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  • Daniel_Eye
    started a topic Using THC or CBG before/during/after treatment.

    Using THC or CBG before/during/after treatment.

    Hi Friends

    As many of you have experienced and I may soon find out, chemotherapy has a host of side effects. From nausea, fatigue and apatite loss, to neuropathy and beyond. Seeing as the laws on marijuana are steadily decreasing and availability is easier, I was just wondering if anyone on the forum has used THC or CBD during their treatment?


    I personally have a friend that is a caregiver and he can provide me with tinctures, edibles and THC extract put into a capsule form. One of the oncology docs I spoke to said she was okay with it if it helped ease any pain, increased apatite to eat (healthy!) foods and maybe make you feel mentally better. She was against it being smoked or vaporized especially if going through BEP, and also recommended taking very small amounts as to not affect heart rate and breathing.
    From my own perspective, I've always felt that the "prohibition" on marijuana was due to lobbying efforts by higher powers in order to destroy medical research that could prove the efficacy of these drugs. All of those "scare them straight" tactics we're so dramatized. The kids who saw them are now adults (me) and know it was B.S. they were spewing. Since that the country is moving forward with legalization I believe that we should be able to take advantage of these drugs if they have any beneficial value. Research should also be conducted to see if CBD can not only treat symptoms but to actually be used as a curative option after proper testing is achieved.

    I understand that some people will not feel comfortable talking about this or might feel taboo given that it is still federally illegal. But we're all here together and anything that can help others get through the tough times is always helpful.

    If you have used these types of drugs during your treatment did it help? If so, in what way?

    Best,
    Daniel

    Link about Cancer and Medicinal Marijuana

    https://www.cancer.gov/about-cancer/...p/cannabis-pdq
    Last edited by Daniel_Eye; 03-07-17, 07:54 AM.

  • huth
    replied
    Marijuana can suppress (slow or slightly shrink improving) a cancerous tumor growth, but it can not just get rid of cancer in general. I read about a study done that sometimes people with cancer 'spontaneously' get better(spontaneous remission) (weed wasn't a factor obviously and it's very rare). This apparently almost exclusively happens in the very early stages of cancer (such as if you detected at stage 0) since apparently early on the cancer cells still have the ability to 'revert' and correct its course. I bring this up, because marijuana shrinks tumors. I feel like cannabis might increase the chance of spontaneous remission(due to shrinkage body is able to better fight), however, not to the point it's clinically significant as a 'main' treatment option (think like from 0.05% to 0.10%). It's worth mentioning because I feel the best way to use cannabis for cancer is in COMBINATION with modern treatment options. People who refuse treatment to just take cbd and thc are living in fantasy land of that 0.10% option. The ONLY reason I even accept this idea is that there have been proven reported cases of people using marijuana without other treatment, only to get better. However, whether or not the cannabis played a role other than placebo and just letting the body work, I don't know. If you want medical marijuana to help with your symptoms discuss it with a sympathetic doctor that has experience with medical marijuana https://dr-weedy.com/medical-marijuana-card-oakland/
    Last edited by huth; 12-25-19, 06:28 AM.

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  • 1skinnyj
    replied
    I was going through my 3xBEP at the time of the last post on this thread, and didnt have the energy to post at the time, and haven't been watching ithe forums much sense then.

    McIntoda--I'd like to here more about the cancer summit, is there any New research that supports the link between hen and cannabis use?
    During my treatment the prescription anti nausea drugs did not help me, but cannabis (eddible) did. So i used quite a bit of cannabis, but still had a non-detect hcg during and after treatment. This, and the reports of others to this forum, makes me sceptical of the reported link--i want to know what research actually supports the reported association.

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  • shabby
    replied
    My oncologist was pretty straightforward with it. He said if I partook to just to let him to know how much to compensate my HCG readings accordingly and that basically if I didn't, and the chemo symptoms presented, Marinol et.al would be options. We spent more time talking about contraindications of grapefruit than about the negativity of weed.

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  • mcintoda
    replied
    We spoke about this at the testicular cancer summit 2 weeks ago and the docs said that yes, THC use can can lead to HCG increases on lab work. Thus I think it It would be wise to coordinate with your oncologist before partaking. I am wondering if just discontinuing some weeks before blood work is sufficient.

