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Stories of reccurrence after PC-RPLND?

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  • Stories of reccurrence after PC-RPLND?

    Hi,

    It's been awhile since I've posted on here or interacted. It's been 6 months since my PC-RPLND. I frankly wish I would have been on here to interact with others and help answer questions but I think I need to just focus on recovery and imagine moving on with more normal activities.

    Well Ill cut to the point (no pun intended), I had my 6mo pelvis/abdomen CT scans plus blood work yesterday. Blood work seems normal; however, the radiologist notes a new 4cm x 3cm right RP/ right common iliac lymph node. Given that 5 of the lymph nodes that were pulled out during my RPLND were Teratoma. I'm wondering if they just missed one? Could this just be a lymphocele? Comparing this to the last scans, the mass looks identical to the other enlarged lymph nodes but it definitely was not there in the previous scans.

    Has anyone else gone through this? (I'm sure the answer is yes)

    Thanks in advance,
    Cameron
    5/1 - Minor swelling and pressure

    5/9 - Back pain and swelling

    5/18 -R. TC Diagnosis, No noted enlarged Lymph Nodes on CT report. Report notes (3) enlarged, retroperitoneal, periaortic masses of a fluid density. AFP: ~190, bHG: ~210

    5/26 - Right I/O

    6/10 - Path: 4cm, Mixed GCT with syncytiotrophoblastic giant cells (embryonal carcinoma, 30%; yolk sac tumor 30%; teratoma <40%; seminoma <1%). LVI present.

    6/17 - AFP: 205, bHCG: 9. More scans on 6/24. Looks like BEPx3.

  • #2
    Hi Cameron,

    Where did you have your PC-RPLND if you don't mind me asking and was it open or minimally invasive?

    Is this the same side as the testicle that was removed? From my.understanding the common iliac nodes may be outside of the surgical template so not necessarily "missed" but in an area that would not have been planned for resection.

    That is a fairly good size so. Have you heard from the surgeon yet?

    Mike
    Oct. 2005 felt lump but waited over 7 months.
    06.15.06 "You have Cancer"
    06.26.06 Left I/O
    06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
    06.30.06 It's Official - Stage I Seminoma
    Surveillance...
    Founded the Testicular Cancer Society
    6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

    For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

    Comment


    • #3
      Hi Mike,

      Thanks for the reply and hope you, your family and friends Are doing well these days.

      I had my surgery at UCSF and it was open -- my surgeon is very highly regarded but things happen. Supposedly it was a bilateral template. I haven't spoken with my Urologist yet, were meeting later this week. My Oncologist said that it would be pretty unlikely that it would have been missed because of the field of view during surgery and that it wasn't on the September scans. He thought that it for it size it's pretty strange that it could have grown so quickly. Also, he thought that it would have been hard to miss as there are some clips from my RPLND visible nearby.

      I had a right I/O, so yes it's on the same side as the right common iliac lymph node (if I understand the scans and direction properly).

      While I haven't heard from my surgeon/Urologist my oncologist thought that we should call it a lymphocele (because of how large it is and the fact that it would have been hard to miss during surgery) although he did note the color was very similar to the other enlarged lymph nodes that I had pre-RPLND which the pathology showed contained Teratoma. This caveat is sort of hard to dismiss.

      I think I'll just have to wait and see what my Urologist has to say, which likely means waiting a few more months to see what another scan reveals.
      Last edited by cram; 04-24-21, 10:38 PM.
      5/1 - Minor swelling and pressure

      5/9 - Back pain and swelling

      5/18 -R. TC Diagnosis, No noted enlarged Lymph Nodes on CT report. Report notes (3) enlarged, retroperitoneal, periaortic masses of a fluid density. AFP: ~190, bHG: ~210

      5/26 - Right I/O

      6/10 - Path: 4cm, Mixed GCT with syncytiotrophoblastic giant cells (embryonal carcinoma, 30%; yolk sac tumor 30%; teratoma <40%; seminoma <1%). LVI present.

      6/17 - AFP: 205, bHCG: 9. More scans on 6/24. Looks like BEPx3.

      Comment


      • #4
        To anyone else:

        Have you experienced a lymphocele or Teratoma after a PC-RPLND for a right sided primary?
        5/1 - Minor swelling and pressure

        5/9 - Back pain and swelling

        5/18 -R. TC Diagnosis, No noted enlarged Lymph Nodes on CT report. Report notes (3) enlarged, retroperitoneal, periaortic masses of a fluid density. AFP: ~190, bHG: ~210

        5/26 - Right I/O

        6/10 - Path: 4cm, Mixed GCT with syncytiotrophoblastic giant cells (embryonal carcinoma, 30%; yolk sac tumor 30%; teratoma <40%; seminoma <1%). LVI present.

        6/17 - AFP: 205, bHCG: 9. More scans on 6/24. Looks like BEPx3.

        Comment


        • #5
          Definitely a difficult situation that sometimes is more of an art than a science. Definitely let us know what the urologist has to say. You are at a great facility so are in good hands. Unfortunately, sometimes it does take time to get a good clinical picture as to not risk rushing into things for borderline reasons. Will be interesting to see what the urologist thinks.

          Mike
          Oct. 2005 felt lump but waited over 7 months.
          06.15.06 "You have Cancer"
          06.26.06 Left I/O
          06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
          06.30.06 It's Official - Stage I Seminoma
          Surveillance...
          Founded the Testicular Cancer Society
          6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

          For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

          Comment


          • #6
            Hi Cameron, my husband got lymphocel ( 300 ml) after his RPLND. He still has it after 1 and half year, his urolog expects it to resolve with time.. Did you hear from your urologist?

            Wishing you the best!

            Comment

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