.-06/19/1974-07/08/2010
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#97
05-03-10, 07:59 PM
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Beta decreased
Andy's BHCG is now at 200...yay...He started chemo today. He feels weak and so he is nervous about how he will feel after the chemo.
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-Husband-Primary Mediastinal GCT Choriocarcinoma , Stage 3-Diagnosed on Mar10 BHCG 35596 -4 BEP Mar 15-Jun 10, BHCG down to 3 -Jul 27, relapse BHCG 23 -Brain Radiation 8/18-9/18 -BHCG-4 -12/21 BHCG12800 12/22-5/7 TIP 2/24-Stereotactic brain radiiation 6/25-BHCG 46400 7/4-Started hospice 7/8-Passed Away R.I.P.-06/19/1974-07/08/2010
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#98
05-03-10, 08:02 PM
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Glad to see that HCG number continue to drop. Hoping this round of chemo is gentle on Andy, and you as well!!!
Ally
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Husband DJ: Dx 7/16/2008 Right I/O 7/25/2008 90% Embryonal, <5% Yolk sac,<5% Seminoma, <2% Mature teratoma Began 3xBEP 9/8/2008, changed to 2xBEP + 1xVIP because of changes in oxygen diffusion. Completed 10/24/2008 All Clear Ever Since
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#99
05-03-10, 11:42 PM
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Wow, so happy to hear about those numbers. Crossing my fingers and keeping you in my prayers.
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 Diagnosed June 2009. Stage III (mets to lung and 2 brain lesions). Orchidectomy, 4XBEP, Brain surgery, Brain radiation, 3XTIP, 1XHDC (with stem cell transplant). Passed away February 13, 2010.
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#100
05-03-10, 11:48 PM
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Swell! What an amazing drop, from 3185 to 200 in one cycle. Fantastic news! I hope Cycle 4 brings an even bigger decrease! Congratulations!
With respect to the 5th cycle, as terrible as chemo is, I think its probably a good idea that Andy does Cycle 5. At the current rate of decrease, the bHCG is likely to be above normal at the end of Cycle 4. In the very first TIP cycle, when Andy's bHCG dropped to 40, the marker went back up quite quickly. Perhaps it would be better to have this 5th cycle to bring the marker down to normal.
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Husband diagnosed April 09 with Mediastinal Germ Cell Cancer Mets-1 in liver, 2 in brain, multiple nodules in lungs bHCG 60,000+ 4xBEP from April-July 09 (bHCG 17.5) Rising bHCG-1 new lung lesion found 2xVeIP from July-Aug 09 (bHCG dropped from 200+ to 60) Medial Thoracotomy (Path report indicates necrosis) Rising bHGC-more brain mets-Whole Brain Irradiation; Left lung masses growing 4xVIP (bHCG dropped from 2400 to 5.9-normal is <7) HDC from Jan-Mar 10 Rising bHCG-Mar 10 Last edited by Gerri; 05-03-10 at 11:57 PM.
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