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  • #16
    Reoccurrence after 20 years. Two months ago, left side enlarged and diagnosis was pure seminoma again. No signs of spreading. Next week I get single dose Carbo. as treatment plan. So not only did I reoccur but also at 45 years old, crazy One Dr. was pushing for observation but decided for treatment.
    >>>>>>>>>
    TC1: Sept. 1992 / Right orchiectomy / pure seminoma stage 1 / Prostheses/ Radiation
    TC2: March 2011 / Left orchiectomy / pure seminoma stage 1 / Prostheses / Carboplatin/ Testosterone shot 2ml/month

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    • #17
      my partner is 33 has had double orchiectomy waiting on biopsy to decide if going with chemo this time or just surveillence as this was diagnosed as stage 1. If anyone has any preference to TRT i would like to discuss as we have appoint with endocrinologist on 16th November.

      >>>>>>>>>>>
      TC1: Feb 2004/ RT orchiectomy/teritoma stage 2/ chemo 4 rounds
      TC2: Oct 2011/ LT orchiectomy/ stage 1 unsure on semi or non/ single prostesis and treatment unsure as appoint on 24th november and TRT unsure

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      • #18
        hello. just joined the group. stage 1 seminoma in 1986, left testicle removed and radiation therapy. 26 years later...at the ripe old age of 56!!!!!!... February 2012 right testicle stage 1 (with rete testes involvement) seminoma and testicle removed. one time chemo. very new feeling for me now. me and my castrated male cat have a lot to talk about lately.
        i wonder if i was in remission all that time??????? or as my oncologist said...."no....it is a new cancer site"
        i guess it really doesn't matter....

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        • #19
          Losing my last one next Tuesday...so did not expect this. Frustrated as hell, but will be fine.

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          • #20
            I am hoping someone that has a similar story will see my post. 3 months ago I was at work and simply bent over to pick up a shirt I dropped. All of a sudden I was kicked right square i the balls!! This was a shocker as I knew no one anywhere near me. It was like being kicked by a ghost wearing cowboy boots. Long story short I had a "testicular mass" that had attached itself to my left spermatic cord and to the left testicle as well. Three trips to the ER and 3 Ultrasounds later I got the diagnoses of a hematoma. They thought it was torsion. Then edytimitis. I saw cancer specialists, family doctors, ER doctors, bllood specialists, and had every possible test for this part of my body including MRI's and CT scans. I set a world record for dropping my pants and being diddled by students and medical staff at UCSD. Cancer has been ruled out at this point. Last month I had surgery to remove the mass and faced a strong possibility of losing the left testicle and there was some talk of losing both. The pains I suffered up until the first surgery were horrible and felt like everything from being kicked in the balls to grabbing and pinching. My urologist injected nerve blocks to ensure testicles are source of my pains. They are according to him and I will have the left one removed next week and possibly both. He does not want to remove the right one yet and see if my pains improve. If they don't, schedule yet a 3rd surgery to take the righty. With the most recent injection to the righty spermatic cord (think it was Marcaine in clinic this past Friday), and the pains going subsiding as happened with lefty (last months in clinic injection), chances are extremely high I will lose both this surgery next week. I feel "level 10" pains through Roxycodone, Dilauded, Fentynl, and Kenalog. This is a huge mystery that appears to have an outcome of a radical inguinal orchiectomy of both testcles, as my disability insurance is running out of time. It is my belief that TRT is more manageable than my pain as I currently can not do the simple tasks like driving a car or even swimming in a pool, and 99% of the other stuff "normal" guys do. Sex has been on the back burner as I can not "finish" anyway, most likely from all the pain. My wife tells me it looks as if I'm having contractions every time one of my "kicking pains" hit. Then I get the "grabbing pains" that hold on for the duration of 2 hours, every morning causing me to cry for extended periods to the point of dry eye ducts. This sucks let me tell you. I have learned a ton from your posts and look forward to more info coming my way...

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            • #21
              Kingpig, that sounds horrible! What's the update since then?

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              • #22
                How did you end up going and how is everything for you now?

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