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RPLND Recovery Questions

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  • RPLND Recovery Questions

    Hello Everyone,

    I’m currently on day 0 during my final stem cell transplant. Fortunately, my markers went to 0 a while back, but the tumors haven’t been shrinking much, which means I’ll need the RPLND along with the removal of a mediastinal lymph node pressing on the lung.

    To anyone who’s had the RPLND: how long does the recovery take? When could you start running? When did the surgeon clear you to do basically anything? I’m particularly interested in lifting heavy weights. When were you able to get off the low fat diet and eat completely normally?

    Thanks for the support!
    Turned 22 September 17,2020 Oct 20, 2020 Dx Stage 2c (bulky disease) nonseminoma. 90% teratoma 8% embryonal carcinoma 2% yolk sac. bHCG 154. Right I/O
    Nov 2, 2020. BEPx1. bHCG down to 6.3
    Nov 23, 2020. BEPx2 bHCG <1.2 (normalized)
    Dec 14, 2020. BEPx3. bHCG <1.2 Feb 3, 2021. Markers rising. bCHG 86
    Feb 22, 2021. TIPx1. bHCG down to 1.6
    March 15, 2021. TIPx2. bHCG down to .6
    April 19, 2021. Stem Cell Transplant 1. GemDMC HDCT
    May 25, 2021.Stem Cell Transplant 2. ICE HDCT

  • #2
    I haven't had the RPLND but in general the timelines are very surgeon/center specific. For example, some like the low fat diet while others suggest you just follow your normal diet. I think a lot if going to depend on the extensiveness of your individual surgery as well. In general, I would anticipate at least 6 weeks before being able to lift anything more than 10 pounds and perhaps longer as the post-chemotherapy RPLNDs can be a bit more difficult of a surgery.

    Mike
    Oct. 2005 felt lump but waited over 7 months.
    06.15.06 "You have Cancer"
    06.26.06 Left I/O
    06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
    06.30.06 It's Official - Stage I Seminoma
    Surveillance...
    Founded the Testicular Cancer Society
    6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

    For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

    Comment


    • #3
      Thanks for the info! Yes, I have heard that post chemo surgery can be significantly more challenging, and I’ve gotten a lot of chemo. Thankfully Dr. Sheinfeld of MSKCC will be doing my operation, so I’m in good hands.
      Turned 22 September 17,2020 Oct 20, 2020 Dx Stage 2c (bulky disease) nonseminoma. 90% teratoma 8% embryonal carcinoma 2% yolk sac. bHCG 154. Right I/O
      Nov 2, 2020. BEPx1. bHCG down to 6.3
      Nov 23, 2020. BEPx2 bHCG <1.2 (normalized)
      Dec 14, 2020. BEPx3. bHCG <1.2 Feb 3, 2021. Markers rising. bCHG 86
      Feb 22, 2021. TIPx1. bHCG down to 1.6
      March 15, 2021. TIPx2. bHCG down to .6
      April 19, 2021. Stem Cell Transplant 1. GemDMC HDCT
      May 25, 2021.Stem Cell Transplant 2. ICE HDCT

      Comment


      • #4
        Indeed, you will be in excellent hands with Dr. Sheinfeld and the team at MSKCC. You can probably contact the office and ask them in advance if they have guidance as far as return to activities post-RPLND.

        Mike
        Oct. 2005 felt lump but waited over 7 months.
        06.15.06 "You have Cancer"
        06.26.06 Left I/O
        06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
        06.30.06 It's Official - Stage I Seminoma
        Surveillance...
        Founded the Testicular Cancer Society
        6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

        For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

        Comment

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