    Leave a comment:


  • Daniel_Eye
    replied
    Hi All, I haven't been on in a while and thought I'd chime in. I don't smoke at all anymore, I only do edibles, I do 120mg of thc chewie candy. They call it a charleston chew and man they are good. One is 60mg but they are so good I usually have two. I used to smoke pot more frequently back in the day so the high dosage didn't scare me so much and yes I got very very high for a while. I don't use it very often. I think the last time I had some was a few months back, towards the end of the summer. I finished my 3 x BEP late may and so far so good, except I have come down with eczema which is new to me....I chalk it up to all the chemistry changes with chemo maybe? who knows, anyways I hope you all have a nice Thanksgiving and good luck with wherever you are on your TC journey.

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  • Ykspalli
    replied
    I ate a teaspoonful (0.4-0.6g) of decarboxylated cbd-rich flower every 4-6hrs during my treatment from the 2nd week of BEP until I got the first all clear at the beginning of July. I also vaped a few puffs every now and then, I was a heavy cigarette smoker for 20 years so vaping also helped me to quit the habit of smoking, I've been a non-smoker since 19th of march 2017! Quit just a few days before the treatment. I got an ok from my oncologist, although she wasn't exactly ok with the illegal side of it.

    Cannabis replaced painkillers (Oxycodone, Ibuprofen) and anti-anxiety (Alpratsolam/Xanax) drugs about 90%. I can't take any ibuprofen because of history with bleeding ulcer and quite extreme sensitivity to most drugs. For some reason opiates don't work for all of my pain, I just get tired and extremely irritated with minor or no pain relief. Haven't tried cannabis for my post-treatment neuropathy in my feet, fingers are almost back to baseline 4 months after the last Bleomycin.

    Weed is great when you have to use a lot of time and can't do much. Ate, read and watched a lot of documentaries during the long BEP-weeks attached to the infusion pump and had to be inside the cancer ward.

    I had 100% stage 3 non-seminoma yolk sac tumor and didn't see any elevated hcg.

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  • Trpnblly
    replied
    Hey Skinny,
    I'm 7 months post 3 x BEP and 6 post RPLND and am in surveillance mode (gratefully). I didn't partake during treatment for fear of it elevating my #'s. Post treatment I read that it can only effect the hCG level. I had a non-seminoma which, if I read correctly somewhere, the hCG level doesn't even matter, just the AFP (I'm not sure what you have/had). So, I wish I had used it in some form during treatment b/c it really would've helped with my appetite. There were many days when just drinking water was hard for me. Anyway, toward the end of treatment and ever since I've been dealing with neuropathy in my hands and feet. I've been on gabapentin for 4 months and don't like it. The side effects (dizziness, short-term memory issues, unable to think of words to express what I'm trying to say) have been tough and I have to keep upping the dosage every 3 weeks or so to control the pain. So, over the past month I've smoked to help get more relief from the pain. It does seem to help a bit with the pain but, to your point, it also helps my anxiety and frustration with the ongoing issues post-chemo. I ordered a bottle of CBD oil this week to give that a try as an alternative to smoking. I'd love it if that would work some magic and I could get off of the prescription meds altogether. My oncologist only prescribes the gabapentin so he's referred me to a neurologist that I'm going to see next week to get their opinion on treatment of the neuropathy. Sorry that's longwinded and not sure if it helped at all but hopefully something in there helps you or someone else in here:-)
    Hope things are well,
    Geoff

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  • 1skinnyj
    replied
    Thanks Daniel. it sounds like you didn't see an impact to your tests, so if does really elevate, maybe it is only a short duration effect?
    Whatever I decide, I intend to be straight with the doc (he told me that cannabis can cause the elevated hcg, but unfortunately I know that wasn't what caused my result to go up) but from what others have said here in the forums, I'm not convinced there really is a relationship. So far, the only reference I have seen is dated (peak drug war), and given the other paper that concluded there was no relationship and the overall ban on cannabis research, I am skeptical. That said, I sure don't want to cause any issues with misinterpretation of results either.
    Thanks

