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  • Scott
    started a topic Centers of Expertise

    Centers of Expertise

    One of the most frequently asked questions is, "How do I contact a center of expertise for another opinion or treatment?"

    Contact information for two top centers is at these links.The Testicular Cancer Resource Center website lists other experts around the world at this link.
    Last edited by Scott; 12-31-08, 02:19 PM.

  • negolien
    replied
    Well everyone is different but I'll give you my 2 cents. I was diagnosed with a testicular germ cell cancer. they cut out the affected testical said the margins were clear did aggressive surveillance and a year later I ended up with metastatic lung cancer. My 2 cents is RPLND might or might not be necessary as mine wasn't but Chemo is 100% a must. If I would have gotten 9 weeks of chemo after the testical was removed I would not have ended up with lung cancer. As a side not no lymph nodes were showing signs of infection and I didn't have an RPLND nor have I to this day over 1 year clear after chemo I had the testicular removed in 2015 had chemo on 2016

    Leave a comment:


  • juyuhu
    replied
    Hello, I am new to this forum. My husband is a Stage IIIB nonseminoma survivor, at exactly 2 years post-chemo and I/O. We are in Houston, so his treatment and care team are at MD Anderson. He never got an RPLND - his team decided to pursue surveillance. I'm surprised (and maybe a bit concerned) that MD Anderson is not really mentioned here except once in 2011 and is not on the world-wide list. Has anyone done an RPLND at MDA?

    Leave a comment:


  • Mike
    replied
    Originally posted by Mwallach View Post
    Hey everyone,

    I am just starting my journey down this road. I am a week and a half or of a radical left I/O. I had this procedure at Washington Adventist in Takoma Park MD.

    The pathology report showed Stage I seminoma with no indication of it spreading. Currently my doctor has scheduled for follow-up blood work in two and a half weeks and we go from there.

    Does anyone have experience with Doctors in the DC/Baltimore area? Is there a center of excellence in this area?

    Thanks,
    Max

    Hi Max,

    I responded to your other post in more detail.

    If it were me and I wanted further consultation on treatment options, I would see Dr. Pierorazio at Johns Hopkins in Baltimore http://urology.jhu.edu/phillippierorazio/ (I personally know him and he is a great guy and incredibly knowledgable about testis cancer) another local option may be Dr. Ross Krasnow https://www.medstarhealth.org/doctor/dr-ross-e-krasnow-md/#q={} (I do not personally know him but he is new to DC and was fellowship trained in urologic oncology in Boston).

    Mike

    Leave a comment:


  • Trekga
    replied
    Sorry to welcome you here. Responding so someone who lives in DC/Baltimore area might chime in, however I would definetly see if your insurance will cover a visit to James Buchanan Brady Urological Institute especially with Dr. Phillip M. Pierorazio he is an EXPERT!!

    http://urology.jhu.edu/testis/cancer.php

    Leave a comment:


  • Mwallach
    replied
    Hey everyone,

    I am just starting my journey down this road. I am a week and a half or of a radical left I/O. I had this procedure at Washington Adventist in Takoma Park MD.

    The pathology report showed Stage I seminoma with no indication of it spreading. Currently my doctor has scheduled for follow-up blood work in two and a half weeks and we go from there.

    Does anyone have experience with Doctors in the DC/Baltimore area? Is there a center of excellence in this area?

    Thanks,
    Max

    Leave a comment:


  • Vee
    replied
    Princess Margaret Cancer Center for anyone in Toronto. Even Ontario.

    Leave a comment:


  • vasileios
    replied
    Hi all.concerning cyprus you can come in contact with doc Demetriou from ipokrateio hospital(he has the only da vinci in the country)I also heard about another doc that does lap surgery with his ex visiting teacher from uk in limassol ygeia clinic.in greece you could check diavalkaniko for mr andreou or larisa for the open procedure(a us visiting doctor helps there).my personal choice was royal marsden uk.from what uve heard you can also check athens metropolitan hospital where the lead urology surgeon perfoms this type of surgeriea.generally though people seem to avoid hqving the surgery andprefer the chemo way to try to fix things

    Leave a comment:


  • golfwith1ball
    replied
    Dr. Sanjeev Kaul - Michigan - Robotic RPLND

    http://www.urologist.org/AboutUs/Our...njeev-M-D.aspx

    Kaul, Sanjeev M.D.
    31157 Woodward Ave.
    Royal Oak, MI 48073

    Tel: 248.336.0123
    Fax: 248.336.3390

    He is highly recommended by his peers. I cannot say enough about how good my experience was with Dr. Kaul.....

    Leave a comment:


  • ttstevens
    replied
    Dr. Allaf, Johns Hopkins

    I would add Dr. Mohammed Allaf at Johns Hopkins Brady Urological Institute. Below is a link to his bio. He is an oncologist, urologist and the director of minimally invasive and robotic surgery. He does loads of L-RPLND a year and is VERY up on all the research. We were very impressed when we met him and feel that we can trust him. He took time with us and answered all of our questions.

    http://urology.jhu.edu/mohamadallaf/index.php

    Leave a comment:


  • vineet
    replied
    Hello Friends,

    by any chance any body have idea of good specialist in India..?

    Leave a comment:


  • Mike'swife
    replied
    How about Orange County, Los Angeles, or any Southern California?

    Leave a comment:


  • Abed
    replied
    i wish i could ,,, iam in Saudi Arabia

    Leave a comment:


  • SouthFlorida
    replied
    Boca Raton Regional Hospital, Florida

    IF you are in south florida the newly built Lynn cancer center is an AMAZING facility, they treat all kinds of cancer my doctor is from MSKCC and is very good in my opinion. The cancer center is all state of the art with all the scanning <CT, PET, MRI etc.> and radiation therapy on the first floor, 11 doctors see patients on the second floor along with the lab and infusion center. blood work takes 5-10 minutes to get the results! and they have a multimodialty center where all the doctors talk about the cases and whatever else they do..

    It is a TOP NOTCH facility google "Lynn cancer center at Boca Raton Regional Hospital".
    Last edited by SouthFlorida; 02-12-12, 01:39 AM.

    Leave a comment:


  • Nut of Mordor
    replied
    The main center of expertise here in Italy is the following, not the one on the first post' link:

    Istituto Nazionale Tumori, Via Venezian 1, 20133 Milano

    Leave a comment:

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