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  • Seminoma

    Hi guys. My husband was diagnosed with testicular cancer(pure seminoma) He had 20 cm tumor pushing the kidney in a retroperetonium lymph nodes. We did 3 cycles of BEP and recently did a PET scan which showed 2 lymph nodes are still there 4.7 cm and 2.7. Now they want to perform RPLND and remove the kidney,remove aorta and part of the colon. Its a very risky surgery. I do not understand wht with seminoma chemo didnt work. Its either we needed 4 cycles or the dosage was wrong. Anybody can rely and share anything with me?! Thank you

  • #2
    A 20cm tumor is quite large, I would want an expert to weigh in on this. Consider emailing Doc E to get his opinion
    Jan, 1975: Right I/O, followed by RPLND
    Dec, 2009: Left I/O, followed by 3xBEP

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    • #3
      I agree that the 20cm is large and not sure of the timing of the PET on if the nodes will shrink further. If he is not being seen in a center of excellence, then I would see about reaching out for one of their opinions. Our friends at the TCRC keep an expert list at: http://thetcrc.org/experts.html

      Mike
      Oct. 2005 felt lump but waited over 7 months.
      06.15.06 "You have Cancer"
      06.26.06 Left I/O
      06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
      06.30.06 It's Official - Stage I Seminoma
      Surveillance...
      Founded the Testicular Cancer Society
      6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

      For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

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      • #4
        Contacted Dr Einhorn. He said not neccessary its a cancer but scar tissue. Advised to repeat blood work bc hcg was 11.96. Flying to Dana Farber to see if I can talk to his collegue Dr Chris Sweeney. I hope he will need a survillience,otherwise the next step is a high dose

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        • #5
          Sounds like a great plan. Chris Sweeney is a top TC doc and a wonderful human as well. You are in great hands with him.

          Mike

          Originally posted by Beauty20201 View Post
          Contacted Dr Einhorn. He said not neccessary its a cancer but scar tissue. Advised to repeat blood work bc hcg was 11.96. Flying to Dana Farber to see if I can talk to his collegue Dr Chris Sweeney. I hope he will need a survillience,otherwise the next step is a high dose
          Oct. 2005 felt lump but waited over 7 months.
          06.15.06 "You have Cancer"
          06.26.06 Left I/O
          06.29.06 Personal Cancer Diagnosis Date: Got my own pathology report from medical records.
          06.30.06 It's Official - Stage I Seminoma
          Surveillance...
          Founded the Testicular Cancer Society
          6.29.13 Summited Mt. Kilimanjaro for 7th Cancerversary

          For some reason I do not get notices of private messages on here so please feel free to email me directly at mike@tc-cancer.com if you would like to chat privately so as to avoid any delays.

          Comment


          • #6
            Unfortunately ,Dr Sweeney is booked till September. No way to see him. Im gonna see watever doctor is Im scheduled with and see whats gonna happen. I cam mention to him abt Dr E and Dr Sweeney but its not a fact he will want to communicate. I just dont want more chemo amd hopefully those lymph node will continue shrinking

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            • #7
              I would keep Doc E informed as things progress, please keep us posted as you learn more
              Jan, 1975: Right I/O, followed by RPLND
              Dec, 2009: Left I/O, followed by 3xBEP

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              • #8
                Did blood work in DanaFarber.hcg raised 42.6 ldh 530.Next step is high dose chemo or surgery. Anybody went through hdct?

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