D . LOOKING FOR SOME FRIENDLY ADVICE ]

Hey Everybody ,
My name is Gary , Irish bloke living in Darwin the last 4 years , diagnosed with TC 2 years ago , had a relapse in September , just finished 3XBEP . Like alot of you guys , really struggling to get some proper advice , I’m...

How did you end up going and how is everything for you now?

Your doctors and you can get information here https://www.nccn.org/store/login/login.aspx?ReturnURL=http://www.nccn.org/professionals/physician_gls/PDF/testicular.pdf You will neeed to create an account to access the information but if will give you the recommended guidelines.

Hi Friends,
Can you please share your experience and names of your doctors here.
I am from Mumbai India.
My oncologist Dr. Advani.
Surgeon Dr. Jagdish Kulkarni

Please recommend options for good doctors onco and surgeons in Mumbai or any other location in India...

I'm in a similar position mate , just finished surgery three days ago . Waiting for pathology report, expecting the worst , hoping for a minor miracle 😃

Kingpig, that sounds horrible! What's the update since then?

I am hoping someone that has a similar story will see my post. 3 months ago I was at work and simply bent over to pick up a shirt I dropped. All of a sudden I was kicked right square i the balls!! This was a shocker as I knew no one anywhere near me. It was like being kicked by a ghost wearing cowboy...

Losing my last one next Tuesday...so did not expect this. Frustrated as hell, but will be fine.

Hi Guys,
G'day from Bendigo Victoria. Been cancer free for 5 months now. Another mate and I have set up a campaign/foundation called BlueBall Foundation ( http://blueballfoundation.com.au ) to raise awareness of TC and Men's health. We made it to the front page of the local paper and alot of opportunities...

hello. just joined the group. stage 1 seminoma in 1986, left testicle removed and radiation therapy. 26 years later...at the ripe old age of 56!!!!!!... February 2012 right testicle stage 1 (with rete testes involvement) seminoma and testicle removed. one time chemo. very new feeling for me now. me...

Hi fellow solo orchids. Just joined. I live in Harrogate, North Yorkshire. I am pleased that there is at least something for UK guys. Seems like the Yanks have this thing sewn up and we have to make do with a page on the Macmillan website. Just had right I/O only 6 days ago and have got CT scan booked...

my partner is 33 has had double orchiectomy waiting on biopsy to decide if going with chemo this time or just surveillence as this was diagnosed as stage 1. If anyone has any preference to TRT i would like to discuss as we have appoint with endocrinologist on 16th November.

>>>>>>>>>>>...

Hello from SJ

@survivorbride
Probably doing the right thing depending on the staging
Surveillance for stage 1 is best and if the joker does come back, you will always have Chemo to kick it to hell and not back

Hi guys! Not long found this site, and being new and not quite with the lingo yet, having trouble, so glad to meet some local lads and ladies.

My hubby was diagnosed four months ago with stage 3c tc. Abdo involvement, lungs were chockers, and a 3cm brain tumor were also detected. First...

Reoccurrence after 20 years. Two months ago, left side enlarged and diagnosis was pure seminoma again. No signs of spreading. Next week I get single dose Carbo. as treatment plan. So not only did I reoccur but also at 45 years old, crazy One Dr. was pushing for observation but decided for treatment....

Hi all, I lost my second last year and still adjusting. I am relieved to find the forum.

>>>>>>>>>
TC1: May 2000 / Right orchiectomy / seminoma stage 1 / Radiation
TC2: June 2010 / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G...

I am about a month out from my RLPND and the Dr. wants to do more chemotheropy. Is this normal? Do your tumor markers vary for a while after your RLPND?

Hi group. I'm the wife of a man who was diagnosed with left TC in May 2010 and right TC in November 2010. He had left/right orchiectomy and just finished 3 x BEP. It's been a very rough road, but we are managing to get through this mess. It's helpful to see others out there that have had a similar experience....

Hey Andy

Welcome - the groups here are hard to keep up with as you do not appear to be able to subscribe to updates, anyway there are a few guys here.

Cheers

Gidday fellas, I'm in northern NSW, just finished my 1st cycle of BEP , so far so good, no major side eefects, starting to lose a little bit of hair.
Getting my treatment at Lismore base hospital in the new Chemotherapy unit, which is great, people are good and friendly and always willing to...

Hello all, I am posting here bc it seems to fit the best. I am the wife of a man who was diagnosed with TC almost 2 years ago and chose not to have treatment. I am not sure what type or how advanced it is. I only know bc he told me 5 days ago for the first time. He is embarrassed about it and does not...

Hi guys
Im in qld here, to get help i have found is near impossible, as im 4.5 hrs west of brisbane, so if you woud like to chat about anything, n everything feel free to contact me. Im 30 here n only have me orchidectomy 4 weeks ago so its all new to me, and depressing, me msn is pete_munde...

