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  • AdrianE
    started a topic 2X Warriors

    2X Warriors

    Vending machines Kiwi?! Very funny, but just in case....I will start saving up my pocket change now.

  • Haley
    replied
    How did you end up going and how is everything for you now?

    Leave a comment:


  • DL80
    replied
    Kingpig, that sounds horrible! What's the update since then?

    Leave a comment:


  • kingpig
    replied
    I am hoping someone that has a similar story will see my post. 3 months ago I was at work and simply bent over to pick up a shirt I dropped. All of a sudden I was kicked right square i the balls!! This was a shocker as I knew no one anywhere near me. It was like being kicked by a ghost wearing cowboy boots. Long story short I had a "testicular mass" that had attached itself to my left spermatic cord and to the left testicle as well. Three trips to the ER and 3 Ultrasounds later I got the diagnoses of a hematoma. They thought it was torsion. Then edytimitis. I saw cancer specialists, family doctors, ER doctors, bllood specialists, and had every possible test for this part of my body including MRI's and CT scans. I set a world record for dropping my pants and being diddled by students and medical staff at UCSD. Cancer has been ruled out at this point. Last month I had surgery to remove the mass and faced a strong possibility of losing the left testicle and there was some talk of losing both. The pains I suffered up until the first surgery were horrible and felt like everything from being kicked in the balls to grabbing and pinching. My urologist injected nerve blocks to ensure testicles are source of my pains. They are according to him and I will have the left one removed next week and possibly both. He does not want to remove the right one yet and see if my pains improve. If they don't, schedule yet a 3rd surgery to take the righty. With the most recent injection to the righty spermatic cord (think it was Marcaine in clinic this past Friday), and the pains going subsiding as happened with lefty (last months in clinic injection), chances are extremely high I will lose both this surgery next week. I feel "level 10" pains through Roxycodone, Dilauded, Fentynl, and Kenalog. This is a huge mystery that appears to have an outcome of a radical inguinal orchiectomy of both testcles, as my disability insurance is running out of time. It is my belief that TRT is more manageable than my pain as I currently can not do the simple tasks like driving a car or even swimming in a pool, and 99% of the other stuff "normal" guys do. Sex has been on the back burner as I can not "finish" anyway, most likely from all the pain. My wife tells me it looks as if I'm having contractions every time one of my "kicking pains" hit. Then I get the "grabbing pains" that hold on for the duration of 2 hours, every morning causing me to cry for extended periods to the point of dry eye ducts. This sucks let me tell you. I have learned a ton from your posts and look forward to more info coming my way...

    Leave a comment:


  • ccmclark
    replied
    Losing my last one next Tuesday...so did not expect this. Frustrated as hell, but will be fine.

    Leave a comment:


  • danielserota
    replied
    hello. just joined the group. stage 1 seminoma in 1986, left testicle removed and radiation therapy. 26 years later...at the ripe old age of 56!!!!!!... February 2012 right testicle stage 1 (with rete testes involvement) seminoma and testicle removed. one time chemo. very new feeling for me now. me and my castrated male cat have a lot to talk about lately.
    i wonder if i was in remission all that time??????? or as my oncologist said...."no....it is a new cancer site"
    i guess it really doesn't matter....

    Leave a comment:


  • lisasomers
    replied
    my partner is 33 has had double orchiectomy waiting on biopsy to decide if going with chemo this time or just surveillence as this was diagnosed as stage 1. If anyone has any preference to TRT i would like to discuss as we have appoint with endocrinologist on 16th November.

    >>>>>>>>>>>
    TC1: Feb 2004/ RT orchiectomy/teritoma stage 2/ chemo 4 rounds
    TC2: Oct 2011/ LT orchiectomy/ stage 1 unsure on semi or non/ single prostesis and treatment unsure as appoint on 24th november and TRT unsure

    Leave a comment:


  • livingwithc
    replied
    Reoccurrence after 20 years. Two months ago, left side enlarged and diagnosis was pure seminoma again. No signs of spreading. Next week I get single dose Carbo. as treatment plan. So not only did I reoccur but also at 45 years old, crazy One Dr. was pushing for observation but decided for treatment.
    >>>>>>>>>
    TC1: Sept. 1992 / Right orchiectomy / pure seminoma stage 1 / Prostheses/ Radiation
    TC2: March 2011 / Left orchiectomy / pure seminoma stage 1 / Prostheses / Carboplatin/ Testosterone shot 2ml/month

    Leave a comment:


  • dsomers74
    replied
    Hi all, I lost my second last year and still adjusting. I am relieved to find the forum.

    >>>>>>>>>
    TC1: May 2000 / Right orchiectomy / seminoma stage 1 / Radiation
    TC2: June 2010 / Left orchiectomy / seminoma stage 1 / 1 Prostheses / Androgel 2X 5G packets

    Leave a comment:


  • TCRunner
    replied
    Hi group. I'm the wife of a man who was diagnosed with left TC in May 2010 and right TC in November 2010. He had left/right orchiectomy and just finished 3 x BEP. It's been a very rough road, but we are managing to get through this mess. It's helpful to see others out there that have had a similar experience. Currently, we are struggling with a bit of anxiety about his future and getting him strong and healthy again.

    Leave a comment:


  • Chosen65
    replied
    Hello all, I am posting here bc it seems to fit the best. I am the wife of a man who was diagnosed with TC almost 2 years ago and chose not to have treatment. I am not sure what type or how advanced it is. I only know bc he told me 5 days ago for the first time. He is embarrassed about it and does not want me telling family or friends. He is in constant pain in low back, right 5th & 6th rib area, lower groin and abdomen (stabbing pain that stops him in his tracks). He is on Methadone and has been using marijuana to keep from throwing up. He has lost a massive amount of weight. I am here bc I need someone to talk to.

    Leave a comment:


  • meggaleena
    replied
    Hi...looking for help for my son's friend 22 years of age. Great kid!!! Has been battling TC since his teens. They want to do an experimental drug along with radiation. The radiation alone is not working. The problem is since it is an experimental drug our OHIP will not cover it. There must be some something out there that will help him. He has no parental support. I have offered him to come and stay with us through his treatment so he doesn't have to pay rent. He is trying his best to work but he sounded weak on the phone and hasn't even started the new drug yet. Can anyone assist me to get financial aid to pay for the experimental drug.

    Leave a comment:


  • Kiwi
    replied
    Hi Team, you can add your details to the “Find A Warrior” thread, copy and pasted the information into your reply and add your details.

    http://www.tc-cancer.com/forum/showthread.php?t=8340

    Leave a comment:


  • Ariel
    replied
    Hey there Groundhog,
    Just to be clear, I am not recommending any treatment. I am just sharing my experience. Thanks for bringing the CT scans thing up. My bad. I am getting the CT scans every three months. It is interesting though that I was being required by the doctor to do chest, abdomen, and pelvis. Then I found this article online:

    http://www.newsweek.com/id/234514

    and I also found the medical abstract version of it - I can't find the link now. I showed it to my doctor and my next scheduled CT scan was only for chest. No questions asked... So it seems that CT scans should be more closely monitored...

    - Ariel

    Leave a comment:


  • groundhog
    replied
    Hey, Ariel. Sounds like you've become well informed about TC and TRT. Don't we wish we didn't have to acquire our expertise. What leapt out at me in your post is the frequency of CT scans you recommend. I assume you're under surveillance and didn't receive chemo or RT. Once a month for 3 yrs.sure sounds like a lot. Do you have a reference for the protocol that recommends this?

    Thanks.
    Groundhog

    Leave a comment:

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