    Leave a comment:


  • Daniel_Eye
    replied
    HI Skinny

    I'd ask your Oncologist about it. During my treatment, I used pot edibles on a very infrequent basis. I think maybe 4-5 times during the course of the entire treatment. I made sure only to partake on my bleo weeks, and only after the infusion day. That way I wouldn't risk messing up the blood work. It definitely made me eat more and made me feel good. As far as my own personal experience goes, I used to be a more frequent user but, after a while I started to get anxiety FROM using it and that is why I stopped doing it frequently. Overall I think it helped, especially when I first began the treatment. When my hair fell out and I started to feel lousy is when I used edibles the most.Generally, it brightened my spirits and it did help with some nausea I was experiencing. I did make sure to get the blessing of my Oncologist and interestingly enough the Oncologist I consulted with prior to my current doctor was also okay with it as long as it wasn't smoked. Good luck!

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  • 1skinnyj
    replied
    Hi all I'd like to revive this old thread in hope that more people will share their experience with cannabis. So far, anxiety has been a problem, and cannabis has been a recommendation, but I am concerned about getting false positive for elevated b-hCG (which would have quite opposite the intended impact on my anxiety).

    Can marinol or the CBG extracts also give an elevated b-hCG?

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  • Trekga
    replied
    DANIEL~ Thanks for the kind words. Good luck with what you decide!!

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  • Daniel_Eye
    replied
    Originally posted by Trekga View Post
    DANIEL~ My son has not, his side effects have been pretty minimal through 2 rounds so far.
    However, my younger brother who passed from Colon Cancer on August 17, 2016 used either THC or CBD througout his 14 month battle with Stage 4 Colon Cancer. He was a huge propenent of easing pain and living the remining time he had best as he could! He lived in NJ, and a physician (a Urologist ironically). I belive he had a prescription. At one point there appeared to be a slight curative effect from it after he stopped Chemo due to quality of life side effects, but his cancer was so metastasized that ultimately he lost his battle.

    Hi Trek

    Im very sorry to hear about your brother, I know how difficult it is to lose a family member to cancer. Up here in MA you can get an RX for it but going to see a Doctor and then getting the products are expensive since none of the insurances cover the visit or the product. For me its cheaper to just get it as I normally would as long as I have the oncologists blessing. Its funny because prior to this cancer I hadn't used pot in a long time.

    Anything to make someone laugh in hard times always helps.Since a large part of healing is also the emotional/psychological side of disease I think that anything that can make someone feel good shouldn't be out of the question...legal or not :-)

    Have a great day,
    Daniel

    Leave a comment:


  • Daniel_Eye
    replied
    Originally posted by jaygatz4213 View Post
    Just my own experience. I ate a pretty big special brownie during cycle 3 of 4xEP. Made me feel pretty sick and I passed out in a restaurant. Maybe it was too strong, or maybe I ate way too much food, who knows.

    My oncologist prescribed me marinol , which is a synthetic THC, as my 'chill out' pill. I didn't take it, but went for xanax instead, that actually made me feel pretty good and helped with energy and overall stress concerns of having cancers.

    Re: appetite. I had no problems eating thanks to the steroids. I was told by my oncologist at MSKCC to expect to gain 20lbs during treatment.

    HI Jay

    Actually its funny that you mention that because the first time anyone ever eats an edible be it brownie, lollipop or cookie they eat waaaay too much. It takes a while to kick in so most people just keep going until they're so stoned they need to be carted off by a fork lift!

    I've eaten and made some potent brownies so I know what they are capable of. For me it was more of a mental thing, just to make me laugh and have a better disposition about the current state of affairs.

    I really appreciate your post though and hope that others have the courage to share their experience. By the way, what steroid did they put you on during treatment?

    Best,
    Daniel

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  • marcopolo
    replied
    Hi, fortunately I did not have BEP treatment, but I sometimes use CBD (drops/oil) as just "prevention". I have very good sleep then and feel OK. In our small country the media and some scientist and oncologists makes anti-campaign that itīs not helping during cancer treatment (but itīs lobbing behind).

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