Hi...looking for help for my son's friend 22 years of age. Great kid!!! Has been battling TC since his teens. They want to do an experimental drug along with radiation. The radiation alone is not working. The problem is since it is an experimental drug our OHIP will not cover it. There must be...

My son's friend who is only 22 years of age has had testicle cancer since his teens. He has been given 6 months to live but not the first time. He has survived through those before. This time radiation is not working and the want to give him an experimental drug. The problem is OHIP will not cover...

Hi. My fiance' is wary about going to get a second opinion. We had the testicle removed and the tests showed that it was cancer. Now we're on surveillance but I'm not sure we're dong enough. Any thoughts?

Thanks for pointing this out KiWi.

I am a 31yo guy in Sydney had cysts since I was a kid, which was diagnosed as possible TC with high hCG markers. I/O done (recovering) and following up with oncolgists. Stage 1b with vascular intrusion. Initial operations done at St Vincents but going...

Hi guys, another British member of the TC social group.

Lee

Hi Team, you can add your details to the “Find A Warrior” thread, copy and pasted the information into your reply and add your details.

http://www.tc-cancer.com/forum/showthread.php?t=8340

Hey there Groundhog,
Just to be clear, I am not recommending any treatment. I am just sharing my experience. Thanks for bringing the CT scans thing up. My bad. I am getting the CT scans every three months. It is interesting though that I was being required by the doctor to do chest, abdomen, and...

Hey, Ariel. Sounds like you've become well informed about TC and TRT. Don't we wish we didn't have to acquire our expertise. What leapt out at me in your post is the frequency of CT scans you recommend. I assume you're under surveillance and didn't receive chemo or RT. Once a month for 3 yrs.sure...

Hi Benny (and everyone else),

With the stuff below I am not trying to dictate, suggest (maybe suggest a bit), or tell you what to do. It is my experience and I am just sharing. I am not a doctor and this should not be considered medical advice. You are welcome to discuss this with your...

I guess I'm kind of a guest member. I lost both my Testes to Orchitis/Orchialgia. This is not very common stuff so the only resource I've found has been here.

Dear all,
I'm a 38 year old ex-pat Australian living in Vietnam, have been for nearly 10 years.
Quality medical care is hard to find here but I've been attending oncology and urology departments at the FV Hospital in Ho Chi Minh City (Saigon), considered the most advanced care facility...

Hello and welcome to our little corner of the TC Forums! Sorry to add another member of course, but good to see you here just the same. Feel free to ask away with any questions, and feel free to send me a personal message too if you are more comfortable doing that instead.

Hi guys, I am as sorry as you for being here. Thanks for being here anyway. This forum has already helped me clear some doubts before my second orchiectomy surgery two days ago - the first one was 10 years ago. I don't know yet what type of cancer or what type of treatment I will have to follow. My...

Hey guys.

15 August is the day of our get-together. 12 o'clock by the pier in Weston-super-Mare. The more the merrier!

A quick hello from a fellow Brit

Unless anybody has an objection, I'd like to add myself as an honorary member having spent some time touring and learning. We have offices in Sydney and Melbourne. And I shall return!

Yup, I second that. 2008 really sucked, so I'm glad it's over. 2009 is a fresh start!

Hey Team,

A group of 8, and who said we were supposed to be rare! Hope 2009 is a fun one.

Cheers

Kiwi

I'm really looking forward to out get together in the new year guys (and gals). Happy Christmas to everyone.

Hi Trent

Like you I am in QLD and with TC#1 7 years ago I did look for some support but there was nothing specific for TC guys. I always was going to approach the QLD Cancer to see if I could help and after being so slack approached them earlier after TC#2 this year and asked about...

Hello fellow one testicle Brits. Hope all is well, and seasons greetings. Have good 'un, and hopefully will meet some time in the future....Davie

Hello Brits!

Thanks for joining the Brits group! I'm not really sure how things will work or what we'll use this group for, but it will be useful to have all the UK people in one place so that we can organise get-togethers and stuff. We can share photos and stuff too.

Hey Fellas,
How are you going?
Just sending a message to see what you think this group could do and suggest some ideas. I have been disappointed in some ways about the level of help with cancer survivorship specifically to TC. Instead of expecting the help to come to me I have gone out...

Vending machines Kiwi?! Very funny, but just in case....I will start saving up my pocket change now.

Imported Group Gallery - 2X Warriors

Hello to all! The groups are new to me and will have to venture in more often as we return home and time will allow. For now, I want to share my cell phone. Karen if you would text me with your number...
...just deleated as I realized this was a public area...will try again.